Jonny Kennedy was the star of the unforgettable Emmy award-winning documentary "The Boy Whose Skin Fell Off". He was an extraordinary character determined to live an ordinary life despite being born with the agonising condition Dystrophic Epidermolysis Bullosa (EB), which meant that his skin could literally fall off at the slightest touch. It was a daily struggle he faced with courage, determination and wit, offering inspiration to millions around the world. Tragically, Jonny was just 36 when he lost a final battle to skin cancer. This is his moving, honest and uplifting story.
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About the Author
Roger Stutter was one of Jonny Kennedy's closest friends, and spent many months recording Jonny's innermost thoughts and recollections for this extraordinary memoir. Additional memories are provided by Edna Kennedy, Jonny's mum, and Nell McAndrew, who befriended Jonny in the final months before his death. It is hoped the book will raise awareness for Jonny's condition and for the charities that continue his work.
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2 of 2 people found the following review helpful:
5.0 out of 5 stars
Highly recommend,
By H.Spillman "Heidecan" (San Diego, CA USA) - See all my reviews
This review is from: Jonny Kennedy (Paperback)
This book is a wonderful compliment to the 2003 biography on Jonny Kennedy. However, if you did not see the program, the book stands alone as a window into Jonny Kennedy's daily life, both in good times and bad. I do not recall having two intense emotions while reading, sobbing and smiling at the same moment, kudos to Mr Kennedy and Mr Stutter! Please do not miss out on the opportunity to read about this remarkable man.
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Inside This Book
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Key Phrases - Statistically Improbable Phrases (SIPs):
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dystrophic epidermolysis bullosa, spiritualist church Key Phrases - Capitalized Phrases (CAPs): (learn more)
Uncle Bob, Whitley Bay, Jimmy Savile, North East, Auntie Georgina, Lions Club, Petula Clark Browse Sample Pages:
Front Cover | First Pages | Back Cover | Surprise Me!
dystrophic epidermolysis bullosa, spiritualist church Key Phrases - Capitalized Phrases (CAPs): (learn more)
Uncle Bob, Whitley Bay, Jimmy Savile, North East, Auntie Georgina, Lions Club, Petula Clark Browse Sample Pages:
Front Cover | First Pages | Back Cover | Surprise Me!
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