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The Official Patient's Sourcebook on Acne Rosacea: A Revised and Updated Directory for the Internet Age Paperback – July 1, 2002


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Product Details

  • Paperback: 168 pages
  • Publisher: ICON Health Publications (July 1, 2002)
  • Language: English
  • ISBN-10: 0597832129
  • ISBN-13: 978-0597832123
  • Product Dimensions: 8.3 x 0.4 x 11 inches
  • Shipping Weight: 14.1 ounces
  • Average Customer Review: 1.0 out of 5 stars  See all reviews (1 customer review)
  • Amazon Best Sellers Rank: #7,350,560 in Books (See Top 100 in Books)

Editorial Reviews

From the Publisher

This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching acne rosacea (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to acne rosacea. It also gives you sources of information that can help you find a doctor in your local area specializing in treating acne rosacea. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with acne rosacea. Part II moves on to advanced research dedicated to acne rosacea. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on acne rosacea. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with acne rosacea or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with acne rosacea. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with acne rosacea.

Excerpt. © Reprinted by permission. All rights reserved.

Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers acne rosacea, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that acne rosacea is often considered a synonym or a condition closely related to the following: Acne Erythematosa; Adult Acne; Hypertrophic Rosacea; Rhinophyma; Rosacea.

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Most Helpful Customer Reviews

37 of 39 people found the following review helpful By "pascoedjamazon" on February 12, 2004
Format: Paperback
This book got off on the wrong foot for me on the front cover. Calling the disease Acne Rosacea is a step backwards for all. No one is really calling it acne rosacea anymore. It is different enough from acne that the moniker is just confusing. Further, treating it like acne may just be the worst thing you can do.
The book is more of a template for `generic health researching' than anything specific to rosacea. The information is of such a generic level that a sourcebook on the next medical topic is just a search and replace away.
I thought that I might get to see some new information, but alas I was disappointed. On Page 4 we read
"All too often, patients diagnosed with acne rosacea will log on the the Internet, type words into a search engine, and receive several Web site listings which are mostly irrelevant or redundant"
Sadly this is the opposite of what you find. The National Rosacea Society comes up as a PageRank of 1 on Google. As much as we chastise the NRS, they do provide a very good starting point. If people were to start their search at the #1 rosacea web site then they will be on the right track. I'm not sure the same can be said for this book.
Later they promise "a chapter dedicated to helping you find your peer groups". They end up only mentioning a prescription drug page at rosacea-control.com, CureZone and MedHelp (of which CureZone didn't mention rosacea at all, and MedHelp timed out). Again they never mention the NRS or the Rosacea Support Group. I could keep going - the section on books doesn't mention the best text we have, the pages of links doesn't mention the Open Directory Project Categories ...
The Guidelines chapter is too short to contain anything useful.
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