Most Helpful Customer Reviews
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170 of 244 people found the following review helpful:
1.0 out of 5 stars
Irresponsible, Offensive Infomercial, October 1, 2008
As I began reading Mother Warriors, the beginning of the book was initially harrowing and inspiring - it was moving to see her talk more extensively about parents' personal experiences with seeing their children regress in their developmental milestones after immunization and slip away into the autism spectrum. However, as I read on, it became apparent that it is a thinly disguised infomercial and that she has now carved out a new lucrative career as an autism spokesperson.
Jenny McCarthy does not disclose in her book that she is a paid spokesperson for Kirkman Laboratories, a supplement manufacturer, that has financial ties to the autism organization Defeat Autism Now (DAN). She was quoted on Kirkman's web site as saying the Kirkman products are the best supplements for autism. She frequently mentions Kirkman products and exclusively promotes Defeat Autism Now organization. She flat out says that every parent with an autistic child must go to a DAN conference. There was also a public announcement in September that she is launching a celebrity brand of autism products.
McCarthy, who has brought Hollywood glamor and marketing tactics to a health issue, has been known to shove people out of the way at autism conferences when pictures are being taken, McCarthy's thin bibliography does not mention other organizations or products, which are often more helpful than the protocols she publicizes.
McCarthy also paints a black and white picture of the Defeat Autism Now organization as being totally helpful, while giving a black eye to the Autism Speaks organization because they primarily fund genetic research into autism instead of the vaccine connection. There is value in determining the genetic links to autism as well as researching the direct impact of the vaccines. I, too, would like to see more research into the vaccine connection. However, publicly running down autism research strikes me as being irresponsible and potentially harmful to progress being made in understanding and treating autism. If McCarthy wants research to fund the vaccine link, maybe she should put some hard work and money she has reaped from autism where her mouth is and start an organization for this purpose.
In her book, McCarthy abrasively and insensitively runs down and dismisses parents whose children have been harmed by the treatments she recommends and whose bank accounts have been drained by inept and greedy medical practitioners, as simply sour grapes.
In wading into the murky waters of autism politics, science, and money in this book, McCarthy is clearly in over her head. DAN, which was founded in part by the late Dr. Bernard Rimland, who was an important and valuable figure in pioneering autism treatments, whom she also quotes, also had financial ties to Kirkman Labs. Rimland, toward the end of his life, was unfortunately also known to slander competing manufacturers, to threaten them to put them out of business (I received this information directly from several supplement manufacturers over the years), and to ban perceived competitors from exhibiting at DAN conferences for years.
McCarthy urges all parents of autistic children to go to DAN conferences. There are other biomedical conferences in addition the DAN conferences that provide information to help autistic children, such as the annual Autism One in Chicago, which, in past, I have found to be much more scientifically impartial and less of an infomercial you pay to attend. Ironically, McCarthy was the keynote speaker at this year's Autism One conference in the spring but this organization is not mentioned in her book's bibliography - only DAN related information.
Although the majority of practitioners following the DAN protocol are WONDERFUL and TOTALLY DEDICATED, and much to be lauded and supported for putting their medical reputations at risk for trying alternative therapies, not all physicians are created alike. Let the buyer beware. Unfortunately, there have also been many instances of individuals touting themselves as DAN practitioners who greatly overcharge for routine tests and mishandle risky therapies, such as chelation, resulting in harm and even death to children on the spectrum. Chelation is the removal of heavy metals such as mercury from body tissues by binding the heavy metals to ingested or intravenously infused substances which are then flushed out of the body, taking the metals with them. Although chelation CAN BE amazingly helpful to SOME children, one should do one's homework and search for the practitioners who are EXTREMELY KNOWLEDGEABLE, CAREFUL AND RESPONSIBLE about monitoring the children and are having a high success rate. Be wise and network with your local autism parents organizations and professionals in your area to determine who is competent.
Finally, McCarthy's bibliography with recommended links is way too thin and betrays her lack of depth of knowledge in the biomedical treatment of autism.
So, read, Jenny's book if you will - for the casual reader it is a page turner targeted for and worthy of tabloid coverage. It hits all the right emotional notes (it wouldn't be a McCarthy book if she didn't refer to her anatomy at least a few times) but unfortunately, it also has that scientific level of depth and research of a tabloid article. Painting things simplistically with broad, sweeping media sound bites may pad her bank account but does not necessarily provide real solutions to real problems. Her advice simply will not work for all children and will harm some. I urge all parents with children on the spectrum to do their homework on available autism treatments and choose wisely where they spend their time and money.
Sue Bennett, Autism Coach
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11 of 15 people found the following review helpful:
5.0 out of 5 stars
It deserves attention, February 14, 2009
In this book, JMcC shares her story, and those of other Moms and a Dad across America, who have had children with autism.
I think anybody who already is in this position, or is thinking about vaccinating their child, might find this book valuable.
For example, according to one story in this book a child had a cold, and was given Tylenol, which lowered the level of glutathione, which made the child's immune response even weaker. The child then got vaccinated for three different live viruses, and some mercury. A perfect storm.
I am not suggesting this is the cause of autism, like most people, I don't know, but isn't it better to do a little advance investigation to be safe rather than sorry. There is some evidence in the book that viruses and rubella can cause autism at a later age, and so it's not just limited to children.
If you read this book you will discover that there are several different known causes, there is hope, and there are resources and strategies available, and you are not alone.
In fact, at the back of the book is a list of DAN (Defeat Autism Now) doctors across the USA. It's encouraging to know that there is a subset of doctors committed to doing something about this.
I was a little bit disappointed with the Barbara Walters incident on The View, although it is appropriate for Babs to challenge the level of medical support for a cure. At least she did give fair warning.
If you're like me the further you get into this book, the more you realise that something can be done.
It is contentious to use the word cure in relation to autism. But she draws an interesting analogy. You cannot be cured from a car accident, but recover. Similarly, a person cannot be cured from autism, but the person can recover.
For those who say JMcC is too in your face, I am glad someone out there is fighting the fight, and I am glad she now has the company of other Warrior Moms. Yes, the mainstream medical community may take issue, but often change does not happen without some antagonism. So, I hope the antagonism level gets high enough.
I don't know if the author is planning to write any more books on autism. If she does it would be a great help if there was a chapter by a doctor with case experience showing the strategies that they have used successfully with case examples.
There must be many doctors out there who would love to help children with autism.
I trust this is helpful, and hope you get value out of this book, and you can also check out her latest bookHealing and Preventing Autism: A Complete Guide, which has detailed strategies for both prevention and treatment.
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2 of 3 people found the following review helpful:
5.0 out of 5 stars
A MUST-READ for parents of children with developmental delays like autism, April 3, 2009
This convincing, passionate book sends the message that autism can be healed (as well as prevented) with biomedical interventions AND that parents can drive the process. Celebrity Jenny McCarthy begins her book by relaying her exciting and sometimes harrowing TV experiences broadcasting this message. Despite personal sacrifice, her deep convictions and heart-felt compassion for afflicted children and their parents plunge her into the role of an outspoken warrior for effective biomedical treatments in autism. She also tells of her rigorous, yet unsuccessful, efforts to enlighten the American Academy of Pediatrics through an information exchange with Defeat Autism Now!, a worldwide organization of medical doctors and research scientists known for healing autism through biomedical interventions. However, the bulk of this book is about the personal stories of several heroic parents who strove to reclaim their children from the clutches of autism. They make tremendous role models for the rest of us to emulate. The book is also available on CD-ROM if you'd prefer to listen than read.
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