The Official Patient's Sourcebook on Idiopathic Pulmonary Fibrosis [Paperback]

James N. Parker (Author)

Book Description

Publication Date: June 14, 2002

This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to idiopathic pulmonary fibrosis (also alveolocapillary block; cryptogenic fibrosing alveolitis; diffuse fibrosing alveolitis; fibrosing alveolitis; Hamman-Rich syndrome; idiopathic diffuse interstitial pulmonary fibrosis), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on idiopathic pulmonary fibrosis. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.

Editorial Reviews

From the Publisher

This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching idiopathic pulmonary fibrosis (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to idiopathic pulmonary fibrosis. It also gives you sources of information that can help you find a doctor in your local area specializing in treating idiopathic pulmonary fibrosis. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with idiopathic pulmonary fibrosis. Part II moves on to advanced research dedicated to idiopathic pulmonary fibrosis. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on idiopathic pulmonary fibrosis. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with idiopathic pulmonary fibrosis or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with idiopathic pulmonary fibrosis. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with idiopathic pulmonary fibrosis.

Excerpt. © Reprinted by permission. All rights reserved.

Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers idiopathic pulmonary fibrosis, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that idiopathic pulmonary fibrosis is often considered a synonym or a condition closely related to the following: alveolocapillary block; cryptogenic fibrosing alveolitis; diffuse fibrosing alveolitis; fibrosing alveolitis; Hamman-Rich syndrome; idiopathic diffuse interstitial pulmonary fibrosis.

Product Details

• Paperback: 180 pages
• Publisher: ICON Health Publications (June 14, 2002)
• Language: English
• ISBN-10: 0597831653
• ISBN-13: 978-0597831652
• Product Dimensions: 10.8 x 8.2 x 0.4 inches
• Shipping Weight: 12.8 ounces (View shipping rates and policies)
• Average Customer Review: 5.0 out of 5 stars  See all reviews (1 customer review)
• Amazon Best Sellers Rank: #1,209,843 in Books (See Top 100 in Books)

Customer Reviews

Most Helpful Customer Reviews

16 of 31 people found the following review helpful:

5.0 out of 5 stars The Book's Audience, January 14, 2003

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Health Book Abstracts (Houston, TX) - See all my reviews

This review is from: The Official Patient's Sourcebook on Idiopathic Pulmonary Fibrosis (Paperback)

Designed for people who are new to idiopathic pulmonary fibrosis, this sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it is designed for patients who are less familiar or are new to the Internet as a medical research tool. It tells the reader where and how to look for information covering virtually all topics related to idiopathic pulmonary fibrosis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are compiled and reproduced to give you some of the latest official information available to date on idiopathic pulmonary fibrosis. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Idiopathic Pulmonary Fibrosis: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Idiopathic Pulmonary Fibrosis; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Idiopathic Pulmonary Fibrosis; Chapter 5. Books on Idiopathic Pulmonary Fibrosis; Chapter 6. Multimedia on Idiopathic Pulmonary Fibrosis; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; IDIOPATHIC PULMONARY FIBROSIS GLOSSARY; INDEX. Related topics include: alveolocapillary block, cryptogenic fibrosing alveolitis, diffuse fibrosing alveolitis, fibrosing alveolitis, Hamman-Rich syndrome, idiopathic diffuse interstitial pulmonary fibrosis, interstitial diffuse pulmonary fibrosis, pulmonary fibrosis, usual interstitial pneumonia.