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16 of 16 people found the following review helpful:
5.0 out of 5 stars
At last, just what the patient ordered!, January 13, 2002
I am absolutely delighted with the Iron Disorders Institute "Guide to Hemochromatosis"! It has been three years since our family first heard the word
"hemochromatosis", and in that time I have searched public
and hospital libraries as well as the Internet in an attempt to
find factual, non-partisan, current information; comprehendible
by a layperson. I have sifted through clinical information beyond my level of understanding, as well as reams of half-truths, non-truths and sheer conjecture. What an education, at such an affordable price! I sincerely
appreciate the fact that the Iron DisorderS Institute has offered
the knowledge that there are MANY disorders of iron metabolism,
not ONLY the one that genetically affects our family. They
have offered education in the form of charts, diet and nutritional information; COMPLETE understandable clinical information. The CDC tells us "Approximately one of every 200 to 400 people
is affected, while one in 10 is a carrier making this one of the most common of the known genetic disorders in the United States". Sadly, it is one of the most MISSED diagnoses. With educational materials like this book offered by experts in the field, I feel hope and confidence that my husband will successfully deal with his diagnosis; our daughters will never experience what their dad has because of their KNOWLEDGE; and for our grandchildren, iron overload will be something they deal with through lifestyle choices and yearly monitoring - it will never hurt them. Perhaps most important, what a gift to an unsuspecting public, so many of whom carry this genetic mutation, and have yet to find that illusive, lifesaving diagnosis! My most sincere thanks!
Cheryl Mellan,
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20 of 21 people found the following review helpful:
5.0 out of 5 stars
The Iron Disorders Institute "Guide to Hemochromatosis", August 13, 2001
The Iron Disorders Institute "Guide to Hemochromatosis" is a cogent book. The cover gets ones attention immediately, as it lists the symptoms on the cover. When my daddy died on July 4, 2000, I had never heard of Hemochromatosis, I am 57. He was diagnosed, too late, on July 1, 2000. After a zillion hours of searching the Internet about Hemochromatosis, I came away very angry about this "most common genetic disorder, because it is basically unknown by the layman and underdiagnosed by the medical profession, 1/250 have it and don't know it, and 1/10 carry the gene," per the CDC. (Many professionals still call it a "rare old man's disease.") Excuse me, but women have Hemochromatosis also. All that was needed was for my daddy to have had an early diagnosis, and give blood to reduce his iron level. This book is the most comprehensive and up-to-date information that the layman can read about Hemochromatosis. And the layman had better read it, because their doctors don't know about its prevelence, and many don't know to test for it. Instead the doctors continue to "well-meaningly" treat the patient's symptoms. Simple blood tests that are described in the book, can diagnose Hemochromatosis. The individual must arm themselves with this book's information and help educate their doctor. In fact, I have bought "Guide to Hemochromatosis" for a few doctors.
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14 of 14 people found the following review helpful:
5.0 out of 5 stars
The Iron Disorders Institute Guide to Hemochromatosis, January 23, 2002
At long last, a single source of invaluable information about diagnosis and treatment of Hemochromatosis along with many personal trials and tribulations of those who have experienced the frustrations of obtaining an appropriate diagnosis. "The Iron Disorders Institute's Guide to Hemochromatosis" is a tremendously welcome resource. I was so impressed I purchased 7 additional copies for my 5 adult children and 2 of the RNs who conduct my frequent phlebotomies. I'm also relieved that newly diagnosed "Rusties" do not have to go through the agony of research as I did back in 1979 when I was diagnosed as a result of my younger sister's autopsy results. There was scant information available in the medical journals of the period. I recall one occasion spending more than 4 hours in a medical library only to locate a single 2 year old article about Hemochromatosis, which was replete with statements that have since been proved mythical. No one will have to endure that again with the advent of IDI's "Guide". The "Web" has certainly provided considerably more accessibility to Hemochromatosis information, yet much of what is available still has to be validated. The "Guide to Hemochromatosis" overcomes this problem by providing in a single-source forthright testimony, easy-to-understand charts and time-tested data contributed by highly recognized scientists in their fields. The "Guide" can reduce, even eliminate, the frustration often experienced when trying to convince a family member of how crucial it is for having the appropriate blood tests conducted to determine stored iron levels. The feedback I've received from those whom I have given this book to has been overwhelmingly positive. There is little doubt as to the value of this book in one's arsenal for educating loved ones about the insidiousness of excess iron and the damage iron can do to the human body. I found that one can simply read individual chapters in no particular order and assimilate a plethora of knowledge without being bogged down in technical jargon. This book relates well on a very personal level. I can not emphasize enough the value of this book. It commands a highly visible location in my reading library, replacing the "Reader's Digest". I also highly recommend this book as being very germane to every individual, worldwide, who has Irish, Scottish, or English ancestry.
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