Customer Reviews

Living with Lupus

5 star:		(3)
4 star:		(2)
3 star:		(0)
2 star:		(0)
1 star:		(0)

 

 

As a patient diagnosed several years ago with SLE and Sjogren's Syndrome, I have been looking for more information about the diseases. This book was so interesting and gave me so much information, I read it in 2 days. It has answered many questions for me, things that my rheumatologist never had time to follow through with me, or gave me vague answers to my questions. It was especially helpful to have the lab values explained in detail, what is, and what is not normal and to be expected with this autoimmune disease. I wish that physicians would give a copy of this book to their patients when they are given the diagnosis of SLE. I know I would have felt much better having a better understanding of my disease. It has also given me many questions that I need to address with my own rheumatologist regarding the treatment that he has for me now and his plans for treatment in the future. I would highly recommend this book for anyone that has been diagnosed with SLE.

I was so happy when I finally read this book. Dr. Mark Horowitz is one of the best rheumatologists out there and when he diagnosed me with Lupus 3 years ago, I never thought I would understand any of it. Thank goodness he took the time and effort to participate in this book and actually sit and explain everything to me. Any time I have a question, I have no problem going back to the book and if it is not there I call his office and he explains anything I want to know. I would highly recommend this book to anyone looking for some answers and not because my doctor wrote the book but because it is a GOOD book.

When I was first diagnosed, and had little to no clue about lupus, I bought this book. More because of the pink edging on the cover than its applicable title. It turned out to be very useful & filled with good information. Think of it as a "starting off" point though. It isn't as "nitty gritty" medical as it could be, nor is it a female empowerment book. It's for getting good footing when you're lost in the first icy swirl of diagnosis.

Mary Horowitz does a great job providing powerful empowering information to Lupus patients and their families. Lupus is complex and affects so many different parts of one's body (and mind). I date a lady who has had Lupus for many years, but was only diagnosed about a year and a half ago. Prior to the correct diagnosis, doctors weren't able to pull together all of the different symptoms and positive ANA test. Even though I have been involved in medicine all my adult life, I had never "seen" a complete Lupus patient until I my friend was DX'd. After reading Horowitz's book, I feel much better able to support my friend and understand her symptoms and effects of Lupus on her body. I recommend this book for family members as well as Lupus patients.

I FOUND I WAS INDEDD TOUCHED BY THE ECELLENT DISCRIPTIONS IF THE DISEASE AND TESTS AND SUCH ASSOCIATED WITH IT . ..I recently read another book by author Barbara Jeanne Fisher that portrays the lupus is a similar manner, but show life and love at it's best. ..I found this book to be very helpful in learning more about this illness. In Stolen Moments Ms Fisher has lupus herself and her lupus soecialist edited the book for her. I intended to give the book a quick read, but I got so caught up in the story that I couldn't put the book down. From the very beginning, I was fully caught up in the heart-wrenching account of Julie Hunter's battle with lupus and her growing love for Don Lipton. This love, in the face of Julie's impending death, makes for a story that covers the range of human emotions. The touches of humor are great, too, they add some nice contrast and lighten things a bit when emotions are running high. It has rare depth. Julie's story will remind your readers that life and love are precious and not to be taken for granted. It has had an impact on me, and for that I'm grateful.