This volume covers the full range of issues professionals must consider when caring for children with life-threatening conditions or severe illnesses. It provides information on how family members can be helped to cope with this tragic burden, balancing their need for emotional and spiritual support with the child's need for technical and scientific medical care. The importance of good listening and communication is stressed, as is the role of caregiver and liaison. Examples of hospice, hospital, and community programs are included, and chapters on bereavement, parent self-help groups, care for professional carers, education, and children with AIDS provide in-depth coverage of these vital issues. A concluding chapter sets forth suggestions on how existing services might be improved upon to provide a comprehensive, compassionate, and flexible network of care for families and children afflicted by life-threatening disease.
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