This is a story about one man's journey through the stages of living with a chronic health condition: sarcoidosis. However it could be a story of anyone living with any type of chronic health condition that alters the everyday activities a "normal" human being enjoys and the effect it has on everyone around them. The book touches on many subjects ranging from dealing with the various related side conditions such as hypertension, two types of diabetes (sugar and water), chronic fatigue and many others to the various medications needed to survive and the effects they have on not only the patient but also everyone. It touches on various subjects that are critical to surviving a chronic health condition not only for the patient but again those who are associated with that person on a daily basis! There are valuable tips from a normal person's perspective that will help you maneuver through today's complicated medical environment. But most importantly the book will let you know you are not alone in your experiences and hopefully will provide you with positive insights on how to survive a chronic health condition. It will give everyone something to relate back to your everyday life!
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About the Author
Gilbert Barr Jr. (born February 1958) grew up in rural north Florida before moving to Detroit in 1985. He supported a health care claims system for over 14 years and was diagnosed with sarcoidosis in 1991. These experiences give him first-hand credibility for the material written in his first book. His readers may contact him at gilbert@gilbertbarrjr.com
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Most Helpful Customer Reviews
22 of 23 people found the following review helpful:
4.0 out of 5 stars
Reader from Atlanta GA,
By A Customer
This review is from: Me & Sarcoidosis: A Lifetime Partnership: Revised Edition A Patient's Story About Living With A Chronic Health Condition (Paperback)
I just completed the revised edition (which had the editing issues corrected) as other members of my family are now reading it as well. It was enlightening to finally read a book from an average person that must deal with the same experiences as I do. I was finally diagnosed with sarcoidosis in my lungs and on my skin in 1993. The author does not flinch from outlining his most personal symptoms in a very direct approach. Considering he spent over 4 years being misdiagnosed there were several negative experiences however I did not feel that he felt any self-pity or unjustly bashed the professionals he was exposed to but instead just told the truth and in the end gives credit to those who were able to help him. For me it was a roller coaster of emotions. I appreciate the fact that he gave much due respect to God, his loving family and those who supported him. Although the book is over 300 pages, it touches on every aspect of living with chronic health conditions and the physical and mental stress involved. I admire Mr. Barr's courage to tell his story in such a direct manner and open up to the world. The only thing I found insulting about this book were some of the experiences we all experience and they needed to be told.
12 of 13 people found the following review helpful:
5.0 out of 5 stars
A True Patient's Perspective,
By A Customer
This review is from: Me & Sarcoidosis: A Lifetime Partnership: Revised Edition A Patient's Story About Living With A Chronic Health Condition (Paperback)
As a sarcoidosis patient since 1989 I found it refreshing to finally read a story from a fellow patient such as myself. The story was very emotional for me but yet inspiring as I could relate to many of the experiences written about throughout the book. I would recommend this book to any patient with sarcoidosis, family member or caretaker. We need more stories like this!
6 of 6 people found the following review helpful:
5.0 out of 5 stars
A positive realistic account from an average person,
By A Customer
This review is from: Me & Sarcoidosis: A Lifetime Partnership: Revised Edition A Patient's Story About Living With A Chronic Health Condition (Paperback)
I found this book to be an honest account of how an average person deals with living with a chronic health condition. Although we are all unique, I found myself in a lot of the emotions and experiences that Mr. Barr wrote about. I also had the opportunity to hear Mr. Barr speak in late 2002, where during his talk he did actually give an apology for the mistakes in the first version, along with offering to replace the old version with a Revised Edition (IE: in my copy he was given "a pair of crutches" and sent on his way). In fact, I was under the impression that the first version was unavailable as of that time (Fall 2002), but I guess used copies are still floating around. I find it a refreshing change to hear someone stand up and take responsibility for a mistake (even if others were probably responsible) then correct it, especially in such a public forum. My hat is off to you Mr. Barr! It helped me to hear the positive accounts of his support elements, as I do not have anyone that understands, except one family member who lives out of town. But now we have become closer as I appreciate her long distance support more than ever. Although our physical symptoms are different, I also related to the mental aspect of his experiences. It helped me realize even more that I'm not alone in what I feel. The book is a little long (over 300 pages) but all in all it was worth the read. The main thing I enjoyed was just hearing an everyday person's account of living with sarcoidosis. Mr. Barr, please continue to help bring awareness and discussion to our disease!
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Inside This Book
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Key Phrases - Statistically Improbable Phrases (SIPs):
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additional prednisone, hard mucus, late girlfriend, severe acid reflux, lung tests, bad customer service, disability contact, lung specialist Key Phrases - Capitalized Phrases (CAPs): (learn more)
Lifetime Partnership, Disability Leaves, Saved From The Living Dead, Professional Relationships, Operating Room Visits, Normal Life Possible, Reaching The Bottom Of The Valley, Final Thoughts, Personal Relationships, Occlusal Guard, The Teeth Factor, Detroit News, Most Unusual Place, The Effects, Major Changes Start To Occur, United States, Queen Enters My Life, Mother Nature, Carnation Instant Breakfast, New York, Taylor County Browse Sample Pages:
Front Cover | Table of Contents | First Pages | Back Cover | Surprise Me!
additional prednisone, hard mucus, late girlfriend, severe acid reflux, lung tests, bad customer service, disability contact, lung specialist Key Phrases - Capitalized Phrases (CAPs): (learn more)
Lifetime Partnership, Disability Leaves, Saved From The Living Dead, Professional Relationships, Operating Room Visits, Normal Life Possible, Reaching The Bottom Of The Valley, Final Thoughts, Personal Relationships, Occlusal Guard, The Teeth Factor, Detroit News, Most Unusual Place, The Effects, Major Changes Start To Occur, United States, Queen Enters My Life, Mother Nature, Carnation Instant Breakfast, New York, Taylor County Browse Sample Pages:
Front Cover | Table of Contents | First Pages | Back Cover | Surprise Me!
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