Kara Mia offers readers a unique perspective on a teenager's cardiac arrest, diagnosis of Long QT syndrome and living with its aftermath. Kara Anglim was fourteen when she suffered a cardiac arrest while running track. Her life, those of her family and friends, and doctor were changed as they struggled to cope with this tragic event. But cope they did and Kara Mia chronicles all the difficult steps along the way from Kara's resuscitation, prolonged hospital stay, her diagnosis of Long QT syndrome and her continuing rehabilitation outside the hospital. It is a story of love and support, tears and laughter. Black and white photographs show Kara with family, friends and medical staff as she improves. A glossary and bibliography are included.
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Editorial Reviews
From Scientific American
This book has important messages on several different levels. For a nonmedical audience, it provides an extraordinarily detailed and personal account of a teenage girl's gradual, and unfortunately, still incomplete, recovery from a severe brain injury. For physicians it shows a side of rehabilitation that is hidden from them - what happens when the respirator, intravenous tubing, and even the wheelchair are no longer needed and a patient returns to family and friends with neurological problems that just don't disappear. For all of us, it reinforces the vulnerability of our most human traits to a single mutation in the genetic code.
From The New Yorker
This is a stunning account of a partnership between a family, a physician and their medical/social communities in their journey to unravel a genetic mystery and its incredible impact on them all.
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3 of 3 people found the following review helpful:
5.0 out of 5 stars
helpful as a teaching tool,
By A Customer
This review is from: Kara Mia: The Story of Sudden Loss & Slow Recovery in a Teenager with Long QT Syndrome (Paperback)
I have given this book to many people who are going through a health crisis. It speaks universally to the families of loved ones who are going through any sort of chronic illness. If you happen to be a family afflicted by Long QT syndrome, it makes the scientific knowledge of this genetic heart condition easily understood. I have also given this book to my children's teachers and the parents of their friends so that the diagnosis and treatment and day-to-day problems will be more readily understood and not seem as frightening to the adults who are in daily contact with my children.
5.0 out of 5 stars
helpful as a teaching tool,
By A Customer
This review is from: Kara Mia: The Story of Sudden Loss & Slow Recovery in a Teenager with Long QT Syndrome (Paperback)
I have given this book to many people who are going through a health crisis. It speaks universally to the families of loved ones who are going through any sort of chronic illness. If you happen to be a family afflicted by Long QT syndrome, it makes the scientific knowledge of this genetic heart condition easily understood. I have also given this book to my children's teachers and the parents of their friends so that the diagnosis and treatment and day-to-day problems will be more readily understood and not seem as frightening to the adults who are in daily contact with my children.
5.0 out of 5 stars
helpful as a teaching tool,
By A Customer
This review is from: Kara Mia: The Story of Sudden Loss & Slow Recovery in a Teenager with Long QT Syndrome (Paperback)
I have given this book to many people who are going through a health crisis. It speaks universally to the families of loved ones who are going through any sort of chronic illness. If you happen to be a family afflicted by Long QT syndrome, it makes the scientific knowledge of this genetic heart condition easily understood. I have also given this book to my children's teachers and the parents of their friends so that the diagnosis and treatment and day-to-day problems will be more readily understood and not seem as frightening to the adults who are in daily contact with my children.
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