This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to behcet's disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on behcet's disease. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Behcet's Disease: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Behcet's Disease; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Behcet's Disease; Chapter 5. Books on Behcet's Disease; Chapter 6. Multimedia on Behcet's Disease; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Rights and Insurance; ONLINE GLOSSARIES; BEHCET'S DISEASE GLOSSARY; INDEX. Related topics include: Adamantiades-Behcet's Syndrome, Behcet's Disease, Franceschetti-Valerio syndrome, Halushi-Behcet's Syndrome, Mucocutaneous ocular syndrome, Oculo-Bucco-Genital Syndrome, Touraine's Aphthosis, Triple Symptom Complex of Behcet.
FREE Two-Day Shipping for students on millions of items. Learn more |
Book Description
Editorial Reviews
From the Publisher
This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching behcet's disease (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to behcet's disease. It also gives you sources of information that can help you find a doctor in your local area specializing in treating behcet's disease. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with behcet's disease. Part II moves on to advanced research dedicated to behcet's disease. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on behcet's disease. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with behcet's disease or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with behcet's disease. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with behcet's disease.
Excerpt. © Reprinted by permission. All rights reserved.
Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers behcet's disease, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that behcet's disease is often considered a synonym or a condition closely related to the following: Adamantiades-Behcet's Syndrome; Behcet's Disease; Franceschetti-Valerio syndrome; Halushi-Behcet's Syndrome; Mucocutaneous ocular syndrome; Oculo-Bucco-Genital Syndrome.
Product Details
Would you like to update product info or give feedback on images?
|
Customer Reviews
|
Share your thoughts with other customers:
|
||||||||||||||||||||||
|
Most Helpful Customer Reviews
6 of 6 people found the following review helpful:
2.0 out of 5 stars
It's a Patient's Sourcebook, but not about Behcet's,
By A Customer
This review is from: The Official Patient's Sourcebook on Behcet's Disease: A Revised and Updated Directory for the Internet Age (Paperback)
Don't buy this Patient's Sourcebook expecting to find a lot of content that's specifically about Behcet's disease. There are 119 pages in this book, and only 14 of those pages have direct and (somewhat) useful info on BD. The BD info that does appear includes an incomplete listing of available informational websites on Behcet's (one of which is incorrect, a hazard of Internet-related books), with a few reprinted journal abstracts and a clinical trial writeup thrown in to give the impression that this book is more about Behcet's than it really is. The short section on "What Research is Being Done?" has no direct information on current Behcet's research at all, instead referring readers to a few US government health institutes/organizations. The "Books on Behcet's Disease" chapter lists many books that are out of print or severely outdated, and misses the chance to include a couple of good patient resource books that are currently available through amazon.com and the American Behcet's Disease Association. Looking at the publisher's website, I saw that the people who put this book together have produced several hundred different Patient's Sourcebooks on every imaginable, rare disease. While I haven't seen any of the other books, the format of this one makes me think that they use the same basic outline (and probably a lot of the same pages) to produce each one -- just inserting the name of the "disease of the day" into specific slots in each chapter. It would be better if the authors had created only one book instead, and called it "The Official Patient's Sourcebook on Using the Internet to Find Medical Information."If you've never done any medical research on the Internet, then you might find this book useful. There are listings of health-related web sites, and info on accessing medical search engines. But there's also a lot of "padding" in the 52-page Appendices (which is almost half the book): sections on how to use the web to research whatever medications your doctor has prescribed; an overview of good nutrition; a section on how to find medical libraries in your area; and info on "your rights as a patient" and how to choose a medical insurance plan. The creators of this medical series have come up with a great marketing/publishing idea by putting out books about diseases that most people have never heard of -- I just wish this book actually contributed to the BEHCET'S literature.
1 of 1 people found the following review helpful:
5.0 out of 5 stars
All I was looking for....,
By Mark (colorado) - See all my reviews
This review is from: The Official Patient's Sourcebook on Behcet's Disease: A Revised and Updated Directory for the Internet Age (Paperback)
This book contains everything that i was looking for. It guides you in the right directions to find all available information on Behcet's Disease. It serves me as a guide and an organizer while researching my disease. I recommend this to especially new patients.
Share your thoughts with other customers: Create your own review
|
|
What Other Items Do Customers Buy After Viewing This Item?
Tag this product(What's this?)Think of a tag as a keyword or label you consider is strongly related to this product.
Tags will help all customers organize and find favorite items. |
Sell a Digital Version of This Book in the Kindle Store
If you are a publisher or author and hold the digital rights to a book, you can sell a digital version of it in our Kindle Store.
Learn more
Customer Discussions
|
This product's forum
Active discussions in related forums
Search Customer Discussions
|
Related forums
|
