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Living With Sickle Cell Disease: The Struggle To Survive Paperback – April 30, 2008


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Product Details

  • Paperback: 160 pages
  • Publisher: lulu.com (April 30, 2008)
  • Language: English
  • ISBN-10: 1105046273
  • ISBN-13: 978-1105046278
  • Product Dimensions: 0.4 x 5.9 x 8.9 inches
  • Shipping Weight: 12.6 ounces
  • Average Customer Review: 5.0 out of 5 stars  See all reviews (7 customer reviews)
  • Amazon Best Sellers Rank: #2,782,228 in Books (See Top 100 in Books)

Editorial Reviews

About the Author

Judy Gray Johnson has nearly 40 years of experience in public education, having taught elementary, middle, and high school in Virginia and Maryland. She holds a Master’s Degree in Special Education from Virginia State University, in Petersburg, Virginia, and a Bachelor’s Degree in Elementary Education from South Carolina State University in Orangeburg, South Carolina. Ms. Johnson is also certified in the Commonwealth of Virginia as an Elementary and Secondary School Principal. She completed the coursework for the doctorate in Educational Administration & Supervision from Virginia Polytechnic Institute & State University in Blacksburg, Virginia. For three years, she served as president of the Fairfax County Federation of Teachers (the second-largest teachers union in the state of Virginia,) representing teachers and aides in the largest school district in the state of Virginia. --This text refers to an alternate Paperback edition.

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Most Helpful Customer Reviews

4 of 4 people found the following review helpful By Lorraine Spencer on June 2, 2012
Format: Paperback
It was hard to put down this book. I thought I knew something about Sickle Cell Anemia. "Living With Sickle Cell Disease", educated me on a subject the majority of Americans (including African Americans) don't even give a second thought.

I tried to compare my own experiences of when adults just would not listen (out of ignorance or just not caring) to those of the writer who so candidly shares her story and struggle to just get some answers. But I find it so believable from what I know about the segregated South and ignorance on the part of so many. Still, I cannot imagine a child having to endure the pain of an unknown illness and scrutiny of those around the writer only too quick to label her as lazy and sickly. But belief in oneself coupled with determination, drive and opportunity can do wonders for the human spirit.

In "Living With Sickle Cell Disease", I found the story of childhood, coming of age, marriage, pregnancy, divorce, single motherhood and professional neatly packaged leading me up episodes of utter desperation and the point of dire frustration as a mature adult deals mainly with so-called medical industry professionals. From insecure and power wielding principals to doctors with horrible bedside manner (and ignorance), I felt as if I was watching a movie anxiously awaiting good to overcome evil. Cover ups and ridiculous excuses abound, but like in a good movie the writer eventually does find her answers and is triumphant. However, she still endures the pain of Sickle Cell Disease. In this day and age, I find it shocking that more is not known about Sickle Cell Disease.
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2 of 2 people found the following review helpful By RTS on September 21, 2012
Format: Hardcover
Judy Gray Johnson's Book, "Living With Sickle Cell Disease, The Struggle to Survive," is a gift to anyone who has or is battling with the razor sharp pain associated with Sickle Cell. It's also a blessing to those who want to better understand what it's like for people living with a chronic illness. Judy shares her personal struggle with Sickle Cell disease while educating the public. Her attempt is to prevent others from going through what she has gone through and continues to manage today. With humor, insight and passion, Judy's story will both enlighten and evoke tears as she weaves her story of determination through childrearing, a troubled marriage, financial barriers and a public who simply doesn't understand what it's like to live with Sickle Cell disease. Judy is a natural story teller.
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2 of 2 people found the following review helpful By Frequent Reader on June 23, 2012
Format: Paperback Verified Purchase
This book is a fluent, informative and candid story of a life filled with a fight for surviving a little-known genetic disease and a fight against prejudice spanning in decades. The author could not win the all battles but she always tried and never gave up. I recommend this book to those who want to learn how someone with a disability can survive and manage a productive and bold life. It is also a must read book for sickle cell patients who want to deal with both the disease and poor bedside manners.
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1 of 1 people found the following review helpful By Dr. Andreas Domeyer on November 3, 2012
Format: Hardcover
An exciting combination of information about this special disease and the up and downs of the life of an extraordinary women. If you start reading this book, you can't stop until the end.

Dr. Andreas Domeyer, Berlin, Germany
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