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Living with RSDS: Your Guide to Coping with Reflex Sympathetic Dystrophy Syndrome Paperback – May 1, 2003


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Editorial Reviews

Review

From the Publisher

This first-of-its-kind guide for those six million Americans suffering from complex regional pain syndrome, Reflex Sympathetic Dystrophy Syndrome (RSDS) offers the lay reader in-depth information, techniques, and strategies to help deal with the syndrome's painful symptoms and psychological effects.
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Product Details

  • Paperback: 256 pages
  • Publisher: New Harbinger Publications; 1 edition (May 2003)
  • Language: English
  • ISBN-10: 1572243554
  • ISBN-13: 978-1572243552
  • Product Dimensions: 6 x 0.8 x 9 inches
  • Shipping Weight: 12 ounces
  • Average Customer Review: 4.4 out of 5 stars  See all reviews (16 customer reviews)
  • Amazon Best Sellers Rank: #827,268 in Books (See Top 100 in Books)

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Customer Reviews

If you have RSD/CRPS or you know someone who does I highly recommend this book.
S. Udischas
Living with RSD offers insightful information that helps the patient and the family live with this complex debillating illness.
wilson h hulley
It is very informative, easy to read & understand and offers insight on taking control of your situation.
Amazon Customer

Most Helpful Customer Reviews

47 of 52 people found the following review helpful By Kathleen H. on July 3, 2003
Format: Paperback Verified Purchase
It goes chapter by chapter explaining this horrible disease to
family members and the medical community.This is an illness
that not only affects the patient, but their marriage, relationships, children, and their caretaker.No matter what
your situation, it affects your whole life.
It gives examples of personal stories of people's lives that
have changed forever.Although all stories and lives differ,
all complain of pain in the upper or lower limbs.
The Hallmark symtom is PAIN, unrelenting PAIN.
Most of these victims turn up in the E.R., where if you are
fortunate one or two professionals have heard of RSD and
will medicate you and refer you to a pain clinic.
Usually, patients are given medicine and told not to bother
the E.R. staff with a chronic illness.Unrelenting PAIN is
Hell on Earth.The suicide rate for this disorder is 20%.
Although women have the highest rate of illness-it can
strike men and even chidren.
People are sick and in pain but because so little has been
written of this disorder, they must fight to get S.S.D
or help of any kind.
RSD( reflex sympathetic dystrophy)is a neurological disease
the way Multiple Scerlosis is also neurological.
We also know very little of coping. Coping has been defined as the ability to deal with a situation.Trying to cope with pain,suffering,and disability creates emotional distress-the daily life of a person with RSDS.
Fortunately, the internet is bring patients closer and people are demanding attention and a cure... This book reminds you not to become your disease.If you
are in great pain, you will become angry at that statement.
If you are being treated and have some good days, I agree.
Read more ›
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30 of 33 people found the following review helpful By "keithhope1" on May 29, 2003
Format: Paperback
I found the book to be a good beginner's giude to RSDS/CRPS.
The basic information on the disease and symptoms is put together in an easy to read and understand format.
I was hoping for more in the Treatment area. Specifically inclusion of some of the new drugs and treatments being tested today. Some of the information here is out of date, specifically the information on the use of sympathectomies as a viable treatment option for RSD patients.
One thing that was mentioned here concerning them that is important to note, is that the Drs. who perform sympathectomies consider them a "success" if they last only one year.
Most patient's are not told this before the treatment, nor are they told that this treatment can result in a spread and worsening of the disease. Consequently most of the top RSD Drs. in the country have stopped this procedure.
Overall I would recommend this book for those patients and family members who need to be educated about this disease but they need to remember that there is much more hope out there now for RSD patients.
There are a lot of treatments just beginning with successful results, so please supplement your education with the reading of some of the RSD websites on the net.
Having RSD is a life-altering disease for the patient AND their families but it is not an end, just a change. This change can be dealt with, with the support of your loved ones and your and their education of exactly what you are facing. Never give up hope!
I give the book 3 stars.
Sincerely,
Keith Orsini
American RSDHope Group
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19 of 21 people found the following review helpful By wilson h hulley on May 14, 2003
Format: Paperback
Little has been written about RSD until now for the common man. In the year 2003, this mystery disease goes undisgnosised in the vast majority of cases until it is too late. The patient is at the mercy of a complex disease. Like in my case, a minor injury caused nerves of misfire, sending constant pain signals to the brain. Whole body pain rules my body. This book is a common sense, what can I do now with this disability. How can my family help me gather my wits when the pain reaches the highest levels known to the medical profession. Living with RSD offers insightful information that helps the patient and the family live with this complex debillating illness. Living with RSD is a MUST read for persons with RSD, their families and the medical profession, who until now has been ill-equiped to communicate useful "day to day" living knowledge to the patient.
Wilson Hulley
Chevy Chase, MD 20815
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14 of 15 people found the following review helpful A Kid's Review on July 8, 2005
Format: Paperback
I am a kid who has rsd. Life with rsd is as close to hell as it gets. My doctor couldn't explain it, I couldn't explain it to my friends, I couldn't explain it to me: until I read this book. If you have rsd, kid or adult, I highly suggust READING THE BOOK! (It hurts a lot less than having a sympathedic block :)
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11 of 12 people found the following review helpful By Amazon Customer on August 17, 2004
Format: Paperback
I was injured on the job Jan. 2004 and since that time have been diagnosed and treated for RSDS. It has limited & possibly stopped my working life, however, being lost in a workman's compensation buracracy, I had to begin to learn myself how to talk to the doctor about RSDS. Not every patient reacts the same, not every patient is limited in what they can do - BUT - every patient will see their life change somewhat due to pain. This book was my beginning as far as reading material to help me to understand RSDS. It is very informative, easy to read & understand and offers insight on taking control of your situation. It doesn't talk as much as I'd like about treatment plans and options. I have never taken so many drugs before and this book calmed my fears somewhat of becoming an addict. I will continue to learn about this pain syndrome because if I do not, I can't depend on the medical world to do it for me. A very good book to start off with if you have been diagnosed with RSDS.
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Living with RSDS: Your Guide to Coping with Reflex Sympathetic Dystrophy Syndrome + Positive Options for Complex Regional Pain Syndrome (CRPS): Self-Help and Treatment + RSD In Me!: A Patient And Caretaker Guide To Reflex Sympathetic Dystrophy And Other Chronic Pain Conditions
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