This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to hemochromatosis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on hemochromatosis. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Hemochromatosis: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Hemochromatosis; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Hemochromatosis; Chapter 5. Patents on Hemochromatosis; Chapter 6. Books on Hemochromatosis; Chapter 7. Multimedia on Hemochromatosis; Chapter 8. Periodicals and News on Hemochromatosis; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Hemochromatosis; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; HEMOCHROMATOSIS GLOSSARY; INDEX. Related topics include: Bronze Diabetes, Cirrhosis, congenital pigmentary, Familial Hemochromatosis, Hemochromatosis Syndrome, Hemosiderosis, Iron Overload Disease, Primary Hemochromatosis, Troisier-Hanot-Chauffard syndrome.
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This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching hemochromatosis (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to hemochromatosis. It also gives you sources of information that can help you find a doctor in your local area specializing in treating hemochromatosis. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with hemochromatosis. Part II moves on to advanced research dedicated to hemochromatosis. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on hemochromatosis. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with hemochromatosis or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with hemochromatosis. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with hemochromatosis.
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Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers hemochromatosis, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that hemochromatosis is often considered a synonym or a condition closely related to the following: Bronze Diabetes; Cirrhosis, congenital pigmentary; Familial Hemochromatosis; Hemochromatosis Syndrome; Hemosiderosis; Iron Overload Disease.
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2 of 4 people found the following review helpful:
5.0 out of 5 stars
WOW! user friendly!,
This review is from: The Official Patient's Sourcebook on Hemochromatosis (Paperback)
WOW! sooo much info in one book! Well worth the money. Some info is a little dated, but if you call the organizations, they'll send you updated info. User friendly. Not only used for hemochromatosis. Listings for different medical conditions also found. Good for all levels of knowledge. **** book!
3 of 6 people found the following review helpful:
4.0 out of 5 stars
Good book for those of us with Hemochromatosis,
By Trud1 (Houston, TX, USA) - See all my reviews
This review is from: The Official Patient's Sourcebook on Hemochromatosis (Paperback)
Its about time there that a technical book about Hemochromatosis was available. I found that this book was both scientific and extremely readable. This is by far the best text i have read on the topic.
2 of 5 people found the following review helpful:
5.0 out of 5 stars
Very comprehensive,
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This review is from: The Official Patient's Sourcebook on Hemochromatosis (Paperback)
This book contained a lot of information about hemochromatosis in a clear, concise format.
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