Customer Reviews

Journey

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Robert and Suzanne Massie are both wonderful, accomplished writers, and in "Journey" they open their hearts to us as they tell of their 18 year journey raising their son, Bobby, who has hemophilia. Today the disease is much more easily treated than when Bobby was born, in 1956.

The Massies describe their struggle to do the best they could and to ensure that Bobby would have the most normal life experiences possible. They describe their encounters with
doctors and nurses, some warm and nurturing, others coldly uncaring and clinical. In the book, Bobby himself writes of his own journey, with hundreds upon hundreds of necessary transfusions, and with many periods of enforced idleness so hard
on a young boy.

In one of what is the most meaningful passages for me, Suzanne describes how distant she felt from other young mothers of her circle as they chatted about daily small matters, about the PTA and their children's sports teams. Suzanne's life had been unutterably altered not by a crisis event, but by an ongoing momentous struggle. As the mother of an adult autistic son, I fully understand her feelings.

This is marvelous book about love, family, grit, and the triumph of the human spirit.