This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to wilms' tumor, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on wilms' tumor. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Wilms' Tumor: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Wilms' Tumor; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Wilms' Tumor; Chapter 5. Patents on Wilms' Tumor; Chapter 6. Books on Wilms' Tumor; Chapter 7. Multimedia on Wilms' Tumor; Chapter 8. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Child's Rights and Insurance; Appendix F. Talking with Your Child about Cancer; ONLINE GLOSSARIES; WILMS' TUMOR GLOSSARY; INDEX. Related topics include: child kidney tumor, child nephroblastoma, child wilms, child Wilms Tumor, child wilms' tumor, Drash Syndrome, Kidney tumor, Nephroblastoma.
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This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching wilms' tumor (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to wilms' tumor. It also gives you sources of information that can help you find a doctor in your local area specializing in treating wilms' tumor. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with wilms' tumor. Part II moves on to advanced research dedicated to wilms' tumor. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on wilms' tumor. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with wilms' tumor or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with wilms' tumor. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with wilms' tumor.
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Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers wilms' tumor, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that wilms' tumor is often considered a synonym or a condition closely related to the following: child kidney tumor; child nephroblastoma; child wilms; child Wilms Tumor; child wilms' tumor; Drash Syndrome.
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1.0 out of 5 stars
TOTAL BUST! - WASTE OF $$$,
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This review is from: The Official Parent's Sourcebook on Wilms' Tumor: A Revised and Updated Directory for the Internet Age (Paperback)
this book provides little information on Wilms that cant be found entering in keyword "wilms" into a google search. infact i would suggest that you are 100x beter off doing just that. Its not comprehensive and is for the most part already outdated. As a parent of a child who is battling Wilms Tumor now, i was hoping this book would provide insight into diet, exercise regimen, minimising the efferch of her threapy, etc. but its a bunch of incredibly long web addresses that dont work most of the time. complete waste of my funds which i so desperately need now to pay for health care. they slapped a nice, very clinical and offical cover on garbage. parents of those with Wilms, from someone who knows EXACTLY what you are going through and what your searching the web for, aviod this book, use the cash and go buy your child an ice cream cone ( we are vegitarian and eat incredibly healthty so one ice cream cone wont hurt) your child will thank you, you will have 15 minutes peace of mind and will enjoy seeing your child enjoy themselves..and will not have to endure the complete and utter dissapointment that is this "guide."
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