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Lyme Disease: The Cause, the Cure, the Controversy (A Johns Hopkins Press Health Book)
 
 
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Lyme Disease: The Cause, the Cure, the Controversy (A Johns Hopkins Press Health Book) [Paperback]

Alan G. Barbour (Author)
1.5 out of 5 stars  See all reviews (14 customer reviews)

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Book Description

A Johns Hopkins Press Health Book April 1, 1996

Lyme disease is one of the least understood of the new diseases—and one of the most dreaded. Because undiagnosed or untreated Lyme disease can pose serious health threats, people who develop symptoms such as joint pain and tiredness worry that they may have chronic Lyme disease. Even people with confirmed acute Lyme disease worry that the treatment they're getting won't cure the disease and that it may reappear later in a more debilitating form. These fears are made worse by the well-publicized uncertainties surrounding diagnosis and treatment of the disease.

In this book, noted Lyme disease researcher and clinician Alan Barbour presents a comprehensive and even-handed discussion of what we know about the disease and offers medical science's current thinking about its more controversial aspects. Throughout the book, Dr. Barbour uses the stories of four "patients" to illustrate the varying course of the disease in different individuals and under different circumstances. A fifth "patient" stands as the model for people who, in the absence of a clear diagnosis, remain convinced that Lyme disease explains their symptoms—and as a result suffer for too long without appropriate treatment for what's really ailing them.

Including illustrations of ticks and the rashes caused by their bites, as well as maps showing the worldwide distribution of Lyme disease and the relative risk of the disease across the United States, the book offers a wealth of useful information for patients, family members and caregivers, and those who live, work, and play in high-risk areas:

Explains how Lyme disease is spread, and who is at risk Describes the symptoms and consequences of Lyme disease, from the rash following a tick bite to the most serious complications, such as infection of the nervous system, joints, and heart Describes all the diagnostic tests for Lyme disease and explains what the test results mean Compares Lyme disease with other conditions, such as fibromyalgia and chronic fatigue syndrome, and explains why they are often mistaken for Lyme disease Presents a compassionate and convincing discussion of depression, which is often the correct diagnosis for a patient who clings to a diagnosis of Lyme disease despite repeated negative diagnostic tests Carefully explains proven and unproven treatments, and summarizes the debates about antibiotic and other treatments Outlines what individuals can do to avoid getting Lyme disease as well as what the community can do to reduce the number of Lyme-carrying ticks

Here at last is an intelligent and interesting guide for patients, as well as an insider's tour of medical science. The author includes an explanation of how the Borrelia burgdorferi bacterium was discovered in the laboratory and how it was first connected with the disease, a fascinating account of modern medical detective work.


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Editorial Reviews

From Library Journal

Although Lyme disease is named for a town in Connecticut, the first recorded case occurred in Europe at the turn of the century. The incidence has been rising since the 1970s, due partially to increased awareness and partially to the fact that it is a fashionable diagnosis for unexplained symptoms. This book by a physician doing research on the disease is an objective, comprehensive, up-to-date source that explains the epidemiology, diagnosis, and treatment of the disease using case histories to illustrate the symptoms and problems associated with it. Barbour shows how antibiotics and laboratory tests work and why they are not always useful and/or accurate. He discusses the differing opinions about chronic Lyme disease and other conditions such as Chronic Fatigue Syndrome that have similar symptoms. He tells us why this disease is not a major public health threat (it's confined to certain areas and victims have to be bitten by an infected tick) and offers advice on preventing it. Illustrations of ticks and rashes, maps showing the worldwide distribution of Lyme Disease, and a list of American and international agencies complete the text. While Polly Murray's The Widening Circle (LJ 2/15/96) offers a personal and historical perspective on Lyme, this book is full of current scientific information. Highly recommended for all health collections.?Barbara M. Bibel, Oakland P.L., Cal.
Copyright 1996 Reed Business Information, Inc.

Review

I am aware of no other book on Lyme disease with this degree of coverage for the general public. Dr. Barbour offers important advice about understanding and preventing the disease and he comments on a variety of interesting issues, including some of the controversial questions surrounding diagnosis and treatment.

