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Narcolepsy: A Funny Disorder That's No Laughing Matter
 
 
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Narcolepsy: A Funny Disorder That's No Laughing Matter [Hardcover]

Marguerite J. Utley (Author)
4.8 out of 5 stars  See all reviews (12 customer reviews)

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Book Description

0964332817 978-0964332812 June 1995
This book provides accurate facts about all aspects of narcolepsy, a little-known neurological sleep disorder. It is estimated that 150,000-250,000 people in the U.S. have narcolepsy, but most of those have not yet been diagnosed. In the past, patients have seen an average of five or more physicians over a decade or longer before receiving a correct diagnosis of narcolepsy. As the public becomes better informed and more doctors are entering the field of sleep medicine, people are being diagnosed quicker and at an easlier age.

A wealth of information about narcolepsy is available on the internet, but this 166-page book is the most comprehensive, single source of information to be found. In addition to facts, the author relates her personal experiences with all the symptoms and describes how the disorder has impacted her life. It is an excellent reference source and a self-help book rolled into one.

People with narcolepsy usually have great difficulty reading a book without falling asleep. If anything can keep them awake, this book will. It is written in layman's terms, with a positive approach and amusing stories that encourage you to read on.


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Editorial Reviews

Review

Reading Marguerite’s book is like sitting down in your favorite easy chair and having a chat with a close friend. -- The Sleep-e Times, Spring 2003

The author offers straightforward information about symptoms, diagnosis, treatment, and coping with the social, emotional, and legal issues. -- Library Journal, January 2005

From the Publisher

This unique book on narcolepsy is: * Listed under Further Reading in the American Academy of Sleep Medicine's Wellness Booklet on Narcolepsy
* Endorsed by:
--- Narcolepsy Network, Inc.
--- Sleep/Wake Disorders Canada
--- Narcolepsy and Overwhelming Daytime Sleepiness Society of Australasia Inc.
* Being used as a textbook for the fourth year by a leading professor of sleep medicine Although the book was published in 1995, very little information has changed. An insert updates medications and refers readers to a website for the latest information in narcolepsy research.

Product Details

  • Hardcover: 166 pages
  • Publisher: Marguerite Jones Utley (June 1995)
  • Language: English
  • ISBN-10: 0964332817
  • ISBN-13: 978-0964332812
  • Product Dimensions: 8.5 x 5.5 x 0.6 inches
  • Shipping Weight: 11.2 ounces (View shipping rates and policies)
  • Average Customer Review: 4.8 out of 5 stars  See all reviews (12 customer reviews)
  • Amazon Best Sellers Rank: #467,500 in Books (See Top 100 in Books)

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Customer Reviews

12 Reviews
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4 star:
 (1)
3 star:
 (1)
2 star:    (0)
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Average Customer Review
4.8 out of 5 stars (12 customer reviews)
 
 
 
 
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Most Helpful Customer Reviews

26 of 26 people found the following review helpful:
5.0 out of 5 stars Well-written study of a little-known disorder by a layman., September 14, 1999
By A Customer
This review is from: Narcolepsy: A Funny Disorder That's No Laughing Matter (Hardcover)
This small book is a must read for both the victim of the disorder and the professionals who treat it. A narcoleptic herself, Utley writes about situations and cases that all of us who suffer with narcolepsy will identify with over and over. She discusses symptoms, medications and their effectiveness and side-effects; the psychological effect of dealing with narcolepsy; how the family can help the victim and how important it is to have loving support; how to deal with both scary- and ever-present episodes of catalepsy, the muscle-weakness that accompanies narcolepsy, and the problems that can ruin any kind of social life. One result of reading the book is that the narcoleptic will be able to say, "Ohmigosh, I didn't realize other people experienced this," or "I didn't know THAT was part of the disorder; why, I've been doing that for years!"

The shortcoming in Utley's work is her failure to explain exactly how catalepsy affects various people...she talks about it only in vague generalities -- surprising for someone who invested so much time in spelling out the rest of the circumstances surrounding the average narcoleptic's life.

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14 of 14 people found the following review helpful:
5.0 out of 5 stars A balanced treatment of life with an incurable disorder., May 11, 1998
By A Customer
Although this book is biographical in content, it is marvelously reassuring to anyone diagnosed with Narcolepsy. Narcolepsy is indeed no laughing matter, but Ms. Utley does her best to make the reader see the humor and humanity in living with a medical condition that is viciously difficult to explain to those not afflicted.<P>Narcolepsy is a rare disorder of REM sleep, and connecting with others who have the disorder is very difficult. The author's style is insightful and compassionate and enables the reader to connect with a knowledgable member of a very sparse group.
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12 of 12 people found the following review helpful:
5.0 out of 5 stars A GOD SEND, A true inspration, there are Angles among us!, June 24, 2000
By 
Tammy (North Carolina) - See all my reviews
No one can possibly understand another Narcoleptic like one. Most people don't even tell the doctor alot of the symptoms for fear they will be locked away, considered nuts. Ms. Utley is honest and frank. She has a compassion and ability to touch your very soul. I Thank God every day for her and her book. This is a must read and must have book.
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Inside This Book (learn more)
First Sentence:
EXCESSIVE DAYTIME SLEEPINESS is a complex, multifaceted condition. Read the first page
Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
many people with narcolepsy, person with narcolepsy, disrupted nighttime sleep, cataplectic attack, other sleep disorders, sleep disorders center, excessive daytime sleepiness, hypnagogic hallucinations, automatic behavior, periodic limb movements, sleep paralysis, sleepy people
Key Phrases - Capitalized Phrases (CAPs): (learn more)
Narcolepsy Network, New York, Social Security, American Narcolepsy Association, King Features Syndicate
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