Customer Reviews

The Iron Disorders Institute Guide to Hemochromatosis

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I am absolutely delighted with the Iron Disorders Institute
"Guide to Hemochromatosis"!

It has been three years since our family first heard the word
"hemochromatosis", and in that time I have searched public
and hospital libraries as well as the Internet in an attempt to
find factual, non-partisan, current information; comprehendible
by a layperson. I have sifted through clinical information beyond my level of understanding, as well as reams of half-truths, non-truths and sheer conjecture.

What an education, at such an affordable price! I sincerely
appreciate the fact that the Iron DisorderS Institute has offered
the knowledge that there are MANY disorders of iron metabolism,
not ONLY the one that genetically affects our family. They
have offered education in the form of charts, diet and nutritional information; COMPLETE understandable clinical information.

The CDC tells us "Approximately one of every 200 to 400 people
is affected, while one in 10 is a carrier making this one of the most common of the known genetic disorders in the United States". Sadly, it is one of the most MISSED diagnoses. With educational materials like this book offered by experts in the field, I feel hope and confidence that my husband will successfully deal with his diagnosis; our daughters will never experience what their dad has because of their KNOWLEDGE; and for our grandchildren, iron overload will be something they deal with through lifestyle choices and yearly monitoring - it will never hurt them. Perhaps most important, what a gift to an unsuspecting public, so many of whom carry this genetic mutation, and have yet to find that illusive, lifesaving diagnosis!

My most sincere thanks!
Cheryl Mellan,

The Iron Disorders Institute "Guide to Hemochromatosis" is a cogent book. The cover gets ones attention immediately, as it lists the symptoms on the cover. When my daddy died on July 4, 2000, I had never heard of Hemochromatosis, I am 57. He was diagnosed, too late, on July 1, 2000. After a zillion hours of searching the Internet about Hemochromatosis, I came away very angry about this "most common genetic disorder, because it is basically unknown by the layman and underdiagnosed by the medical profession, 1/250 have it and don't know it, and 1/10 carry the gene," per the CDC. (Many professionals still call it a "rare old man's disease.") Excuse me, but women have Hemochromatosis also. All that was needed was for my daddy to have had an early diagnosis, and give blood to reduce his iron level. This book is the most comprehensive and up-to-date information that the layman can read about Hemochromatosis. And the layman had better read it, because their doctors don't know about its prevelence, and many don't know to test for it. Instead the doctors continue to "well-meaningly" treat the patient's symptoms. Simple blood tests that are described in the book, can diagnose Hemochromatosis. The individual must arm themselves with this book's information and help educate their doctor. In fact, I have bought "Guide to Hemochromatosis" for a few doctors.

At long last, a single source of invaluable information about diagnosis and treatment of Hemochromatosis along with many personal trials and tribulations of those who have experienced the frustrations of obtaining an appropriate diagnosis. "The Iron Disorders Institute's Guide to Hemochromatosis" is a tremendously welcome resource. I was so impressed I purchased 7 additional copies for my 5 adult children and 2 of the RNs who conduct my frequent phlebotomies.

I'm also relieved that newly diagnosed "Rusties" do not have to go through the agony of research as I did back in 1979 when I was diagnosed as a result of my younger sister's autopsy results. There was scant information available in the medical journals of the period. I recall one occasion spending more than 4 hours in a medical library only to locate a single 2 year old article about Hemochromatosis, which was replete with statements that have since been proved mythical. No one will have to endure that again with the advent of IDI's "Guide".

The "Web" has certainly provided considerably more accessibility to Hemochromatosis information, yet much of what is available still has to be validated. The "Guide to Hemochromatosis" overcomes this problem by providing in a single-source forthright testimony, easy-to-understand charts and time-tested data contributed by highly recognized scientists in their fields.

The "Guide" can reduce, even eliminate, the frustration often experienced when trying to convince a family member of how crucial it is for having the appropriate blood tests conducted to determine stored iron levels. The feedback I've received from those whom I have given this book to has been overwhelmingly positive. There is little doubt as to the value of this book in one's arsenal for educating loved ones about the insidiousness of excess iron and the damage iron can do to the human body.

I found that one can simply read individual chapters in no particular order and assimilate a plethora of knowledge without being bogged down in technical jargon. This book relates well on a very personal level. I can not emphasize enough the value of this book. It commands a highly visible location in my reading library, replacing the "Reader's Digest".

I also highly recommend this book as being very germane to every individual, worldwide, who has Irish, Scottish, or English ancestry.

Since diagnosed with Hemochromatosis in 1995, the hardest problem to overcome has been the determination of the correct treatment parameters on an ongoing basis simply because the disorder slowly invades so many vital organs -- the liver, the heart and the pancreas, to name a few. Even doctors tend to treat the problems CAUSED by the hemochromatosis and tend to ignore the underlying cause -- the killer IRON that gets into those organs. If the hemochromatosis is not discovered in time, early death is the most common result. Because hemochromatosis is a hereditary disorder, families of patients MUST become familiar with the disorder BEFORE the iron does its damage. Consequently, I recommend this Guide to Hemochromatosis as must reading for patients and their families.

Finally, there is definitive information out there, instead of just people passing word of mouth warnings. This books is worth gold for people of Celtic ancestry. I was diagnosed with HHC, laughingly called the Celtic Curse because it can strike people of Scottish and Irish ancestry, there was not a lot of information out there about it. One in four people can carry the gene that causes the body to store too much iron in the deep muscle tissue, kidneys, liver and heart. It can be fatal if not caught. This book helps those find a way to live with this problem.

When I learnt I suffered from this, I had not heard of it, no one I knew had it. However, within in the last five years, many people I know are aware of a friend or family member that now has it. It often mimics many other health problems, so it's good to get early treatment and have books such as this one that help you manage your lifestyle.

This book addresses all the issues and give people a sound understanding of the problem, how to face it and how to live with it.

This is the first and only text containing a complete and understandable body of knowledge on the disorder known as hemochromatosis. Thanks to this book our entire family has been able to efficiently and correctly diagnose this metabolic disorder. We were amazed to discover that the general population of physicians responded with skepticism and used outdated information. Some were reluctant to order the basic blood tests necessary to detect iron buildups. Not only does the book provide an excellent guide to detection and treatment, but more importantly it ameliorates the mental and emotional stress that comes from lack of knowledge and concern for your loved ones. It should be required continuing education reading for all medical practitioners.

I wished I had this book when I was Diagnosed 11 years ago. It simply has everything in it and will keep you reading on and on and on and on...

I have Hemochromatosis. In my opinion there is no other book like this on the market that deals with this issue so personally. Whomever wrote this book sat down and took time out to put this book in Lamens Terms. Bless you. This is a definite buy for anyone that feels they may have an iron disorder.

Daniel Garner Atlanta, GA

An incredible find that will save many lives. It explores the world of iron overloading and hemochromatosis in an easy to read style. HH sufferers no longer have to rely on the medical profession's sometimes outdated ideas of diagnosis and treatment of HH or the sometimes questionable web info in order to get a diagnosis and proper treatment. It will answer the questions you may have and others you haven't thought of yet. If someone has suggested that HH may be a possable diagnosis of an ailment/s that you have, you owe yourself this book. It will make a great resource for your doctor also.

This book was recommended by a friend when my 26 year old son was diagnosed with hemachromatosis, before I even knew my husband and I are both carriers. I ended up getting two of my sons (2 of my 3 have hemachromatosis)a copy. It relieved a lot of fears and answered a lot of questions, questions that my family doctor didn't know the answer to. It also gave us direction as to what to do and what to expect. Very easy to read, very easy to understand.