Neurofibromatosis: A Handbook for Patients, Families and Health Care Professionals [Hardcover]

Bruce Korf (Editor), Allen Rubenstein (Editor)

Book Description

Publication Date: January 10, 2005 | ISBN-10: 158890301X | ISBN-13: 978-1588903013 | Edition: 2

This collaborative monograph covers the diagnosis, clinical overview, genetics, impact on the patient, and various problem areas associated with neurofibromatosis-problem areas associated with neurofibromatosis include: neurology, learning disabilities, and skin disorders.

Editorial Reviews

Review

'This is an essential update for a book that is unique in its focus in providing information for patients with neurofibromatosis.' -- Doody's Book Reviews

Product Details

• Hardcover: 253 pages
• Publisher: Thieme; 2 edition (January 10, 2005)
• Language: English
• ISBN-10: 158890301X
• ISBN-13: 978-1588903013
• Product Dimensions: 9.2 x 6.5 x 0.6 inches
• Shipping Weight: 1.2 pounds (View shipping rates and policies)
• Average Customer Review: 5.0 out of 5 stars  See all reviews (4 customer reviews)
• Amazon Best Sellers Rank: #360,359 in Books (See Top 100 in Books)

More About the Author

Discover books, learn about writers, read author blogs, and more.

Customer Reviews

Most Helpful Customer Reviews

5 of 6 people found the following review helpful:

5.0 out of 5 stars NEUROFIBROMATOSIS-a handbook for patients,families,and health care professionals., July 8, 2006

By 

JERRY WILLMAN "KNOTTY" (OKLAHOMA/TEXAS,U.S.A.) - See all my reviews

This review is from: Neurofibromatosis: A Handbook for Patients, Families and Health Care Professionals (Hardcover)

This is a must read for anyone with NF or anyone who has a loved one with NF. It has helped me with some symptons I have been having and I know have had the proper tests, now awaiting results. It is a MUST HAVE for ALL HEALTH CARE PROFESSIONALS.

I realized while reading the personal prospectives form individuals with NF that I took part in the study but was not used in the book.

I have my sister and niece to THANK for the book.

IT IS A MUST HAVE AND READ BOOK.

1 of 1 people found the following review helpful:

5.0 out of 5 stars Excellent Resource for anyone dealing with NF, March 26, 2010

By 

Rev. Aj Vollkommer "andrewjv" (Columbia, South Carolina) - See all my reviews
(REAL NAME)   

Amazon Verified Purchase

This review is from: Neurofibromatosis: A Handbook for Patients, Families and Health Care Professionals (Hardcover)

This is an excellent resource for anyone interested in or dealing with as a patient or as a family with NF. The book is actually a series of of well written articles about different subjects within the "NF world." Topics include "Neurological Aspects of Neurofibromatosis" by Allen E. Rubestein and Bruce R. Korf; "Communication Disorders in Children with Neurofibromatosis Type 1;" "Ocular Features of Neurofibromatosis;" "The Skin in Neurofibromatosis; "Learning DIsabilities in Neurofibromatosis;" "The Child with Neurofibromatsis." There is also an in-depth section on the Psychological Aspects of Neurofibromatosis.

The entire book is well written and put together. There are photographs (black and white) of different medical aspects of the disorder; charts; graphs and explanations of the disorder. Some of the photographs give graphic examples of characteristics that can often occur within the framework of someone dealing with NF (e.g. cafe-au-lait spots; tumors on the skin; lisch nodules; spine problems; etc.).

This is sure to become a seminal work on NF. I highly recommend this work to anyone who has an in-depth interest, either personally or professionally, in NF. I've looked high and low for books and information on NF and this one, so far, is the best. I speak as a person who has lived with NF-1 for their entire life.

1 of 1 people found the following review helpful:

5.0 out of 5 stars must read, July 28, 2008

By 

Mary E. Barrett (Clarks Summit PA) - See all my reviews
(REAL NAME)   

This review is from: Neurofibromatosis: A Handbook for Patients, Families and Health Care Professionals (Hardcover)

My three year old son was recently diagnosed with Neurofibromatosis type 1 and I have been disappointed by the amount of medical literature avaible on the subject. This book was one of the most helpful I have come across in terms of NF. I have found that with NF, the patient needs to understand the disease enough to teach some medical professionals. Unless we are seeing a specalist, many doctors are unfamilliar with the disorder. This book is a must read for the physician and the patient.