From Publishers Weekly
In this heartfelt memoir, Wolfson employs expressive and skillful writing to convey how Ansel, her 17-year-old son, struggles to live with Duchenne muscular dystrophy (DMD). In spare, honest prose Wolfson describes how she and her husband, Joe, could not believe that there was anything wrong with their cheerful son, until it became clear that his motor abilities and language skills were far below those of the other children in his preschool. Interspersed with anecdotes about how family members, as well as Ansel, cope with his deteriorating condition is medical information about DMD, an inherited condition that is passed to males by female carriers. Although Wolfson, her husband and children have a warm family life, there is obvious tension among the three siblings, frequently sparked by Ansel's anger at his illness. He has also been isolated socially by his peers because of his disability and sometimes acts out in school, causing problems with teachers. Wolfson and her husband have been overwhelmed emotionally by all the physical adjustments that demand time and money. Despite DMD, Ansel emerges as a smart, brave teenager with a sense of humor; especially moving is Wolfson's description of his bar mitzvah.
Copyright 2003 Reed Business Information, Inc.
--This text refers to an out of print or unavailable edition of this title.
From the Back Cover
"Ansel and his mother may be two of the bravest people I've ever heard of. And I would never have heard of him were it not for a writer who chose to turn the tragic and the personal into something of universal value."
See all Editorial Reviews
- Sebastian Junger, author of The Perfect Storm
"Wolfson has written a kind of timeless tale---a mother's fierce determination, her struggle for her clearly gifted, special son. This is not a sad book, but a courageous one. And these are ancient themes crafted in a work of literature by a writer who has mastered her voice and given us not just a narrative, but a woven fabric of life."
- Mary Morris, author of Nothing to Declare and Acts of God
"Wolfson doesn't crown herself a hero in the face of Ansel's disease . . . she is truthful, courageous, tenacious, and whip-smart; she is her son's greatest advocate and a narrator to trust and admire."
- PW Daily, Book of the Day
"With this book Penny Wolfson shows herself to be deeply human in every conceivable sense, except one: she writes like an angel."
- Lawrence Weschler, author of Mr. Wilson's Cabinet of Wonder