Customer Reviews

Mothers with Multiple Sclerosis: Voice, Identity, and Empowerment

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This book takes such an important step in the continual effort to break the traditional societal molds for both mothers and women in general by so eloquently depicting the stories of mothers that live their lives in the constant battle against a difficult illness.

The interviews and stories so poignantly describe the empowerment these women felt to understand their illness and its impact on their lives and the lives of their families, to consistently ensure that they minimize the effect this illness has on their personal and professional lives, to grapple with conforming to societal norms created for well-abled mothers and at the same time helping their children and others understand what it means to live with MS.

I was so moved at how these women testified to the narrow-minded social injustices and discrimination they face as they seek diagnosis and treatment and help with the medical decisions they must make that impact their children in our healthcare system and were often faced with life altering and health damaging decisions. This is clear evidence of what has happened in our society for far too long, where we as healthcare consumers have to fight for the type of care we should receive regardless of our race, gender or ability.

Being the child of a physically handicapped mother I believe it is absolutely important to ensure that the voices of these women and the understanding of what they go through and how they are impacted by society be heard and understood.