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I'm Still Here: A New Philosophy of Alzheimer's Care Paperback – December 29, 2009


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I'm Still Here: A New Philosophy of Alzheimer's Care + Learning to Speak Alzheimer's: A Groundbreaking Approach for Everyone Dealing with the Disease + Creating Moments of Joy for the Person with Alzheimer's or Dementia: A Journal for Caregivers, Fourth Edition
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Product Details

  • Paperback: 272 pages
  • Publisher: Avery; 1 edition (December 29, 2009)
  • Language: English
  • ISBN-10: 1583333762
  • ISBN-13: 978-1583333761
  • Product Dimensions: 5.5 x 0.7 x 8.2 inches
  • Shipping Weight: 8.8 ounces (View shipping rates and policies)
  • Average Customer Review: 4.4 out of 5 stars  See all reviews (49 customer reviews)
  • Amazon Best Sellers Rank: #111,588 in Books (See Top 100 in Books)

Editorial Reviews

Review

A book that will give great hope and encouragement to anyone dealing with Alzheimer's sufferers either in a professional situation or at home... An optimistic book, it shows there is another way and that medication is not the only approach. One to watch. THE BOOKSELLER John Zeisel's insights into Alzheimer's are not the narrow observations of a physician peddling a theory; they are observations and research into an intensely humane cry for understanding and represent nothing less than a radical revisiting of what it is 'This important new book makes the case for a positive mindset about dementia; providing us with new concepts such as 'hard-wired' abilities and new meanings of words like "treatment". It is a valuable addition to materials available for relatives and friends of people with dementia. Mary Marshall OBE, author and Director of the Dementia Services Centre, University of Stirling m Still Here is a startling, uncompromising, and deeply compassionate look at how we care for people living with Alzheimer's. It overflows with insight, practical advice, inspiration and hope DAVID HYDE PIERCE, actor and Alzheimer's advocate

About the Author

John Zeisel is the president of Hearthstone Alzheimer Care, and is the founder of the Hearthstone Way, an innovative and practical approach to the care of people living with dementia. He developed ARTZ, the Artists for Alzheimer’s program, which develops guided museum tours and other cultural experiences for those living with the disease. He holds a Ph.D. in sociology from Columbia, and has taught at Harvard, Yale, and McGill. His work has been covered in The New York Times, The Boston Globe, and O: The Oprah Magazine, and on ABC, CNN, and the BBC. Zeisel divides his time among Montreal, New York City, and Woburn, Massachusetts.

Customer Reviews

Now I feel like I can do this.
D. Umbarger
This book gives people insight to keep communicating & knowing HOW to communicate with a person with dementia or similar disease.
Sandra
A must read for anyone caring for a person living with Alzheimer's or other related forms of dementia.
J. Zlotkin

Most Helpful Customer Reviews

46 of 48 people found the following review helpful By Suzanne on April 29, 2009
Format: Hardcover
I am an RN, and have a mother with Alzheimer's. I have read at least 5 books on this subject, but when I found "I'm Still Here", I was very so surprised. This book is the best I have read so far, it is the most beautiful, compassionate and helpful book for everyone being in contact with a person suffering from Alzheimer's disease. You will be so glad you read it! I sent it to my dad who is the caregiver for my mom. He was somewhat skeptical; I had suggested other books before. But when he started reading this one, he emailed me "I wish I had had this book a year ago".... Please, give yourself the gift of this book.
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34 of 42 people found the following review helpful By Barbara Smith on November 21, 2009
Format: Hardcover
This book may be helpful and appreciated by readers who don't understand the behavioral changes that the Alzheimer's victim manifests and need to be told that there is- indeed still a person in there. I use the word "victim" even though Zeisel prefers to call them "people living with Alzheimers" because Alzheimer's disease not only predictably produces a downward spiral toward death but changes the very essence of who the victim is- including social roles and self- care abilities such as dressing or bathing and ultimately the ability to swallow food. They are indeed victims of what might be considered one of the most terrifying diseases.

Zeisel also uses another euphemism- the word "partner" instead of "caregiver"- almost as though to minimize the devastation experienced by spouses, friends and children as they lose previous social relationships (especially of spouses), take on the burden of making financial and health care decisions and endure the physical demands of dressing, toileting and feeding another person. This is not a partnership. It is the caregiver who is responsible for finding financial assistance for home care or a facility that provides adequate care and stimulation.

I'm Still Here offers some good tips on behavioral interventions and setting up the environment to promote quality of life and decrease agitation. The Arts program as described provides the much needed social and sensory stimulation many memory impaired individuals lack. But all of this stimulation can be provided with meaningful photographs, music, familiar movie clips and other personalized sensory stimulation modalities such as smelling the familiar aroma of apple pie.
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11 of 12 people found the following review helpful By Jacqueline M. Baldwin on January 27, 2010
Format: Paperback Verified Purchase
I run a Caregivers' Support Group and I took this book to help the Caregivers. I had to check it out at each meeting as someone was always wanting it - those who read it said it helped them get a new perspective on their care partner.
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7 of 8 people found the following review helpful By reader on January 30, 2011
Format: Paperback Verified Purchase
great insight on there are still many things we can do for the person
who seems so lost. Knowing that they are still in there, gives you hope, finding different ways to reach out and touch their heart within.
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3 of 3 people found the following review helpful By Javalina Jean on August 30, 2013
Format: Kindle Edition Verified Purchase
While "The 36-Hour Day" remains the most comprehensive self-help for dementia/Altzheimer's caregivers, this book takes a different approach. It explains that some things are hard-wired in the brain and tells how to access that for the benefit of the patient. It explains a concept and tells you how to use the information to help the one being cared for. One example is the use of templates. It says that there are around 50 steps in the process of getting dressed and while the patient may be able to do each step, putting it all together becomes overwhelming. Setting the table is another such problem and the use of a template such as a place mat showing the location of the plate, knife, fork, etc. allows the person to match the utensils to the drawing. It is a very compassionate approach and has helped me sort out some personal feelings by giving me insight into the way the brain of the patient works. I haven't absorbed all that is contained in the book yet and I hope to learn more about the process and apply it to the care of my husband.
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Format: Hardcover
I am an expressive arts therapist and have been working with individuals and groups with Alztheimer's for 30 years and I loved the book, I'm Still Here. Thank you Dr. Zeisel for your thoughtful research and insight into the life of those living with this challenge. I also enjoyed the Documentary, I Remember Better When I Paint. I work in some of the best assisted living and nursing homes in the Boston area and all believe that art, dance, music and drama are powerful ways to touch the hearts of these individuals. With continued research and documentation about these modalities, they will be better understood and trusted. Great job. Susan Swanson M.A.,ATR
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8 of 10 people found the following review helpful By Laurie Cohn on August 27, 2009
Format: Hardcover
This book offers a different view of Alzheimer's; possibilities for living as opposed to preparing for death. It offers insights and ideas for those who have and those who care about those who have Alzheimer's. I would highly recommend reading it. The thoughts behind the ideas can be so broadly applied in all our communications.
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3 of 3 people found the following review helpful By Lydia Cutler on March 3, 2011
Format: Hardcover Verified Purchase
The book helps to find some positive aspects in having Alzheimer's or at least to look at it from a different perspective, the one you could live with instead of deciding that your life is over. Maybe it's over in the way you lived it before, but it's still life.
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