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The Iron Disorders Institute Guide to Hemochromatosis: A Genetic Disorder of Iron Metabolism 1st Edition

65 customer reviews
ISBN-13: 061-0529002555
ISBN-10: 1581821603
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Garrison (cofounder, Iron Disorders Institute) and a team of medical advisors present a layperson's overview of a common but under-diagnosed genetic disorder of iron metabolism. Following an explanation of why hemochromatosis has frequently been overlooked, they discuss the symptoms of iron overload, diagnostic tests, genetic testing, treatment and diet. Updated from the 2001 edition, the guide includes patients' stories, checklists for physicians and patients, resources, a glossary, and bibliography. --This text refers to an alternate Paperback edition.

About the Author

Cheryl Garrison is an artist, writer, and cofounder and Vice President of Educational Development of the Iron Disorders Institute. The editor of the Iron Disorders Institute's publications, read worldwide by physicians and patients alike, she lives in Clyde, North Carolina.

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Product Details

  • Paperback: 368 pages
  • Publisher: Cumberland House; 1 edition (April 30, 2001)
  • Language: English
  • ISBN-10: 1581821603
  • ISBN-13: 978-1581821604
  • Product Dimensions: 7.9 x 5.5 x 1.1 inches
  • Shipping Weight: 1 pounds
  • Average Customer Review: 4.7 out of 5 stars  See all reviews (65 customer reviews)
  • Amazon Best Sellers Rank: #1,752,046 in Books (See Top 100 in Books)

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Customer Reviews

Most Helpful Customer Reviews

25 of 25 people found the following review helpful By Cheryl Mellan on January 13, 2002
Format: Paperback
I am absolutely delighted with the Iron Disorders Institute
"Guide to Hemochromatosis"!
It has been three years since our family first heard the word
"hemochromatosis", and in that time I have searched public
and hospital libraries as well as the Internet in an attempt to
find factual, non-partisan, current information; comprehendible
by a layperson. I have sifted through clinical information beyond my level of understanding, as well as reams of half-truths, non-truths and sheer conjecture.
What an education, at such an affordable price! I sincerely
appreciate the fact that the Iron DisorderS Institute has offered
the knowledge that there are MANY disorders of iron metabolism,
not ONLY the one that genetically affects our family. They
have offered education in the form of charts, diet and nutritional information; COMPLETE understandable clinical information.
The CDC tells us "Approximately one of every 200 to 400 people
is affected, while one in 10 is a carrier making this one of the most common of the known genetic disorders in the United States". Sadly, it is one of the most MISSED diagnoses. With educational materials like this book offered by experts in the field, I feel hope and confidence that my husband will successfully deal with his diagnosis; our daughters will never experience what their dad has because of their KNOWLEDGE; and for our grandchildren, iron overload will be something they deal with through lifestyle choices and yearly monitoring - it will never hurt them. Perhaps most important, what a gift to an unsuspecting public, so many of whom carry this genetic mutation, and have yet to find that illusive, lifesaving diagnosis!
My most sincere thanks!
Cheryl Mellan,
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24 of 25 people found the following review helpful By kay cash on August 13, 2001
Format: Paperback
The Iron Disorders Institute "Guide to Hemochromatosis" is a cogent book. The cover gets ones attention immediately, as it lists the symptoms on the cover. When my daddy died on July 4, 2000, I had never heard of Hemochromatosis, I am 57. He was diagnosed, too late, on July 1, 2000. After a zillion hours of searching the Internet about Hemochromatosis, I came away very angry about this "most common genetic disorder, because it is basically unknown by the layman and underdiagnosed by the medical profession, 1/250 have it and don't know it, and 1/10 carry the gene," per the CDC. (Many professionals still call it a "rare old man's disease.") Excuse me, but women have Hemochromatosis also. All that was needed was for my daddy to have had an early diagnosis, and give blood to reduce his iron level. This book is the most comprehensive and up-to-date information that the layman can read about Hemochromatosis. And the layman had better read it, because their doctors don't know about its prevelence, and many don't know to test for it. Instead the doctors continue to "well-meaningly" treat the patient's symptoms. Simple blood tests that are described in the book, can diagnose Hemochromatosis. The individual must arm themselves with this book's information and help educate their doctor. In fact, I have bought "Guide to Hemochromatosis" for a few doctors.
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17 of 17 people found the following review helpful By James E Hines on January 23, 2002
Format: Paperback
At long last, a single source of invaluable information about diagnosis and treatment of Hemochromatosis along with many personal trials and tribulations of those who have experienced the frustrations of obtaining an appropriate diagnosis. "The Iron Disorders Institute's Guide to Hemochromatosis" is a tremendously welcome resource. I was so impressed I purchased 7 additional copies for my 5 adult children and 2 of the RNs who conduct my frequent phlebotomies.
I'm also relieved that newly diagnosed "Rusties" do not have to go through the agony of research as I did back in 1979 when I was diagnosed as a result of my younger sister's autopsy results. There was scant information available in the medical journals of the period. I recall one occasion spending more than 4 hours in a medical library only to locate a single 2 year old article about Hemochromatosis, which was replete with statements that have since been proved mythical. No one will have to endure that again with the advent of IDI's "Guide".
The "Web" has certainly provided considerably more accessibility to Hemochromatosis information, yet much of what is available still has to be validated. The "Guide to Hemochromatosis" overcomes this problem by providing in a single-source forthright testimony, easy-to-understand charts and time-tested data contributed by highly recognized scientists in their fields.
The "Guide" can reduce, even eliminate, the frustration often experienced when trying to convince a family member of how crucial it is for having the appropriate blood tests conducted to determine stored iron levels. The feedback I've received from those whom I have given this book to has been overwhelmingly positive.
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13 of 13 people found the following review helpful By Deborah MacGillivray HALL OF FAMEVINE VOICE on May 3, 2004
Format: Paperback
Finally, there is definitive information out there, instead of just people passing word of mouth warnings. This books is worth gold for people of Celtic ancestry. I was diagnosed with HHC, laughingly called the Celtic Curse because it can strike people of Scottish and Irish ancestry, there was not a lot of information out there about it. One in four people can carry the gene that causes the body to store too much iron in the deep muscle tissue, kidneys, liver and heart. It can be fatal if not caught. This book helps those find a way to live with this problem.
When I learnt I suffered from this, I had not heard of it, no one I knew had it. However, within in the last five years, many people I know are aware of a friend or family member that now has it. It often mimics many other health problems, so it's good to get early treatment and have books such as this one that help you manage your lifestyle.
This book addresses all the issues and give people a sound understanding of the problem, how to face it and how to live with it.
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