Customer Reviews

The New Sjogren's Syndrome Handbook (Sjogrens Syndrome Foundation)

5 star:		(5)
4 star:		(4)
3 star:		(1)
2 star:		(1)
1 star:		(0)

 

 

This is a must read for anyone with this syndrome. You will need to buy several coppies to carry and give to your care takers and Dr.s. Most Dr. know OF Sjogren's, but very few know HOW TO care for people with it and the complication that come from not understanding how important that moisture is to a Sjogren's patiant. My Husband had surgery and told the anesthesiologest of his condiction and they did not make any changes. After surgery he was so dried out and throat was sore, he could hardly sleep. We received the book about a week later and found that Sjogren's patients should have different trement to keep them from dring out. We have given all the Dr.s that tend to my Husband this book to read. It is cheeper to educate them, than suffer the discomfort.

Very good book. I found it very informational. It is a must have for people that want to understand the disease or learn more about it. I specially liked the chapters about Sjogrens and pregnancy and the one about the antiphospholipid antobody. It has been the most complete and comprehensive handbook in Sjogrens that I have read.

The first time you receive this book, try to read the entire book. As your symptoms come and go, pull out this handbook and use it as a reference to see how doctors and patients cope with different symptoms and flair ups. When I travel, I always pack this book. Different climates affect each person differently. What may work in your area, will not always work in different parts of the world. Due to the fact I drink plenty of water, my seven year old nephew gave me the nickname of Princess Sponge

This is one of the best books out there on Sjogren's Syndrome. Because Sjogren's Syndrome is an autoimmune disorder that can affect many different parts of the body, it can be very difficult to live with...however, this book goes into detail about every possible manifestation of the disease and how to cope with them. It's very comprehensive and very scientific at times, but well worth the read.

After being given a diagnosis of Sjogren's Syndrome, I really didn't know what it meant. I searched the internet, but really couldn't find any detailed information, so I hit Amazon to find a couple of books. This one was recommended by the Sjogren's Foundation, and was an excellent choice. I was able to see some detailed information, including a break down of the different symptoms. One negative note - it is very medically oriented, so you may need to read through it a few times.

I found this book typically medically orientated. It was informative and accurate of the current treatments etc. but to be honest I am grateful I read this book after I had researched many forms of therapy.
Otherwise I would have been utterly depressed and without hope for my future. All the 'treatments' offer is symptom relief. There is no mention of improving immune status or joint repair i.e. healing. The list is endless, with the added bonus of all the drug side effects! And what about non invasive forms of pain relief like a simple heat pad? I thought the writers could have offered a lot more for sufferers.Most people flick through the tech stuff to get to the 'how to get well' section, let's be honest.
As a health care professional of traditional background, I am realising that there is a huge wealth of info from Alternative Medicine that I once dimissed like my colleagues. Holistic care is the way forward in my opinion. Oh yes, that and fish oil!!!

I would give this book THREE STARS for a layperson and FIVE STARS for a health care professional -- the four star rating is a compromise. I don't think this is the best book about Sjogren's for someone without a medical background. This book is a compilation of articles or chapters, each written by different health care practitioners, about topics that relate to Sjogren's. Because of the format and the variety of contributors, the book comes across as an academic journal, with the writing directed to other health care practitioners as much as Sjogren's patients. For eample, sections on "A Genetic and Immunologic Perspective" of Sjogren's and detials on "Blood Tests, Imaging, Biopsies, and Beyond" were probably a little beyond the reach of a typical Sjogren's patient. Sjogren's has significant implications in pregnancy -- that's important -- but the section in which those issues are addressed -- "Adjunctive Measures, Comorbidities, and Reproductive Issues in Sjogren's" is a little over my head. Likewise, in discussing one of the most critical issues Sjogren's patients face, dry mouth, the text discussed the "importance of adequate hyrdration of the oral cavity" -- and then went on to discuss, in many more (and bigger) words why it is important to drink water. That academic tone is present throughout the book.

There's plenty of useful information here -- and it may well be a useful reference to have on your bookshelf, to supplement what's already in your library about Sjogren's, or to share with a physician. However, if you are looking for something that explains Sjogren's in layman's terms and provides practical day-to-day tips on coping, this is probably not the best choice. I've had this (and a couple of other Sjogren's books) for about two years now; unlike the others, this one rarely comes off the bookshelf.

This was definitely a helpful book to me--I'm a nurse & I understood what all was being explained. But I also now suffer from Sjogren's Syndrome, ane I really had in mind a more day to day, practical application type book. It was just a lot more scientific than I expected. I would never have bought it had I look through it first.

I purchased this book (by Daniel Wallace) and The Sjogren's Syndrome Survival Guide by Teri P Rumpf. I preferred this one as it was more comprehensive, although still written for non professionals. I found it to be a good basic resource.

this book is an excellent and detailed look at Sjogren's effect on all body systems. The appendix at the back that lists all the products that help you cope with dry eye, dry mouth, etc is worth the price of the book.

I recommend this to anyone who has been diagnosed with Sjogren's. Lot's of practical advice.