(Brian Schwartz, M.D., The Johns Hopkins School of Hygiene and Public Health )

Product Details

  • Reading level: Ages 18 and up
  • Paperback: 280 pages
  • Publisher: The Johns Hopkins University Press; 1 edition (April 1, 1996)
  • Language: English
  • ISBN-10: 0801852455
  • ISBN-13: 978-0801852459
  • Product Dimensions: 9.1 x 6 x 0.7 inches
  • Shipping Weight: 1 pounds (View shipping rates and policies)
  • Average Customer Review: 1.5 out of 5 stars  See all reviews (14 customer reviews)
  • Amazon Best Sellers Rank: #1,938,547 in Books (See Top 100 in Books)

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Average Customer Review
1.5 out of 5 stars (14 customer reviews)
 
 
 
 
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48 of 49 people found the following review helpful:
1.0 out of 5 stars Alan G. Barbour's book not worth reading, November 28, 2001
Alan G. Barbour's book not worth reading
Alan G. Barbour is no friend to the Lyme patient. I suffer from chronic Lyme disease and was terribly disappointed and angered by this book. There was a pervasive, underlying thread which downplayed the number of Lyme cases, the severity of the disease, and the complexity of the disease. Barbour's disregard for the plight of Lyme patients is demonstrated in his inexcusable lack of treatment guidelines besides a cookbook reliance on a short term antibiotic therapy which has been clinically proven wrong for many patients. Many, many people are suffering with Lyme disease and cannot get proper treatment. If you buy this book, you will be, in my opinion, adding to this suffering. You will also be less informed when you have finished this book than before you began. Please don't add credibility to Barbour as a Lyme disease expert by buying this book.
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45 of 46 people found the following review helpful:
1.0 out of 5 stars Avoid this book! (I didn't want to even give it 1 star!), June 9, 2000
By 
Jonathan R. Strong (Princeton Junction, NJ, USA) - See all my reviews
(REAL NAME)   
This book is typical of the kind of biased and unsupported reportage about Lyme disease that is responsible for so many Lyme disease patients NOT being properly diagnosed and treated.

While rich in jargon, the book argues for definitions of Lyme disease that exclude so many patients with seronegative, intractable, antibiotic-resistant borreliosis. It is a disservice to Lyme disease patients everywhere and misleads naive doctors as well. There are many far better books on the market, and many websites that are far more informative.

This book is a waste unless you can use it as a case study in the arrogance and close-mindedness of some doctors. I use my copy as a coaster for drippy coffee cups.

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52 of 54 people found the following review helpful:
1.0 out of 5 stars Detrimental to those in need of treatment! Take caution., April 5, 2002
By 
I contracted chronic Lyme disease a year ago and was not diagnosed for ten months. During that time I got worse and worse and not one doctor helped me. In fact they were rude and didn't listen. The over all feeling in the medical community is one of disbelief and hostility. This book is the epitome of those feelings. Reading this book made me feel the same way I did listening to a doctor tell me that the positive test was not significant. This book does nothing more than berate those that are already sick and frightened. It makes you feel as though you are the one with the problem. The disease is all in your head. Also I think I should add that the author of this book was appointed to the Lyme Advisory community for California and then was promptly removed because the people that had Lyme Disease were so angry with his attitude towards them. Beware of this book. It will do nothing other than make you feel bad about a disease that is not your fault. Which leads me to the age old question, Which is worse the cure or the disease? When there are books like this on the market perpetuating the horrible attitude towards truly sick people it is neither. Until this opinion is dispelled, there is no disease and there will be no cure despite how sick you really are.
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Inside This Book (learn more)
First Sentence:
Just by virtue of living in the world, human beings are susceptible to disease. Read the first page
Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
burgdorferi cells, burgdorferi infection, erythema migrans rash, disease spirochete, chronic brucellosis, tick populations, newer antibiotics, late infection, control sera
Key Phrases - Capitalized Phrases (CAPs): (learn more)
United States, North America, New York, Rocky Mountain, Long Island, Gulf War, New Jersey, Westchester County, Alan Barbour, Lou Gehrig, Old World, Lone Star, National Institutes of Health
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