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2 Reviews
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1 of 1 people found the following review helpful:
3.0 out of 5 stars
Good Start, but left some things out,
By Debra L Johnson (Concordia, MO United States) - See all my reviews
This review is from: The Official Parent's Sourcebook on Fabry's Disease: A Revised and Updated Directory for the Internet Age (Paperback)
...The book identifies only government research and does not specifically identify industry researchers TKT & Genzyme.The treatment section needs updated. TKT has produced and enzyme replacemnt therapy--Replagal and Genzyme has produced an enzyme replacement therapy--Fabrazyme. Both are approved by many European countries. Fabrazyme was approved in the US by the FDA on April 24, 2003.
1.0 out of 5 stars
A little outdated and not very informative,
This review is from: The Official Parent's Sourcebook on Fabry's Disease: A Revised and Updated Directory for the Internet Age (Paperback)
This book is outdated since many of the links are wrong and there are new treatments approved since publishing. It also doesn't really talk that much about the disease itself. The Fabry's support webpage is much more informative than this book. I recommend you save your money. Perhaps when an update is published it will be worth it again.
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The Official Parent's Sourcebook on Fabry's Disease: A Revised and Updated Directory for the Internet Age by Icon Health Publications (Paperback - September 9, 2002)
$28.95
In Stock | |
 
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