on October 5, 2008
I was diagnosed with Fibromyalgia from the Mayo Clinic earlier this year.
I've had it for years and got shifted from doctor to doctor and none knew what the issue was. After seeing a few doctors and going through some tests at the Mayo, they sent me to the Fibromyalgia clinic where I was diagnosed with fibro. They may not have treatment for fibromyalgia, but they do have a Pain Rehabilitation Clinic at the Minnesota location (not Arizona & Florida for some reason) and it's an amazing program. It turned my life around. It's all day for 3 weeks, but it's well worth it if insurance covers it. They teach you how to moderate, modify your normal activities and also show Tai Chi, Yoga, stretching, biofeedback (not so hot on that one) and occupational therapy, and physical therapy.
They don't talk about the fatigue related to fibromyalgia, but all chronic pain is very similar.
I borrowed this from my local library and was expected this to help me maintain some of the stuff I learned like stretching & excercises.
I was severely disappointed. I was amazed by the Mayo when I was there.
This doesn't even seem like the same organization.
I'd like to share with you a "review" of 5 sections of this video so you can see why someone newly diagnosed with Fibromyalgia may want to purchase this video.
1) Dr. Brent Bauer introduces you to the concept of integrative medicine. [This in itself it very important, to my way of thinking. This treatment approach has proven to be the most helpful of all in the treatment of Fibromyalgia.]
Dr. Bauer explains that integrative medicine is simply the best of both worlds of medicine. It utilizes both the 3,000 yr-old traditional methods of healing and treatment along with alopathic (or Western) medicine. This method of treatment combines prescriptions when necessary, with acupuncture or chiropractic manipulation or physical therapy or water therapy, or whatever your doctor thinks may be right for you. Both methods use a form of cognitive behavioral therapy and/or stress reduction--whether deep breathing, meditation, exercise or physical therapy.
[Note: you'll find that many medical doctors are not familar with integrative medicine. You may want to seek out an osteopath, a naturopath or a physician specifically trained in the integrative medical field. You can find one by checking online at [...] and click on your state, or zip code, or you can google "integrative medical physician."]
2) Drs. Jeffrey Thompson and Amit Sood, both practicing at the Mayo Clinic, explain this complex syndrome and tell how it is diagnosed. Dr. Thompson explaines that there are no tests to diagnose Fibromyalgia, but rather it is diagnosed by the symptoms. The typical symptoms are overall body pain, tiredness/weakness and trouble sleeping. There is also an extreme sensitivity at any or all of 18 tender points. He also says that these 18 points are not exactly written in stone - there can be even more points. And there can also be fewer.
Dr. Thompson said that he's heard that some doctors tell their patients that "the pain is all in their head." He says that's quite true. ALL pain emanates from the brain, and so, yes, the pain IS in your head, but so is the doctor's own pain in HIS own head. This is actually a good thing, because the brain, in fact, is the most powerful thing we have to treat and manage our Fibromyalgia pain! Then he explains.
Dr. Amit Sood says that there are environmental triggers, predispositions, poor sleep, stress and the ever present "overactive mind and underactive body" that aggravate the symptoms of Fibromyalgia.
He also says that most people when diagnosed with Fibromyalgia, or even before they are diagnosed, are fearful that their body is being damaged, leading to debilitation and disability. But once they are assured that this is not the case-- that there is no actual damage happening to their body-- they are usually quite relieved and can better come to terms with their condition. [This is a fairly idealistic statement on his part.] Then, he continues, the patient can go about beginning their own healing and treatments in the form of exercise, stress management, sleep management and so on.
Drs. Sood and Thompson strongly emphasises exercise, explaining that even if you only begin by exercising 5 minutes in the morning, 5 minutes at noon and 5 minutes in the late afternoon (5-5-5), you will have exercised 15 minutes that day. As your body becomes accustomed to that amount of exercise, after a week or two, you can GRADUALLY add another minute to each of these and then another then next week and so on, until you can get in a half hour or more of exercise per day.
Both doctors stress the importance of spirituality, positive self-talk, positive attitude, humor, goal setting and pacing and much more, finalizing their contribution with the 5 most important TIPS for dealing with fibromyalgia: 1) reduce stress - learn stress management techniques like meditation, positive self-talk or even expressing your spirituality; 2) get restful, restorative sleep via your doctor's assistance or acupuncture, or massage therapy or other means - if you're not sleeping well, it's almost impossible for muscle pain to get better; 3) exercise every day, eg. yoga, tai chi, chi gong - but don't over do it, because that can increase pain; 4) pace yourself - do everything in moderation; 5) maintain a healthy lifestyle - eat lots of healthy fruits and veggies, whole grains, nuts and legumes, and enjoy fun occassions, and family.
3) Dr. Donald Hensrud takes you on a trip through the grocery store. This section is very informative, especially for those who are not familiar with the importance of diet and Fibromyalgia. He literally walks through a grocery store picking up foods to put in his cart, as he explains why this or that food is beneficial for helping pain and other symptoms. He also explains that we should be cutting back (or omitting) excess sugar, hydrogenated fats, coffee, soft drinks and the like.
[Diet is indeed a very important factor for those of us with Fibromyalgia. Learning all you can about this one important factor can certainly help alleviate a lot of pain.]
4) Rodney Yee takes you through a simple sitting meditation, where you sit comfortably in your chair and listen as he speaks-- soothingly describing how to relax. Then he describes a meditation while you are lying down. The visual background is a beautiful mountain meadow on a sunny day, and the music is soothing and relaxing, so that playing this section of the tape can literally melt away your stresses as you watch or listen. This is an nice walk through a light, relaxing meditation. [For newbies at meditation, you'll find this a very relaxing and soothing experience.]
5) Rodney Yee is also a famous yoga master. In the same beautiful mountain valley on a sunny day, he and two of his assistants [who obviously don't have Fibro] demonstrate a number of simple yoga positions, called Asanas. He utilizes folded up blankets for the easing of the positions and a chair to lean on, so that none of the Asanas would be too strenuous or painful in any of the moves. Apparently he selected these positions especially for Fibromyalgia sufferers so they wouldn't be too strenuous.
[Note: I have been doing Tai Chi DAILY for 11 of my 12 years with Fibro, so I am fairly limber and had no problem with these Asanas. But if you are new to this kind of exercise, it may be prove to be a bit much. I plan on staying with Tai Chi, thank you.]
This DVD is very helpful in a variety of ways. And it is helpful as a meditation aid or even for learning about shopping appropriately at the grocery store! For a beginner at Fibromyalgia, it explains why an integrative approach works better than a straight Western medical/prescription approach. It could say more about this method and give more ideas as to options, but it will give beginners an idea of where to begin.
on October 11, 2012
Before developing Fibromyalgia and Chronic Fatigue, I would spend at least 45 minutes every other day at my Fitness Center on the StepMaster along with free weights, swimming, etc., and I never felt better in my life. Then I had some surgery and was on forced bed rest for two weeks. Afterwards,I was never able to get my body back into an exercise program, no matter what I tried, until...I purchased the "Mayo Clinic Wellness Solutions for Fibromyalgia" program. I am a Type A personality, and I want results NOW. But this program is teaching me to slow down and work with my body instead of against it. The program is teaching me to be patient. It has been a little over a month now and I'm beginning to feel a little like my old self again. I don't shop a lot at Amazon except for books or music, but I'm certainly glad I found this DVD. I would suggest this DVD for anyone who for whatever reason got out of their exercise regime and are trying to find a way to get back into their regime without paying a ton of money to a personal trainer.