Kaci's children have craniosynostosis, a condition where the infant skull sutures (openings) fuse early and a secondary condition, chiari malformation, caused by the growing brain pushing its way down the spinal column. With 13 surgeries between the children, the Kings are often asked how they manage daily life along with the difficult diagnoses and seemingly endless trips to the operating room. Finding help did not come easily. Kaci trusted her instincts and pushed on, focusing on the children's health and leaning on sources of strength. The conditions could be fixed once they found a doctor who knew how to help. Their continued search led to Dr. Ben Carson, Chief of Pediatric Neurosurgery at Johns Hopkins Hospital: an angel in disguise. The children would have suffered gravely without the treatment they so desperately needed. As Dr. Carson states in his foreword, "In Light Will Emerge, Kaci King has provided a wonderful mechanism to gain foreknowledge of the difficulties of navigating the medical system..." There is hope even in the worst of situations, blessings when most aren't sure any exist. Life is about attitude. Kaci was taught that for every action, there is a reaction, good or bad. She shares her family's journey: how they coped; how they found their inner strength; and how not knowing what else to do, they prayed. Kaci offers a wealth of information explaining the medical conditions, websites and online support groups. Through this book, she sheds light on what helped them overcome obstacles, how they found strength during difficult times, and encourages others who may feel hopeless. Kaci shares the heartache and many blessings received throughout this journey. Light Will Emerge enables parents and caregivers to push on to find help in a medical crisis and hopefully to help medical professionals understand their very real story.
Light Will Emerge
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Most Helpful Customer Reviews
5.0 out of 5 stars
Very informative and inspirational,
Amazon Verified Purchase(What's this?)
This review is from: Light Will Emerge (Paperback)
I found the book to be very informative and would recommend it to anyone with family members who have been diagnosed with this condition Chiari and/or craniosynostosis. The resources that the author provides at the end would be of help to anyone who needs information on either condition. It is written if very easy to understand language and the medical terms are explained in common terms so that you don't need medical training to understand them.
5.0 out of 5 stars
An amazing medical journey of two brave children,
By RLW91 "Robin" (ohio) - See all my reviews
This review is from: Light Will Emerge (Paperback)
Kaci Buchenroth King did an amazing job detailing every moment of this medical journey with her children. What she and her family went through not for one child, but for two, is beyond what anyone could imagine. Her strong will and determination is what saved Madi and Austin's lives. Through her day to day details, and medical research, she not only educates her readers, but enlightens us on the trials and triumphs that they endured. This book will capture your heart and educate you on craniosynostosis and chiari malformation and the effects it has on a child.
5.0 out of 5 stars
Wonderfully inspiring and informational,
By
This review is from: Light Will Emerge (Paperback)
Kaci has written a wonderfully inspiring book about their walk through the medical journey of 2 children both having Chiari Malformation and Craniosynostosis. Written to hopefully help other parents searching for answers for their sick children, it shares their hope for the future and what they have learned about life in general. I'm sure many will be grateful for such a book as this.
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Inside This Book
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Key Phrases - Statistically Improbable Phrases (SIPs):
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metopic cranio, pain pump button, cranial expansion, skull problem, neurosurgery team, step down unit, pediatric neurosurgeon, prescription slip, decompression surgery, therapeutic riding, metopic suture, csf fluid Key Phrases - Capitalized Phrases (CAPs): (learn more)
Kaci King, Light Will Emerge, Vander Kolk, Johns Hopkins, Children's House, Columbus Children, Cincinnati Children, Dayton Children, Ben Carson, Aunt Jolene, Burt's Bees, Carol James, Merry Christmas, Physician Assistant, The Big Picture, Mary Beth, Children's Hospital, Observed Problems, Christmas Day, Greg Fogt, New Jersey, Physician's Assistant, Grandpa King, Developmental Clinic Browse Sample Pages:
Front Cover | Front Flap | Table of Contents | First Pages | Back Flap | Back Cover | Surprise Me!
metopic cranio, pain pump button, cranial expansion, skull problem, neurosurgery team, step down unit, pediatric neurosurgeon, prescription slip, decompression surgery, therapeutic riding, metopic suture, csf fluid Key Phrases - Capitalized Phrases (CAPs): (learn more)
Kaci King, Light Will Emerge, Vander Kolk, Johns Hopkins, Children's House, Columbus Children, Cincinnati Children, Dayton Children, Ben Carson, Aunt Jolene, Burt's Bees, Carol James, Merry Christmas, Physician Assistant, The Big Picture, Mary Beth, Children's Hospital, Observed Problems, Christmas Day, Greg Fogt, New Jersey, Physician's Assistant, Grandpa King, Developmental Clinic Browse Sample Pages:
Front Cover | Front Flap | Table of Contents | First Pages | Back Flap | Back Cover | Surprise Me!
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