This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to acne rosacea (also Acne Erythematosa; Adult Acne; Hypertrophic Rosacea; Rhinophyma; Rosacea), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on acne rosacea. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.
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This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching acne rosacea (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to acne rosacea. It also gives you sources of information that can help you find a doctor in your local area specializing in treating acne rosacea. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with acne rosacea. Part II moves on to advanced research dedicated to acne rosacea. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on acne rosacea. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with acne rosacea or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with acne rosacea. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with acne rosacea.
Excerpt. © Reprinted by permission. All rights reserved.
Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers acne rosacea, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that acne rosacea is often considered a synonym or a condition closely related to the following: Acne Erythematosa; Adult Acne; Hypertrophic Rosacea; Rhinophyma; Rosacea.
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36 of 38 people found the following review helpful:
1.0 out of 5 stars
disappointing to say the least,
By "pascoedjamazon" (Kensington Australia) - See all my reviews
This review is from: The Official Patient's Sourcebook on Acne Rosacea: A Revised and Updated Directory for the Internet Age (Paperback)
This book got off on the wrong foot for me on the front cover. Calling the disease Acne Rosacea is a step backwards for all. No one is really calling it acne rosacea anymore. It is different enough from acne that the moniker is just confusing. Further, treating it like acne may just be the worst thing you can do. The book is more of a template for `generic health researching' than anything specific to rosacea. The information is of such a generic level that a sourcebook on the next medical topic is just a search and replace away. I thought that I might get to see some new information, but alas I was disappointed. On Page 4 we read Sadly this is the opposite of what you find. The National Rosacea Society comes up as a PageRank of 1 on Google. As much as we chastise the NRS, they do provide a very good starting point. If people were to start their search at the #1 rosacea web site then they will be on the right track. I'm not sure the same can be said for this book. Later they promise "a chapter dedicated to helping you find your peer groups". They end up only mentioning a prescription drug page at rosacea-control.com, CureZone and MedHelp (of which CureZone didn't mention rosacea at all, and MedHelp timed out). Again they never mention the NRS or the Rosacea Support Group. I could keep going - the section on books doesn't mention the best text we have, the pages of links doesn't mention the Open Directory Project Categories ... The Guidelines chapter is too short to contain anything useful. They talk about "another type of rosacea called vascular rosacea" this statement left me wondering if they had any idea what they were saying. Surely just paraphrasing the standard classification for rosacea would have been ideal introduction, especially when you are unsure of the topic you are addressing. The whole aim of the series of books seems to be to give you information that you can't find on the well known `rosacea internet'. I have to say from my reading of this book there are scant new resources worth noting. In the end the authors would have done better to embrace what they knocked in the first few pages. A trip to google.com, drop the `acne' bit at from `acne rosacea' and surf the first few sites you find. After that you will be in front of this book, and have something else to do with your $USD 25.
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