This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to dysgraphia, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on dysgraphia. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Dysgraphia: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Dysgraphia; Chapter 4. Physician Guidelines and Databases; Chapter 5. Dissertations on Dysgraphia; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; DYSGRAPHIA GLOSSARY; INDEX. Related topics include: Dysgraphia.
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This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching dysgraphia (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to dysgraphia. It also gives you sources of information that can help you find a doctor in your local area specializing in treating dysgraphia. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with dysgraphia. Part II moves on to advanced research dedicated to dysgraphia. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on dysgraphia. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with dysgraphia or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with dysgraphia. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with dysgraphia.
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Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers dysgraphia, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that dysgraphia is often considered a synonym or a condition closely related to the following: .
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40 of 41 people found the following review helpful:
1.0 out of 5 stars
Totally Useless To Me; Not What I Thought It Was,
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This review is from: The Official Parent's Sourcebook on Dysgraphia: A Revised and Updated Directory for the Internet Age (Paperback)
There are few books on the market written for parents and educators about the learning disability dysgraphia that are currently in print. My interest in this topic is that I am a homeschooling mother of a child who I strongly suspect may have dysgraphia. I wanted to learn more via a non-fiction book from a credible author. The title of this book sounded impressive to me.
I found this book by doing book searches on Amazon.com and at the time I purchased it there were no customer book reviews to help me figure out if this book was a worthwhile one to purchase. Based on the product description provided by the publisher I thought the book sounded worthwhile and paid about double what typical non-fiction books for parents cost. I had high hopes for the book. I was so excited when the book arrived and I settled in to read it when I was alone and had time to read carefully without interruption. I hoped for some solid information and to learn what studies showed and how the condition is treated and how it can be cured. The first thing I noticed was a lot of white space on the pages and large font, so the editors were stretching to get the book to its 83 pages, it seems to me. Well I figured it would not matter if the book was skimpy if what was there was very useful. I was instantly deflated when I realized what this book is. This is not a typical non-fiction book where authors write about non-fiction information to inform the reader. The book opens with a very simple definition of dysgraphia which is JUST a quote from the US Government's NIH department. That is the largest piece of information that the authors give us about dysgraphia itself! The authors did not even write that themselves. To learn anything else, have to go digging on our own with the Internet. The beginning of the book starts off saying that parents of children with a learning disability should be careful where they get their information from and they should not use Internet search engines to find information as the source may not be credible or accurate. Instead what these two editors do is give some websites that publish medical studies and tell you, the parent, to get on the Internet and start searching for online studies to decipher. If you read the long subtitle very carefully you will see it says "a reference manual for self-directed patient research" and that on the cover the authors are credited as being editors. Oddly the editors do not give a list of synonyms for the term dysgraphia. Yet on page 16 they tell us to do a search on a website for dysgraphia or a synonym. The editors have a short blurb about how to find a doctor and how to find a neurologist. Oddly they never explain why a child would need a neurologist, if all children with a dysgraphia label need to consult with a neurologist or what a neurologist actually would do with or for a child with dysgraphia. I found that so strange! Some of the information is so basic it is insulting. An example is on page 19 it says when you have a list of doctors you think you want your child to see, call them and ask if they take your insurance and if not, ask what they charge. Then if you want to see that doctor to schedule an appointment. DUH!! I found that advice so basic that it was insulting and patronizing. The idea that someone who would do all their own research using the Internet would not know how to phone a doctor and ask about insurance coverage and to make an appointment is just ridiculous. Additionally other information is thrown in that seems to have nothing to do with the topic of dysgraphia. I can't help but suspect this was added to make the word count longer so this would expand from being a booklet to a book. Pages 30 and 31 give a list of NIH databases that have nothing to do with dysgraphia, such as Cancer, history of medicine and `space life' to name just three. A number of pages are about the use of prescription medicines but it never tells if all children with dysgraphia need to take medications, what the different medications are and how they help or cure dysgraphia. I was completely confused by that chapter which gives only simple, general information such as tell the doctor what other medications the child is taking and don't be afraid to `bother' the doctor about questions about the prescribed drugs. When I went in search of what medications are used for dysgraphia I could not find any and in fact found a fact sheet on dysgraphia at the West Virginia University School of Medicine's site's fact sheet for dysgraphia that says there are no medications used for the treatment of dysgraphia!! The editors also included a statement under the title "A Final Warning" to be wary of all alternative treatments yet they don't say much more than that to caution us about certain known alternative treatments like energy healing. I think they should have said something like, "X type of therapy offers to do X service and says it will cure dysgraphia by doing Y but this has not been proven in medical studies to be effective". Now that is useful information. Later on pages 49-57 general explanations of a few `alternative medicine' fields are explained but again no specific information or warnings are given about dysgraphia treatment within these fields. On the Internet I found referneces that massage therapy is used for dysgraphia but that is not on the list of 'alternative' therapies. I have heard of occupational therapy being used to treat dysgrapia. However that is not mentioned in this book at all, which was bothersome. Also, that is not in the index, which I tried using to double-check that fact. Another section gives a list of medical schools and suggests that we go to those medical libraries at the medical schools and do research in person. Are you kidding me? Laypeople who are not currently students at those medical schools are, from my experience, not allowed to use those libraries. What we parents want and need is a good non-fiction book on dysgraphia that tells accurate infomration written for laypeople! Using some websites given in the book I tried to research some information and didn't find anything of use. The only studies I could find were about people who had some kind of brain trauma that gave them dysgraphia. What I want to know about is children with the learning disability dysgraphia. I also found some abstracts that basically said nothing because they were so vague, so I learned nothing. Lastly the index is ridiculous. It has a whopping eleven items on it: auditory, cerebral, chronic, comorbidity, dementia, molecular, neural, neuropsychology, phenotype, pulse, and triage. Where are all the other terms and topics mentioned in the book?? I was hugely disappointed by this book as I hoped due to the main title that the book would give the information (as typical non-fiction books do). I feel ripped off at having spent money on this book and am returning it to Amazon.com. So far the most information I've been able to find is from Dianne Craft, however she does not have a book published on this topic. Craft's lecture given at a homeschooling conference gave me hope that some nutritional changes that help children with learning disabilities that are processing disorders combined with occupational therapy that can be done at home can help cure dysgraphia. (I intentionally made this review long to try to give numerous reasons to explain my disappointment with the book to justify my point of view.)
22 of 22 people found the following review helpful:
1.0 out of 5 stars
JUNK,
Amazon Verified Purchase(What's this?)
This review is from: The Official Parent's Sourcebook on Dysgraphia: A Revised and Updated Directory for the Internet Age (Paperback)
This book did not have any information specific to Dysgraphia. It only told you how to do research on the subject. Don't waste your money unless you have never done any type of basic research before.
20 of 21 people found the following review helpful:
1.0 out of 5 stars
Useless, waste of money.,
By
Amazon Verified Purchase(What's this?)
This review is from: The Official Parent's Sourcebook on Dysgraphia: A Revised and Updated Directory for the Internet Age (Paperback)
This book didn't tell me anything at all. I was sorry I bought it and even sorry I waited so long for it to arrive.
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