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ABC News UpClose Spinal Muscular Atrophy


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$14.95 & FREE Shipping on orders over $35. Details In Stock. Ships from and sold by Amazon.com. Gift-wrap available.


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Parents, who are running in a race against time to save their daughter's life, are told that the best thing they could do is to find someone famous who has the disease or, in the very least, is willing to be a spokesperson for it. Arya Singh has an awful disease called Spinal Muscular Atrophy, or SMA. Although most people have never heard of this disease, it's nearly as prevalent as Lou Gehrig's Disease or Cystic Fibrosis. But unlike many lethal diseases, scientists know what causes SMA and have a good idea of how to treat, if not cure it. With just a few more years and a lot more money, it may be a manageable illness. But right now, the money isn't there. And Arya Singh's and thousands of lives, mostly children's, hang in the balance. Anchor: Chris Bury Correspondent: Robert Krulwich Airdate: January 21, 2003

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