From the Publisher
This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching idiopathic pulmonary fibrosis (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to idiopathic pulmonary fibrosis. It also gives you sources of information that can help you find a doctor in your local area specializing in treating idiopathic pulmonary fibrosis. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with idiopathic pulmonary fibrosis. Part II moves on to advanced research dedicated to idiopathic pulmonary fibrosis. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on idiopathic pulmonary fibrosis. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with idiopathic pulmonary fibrosis or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with idiopathic pulmonary fibrosis. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with idiopathic pulmonary fibrosis.
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Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers idiopathic pulmonary fibrosis, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that idiopathic pulmonary fibrosis is often considered a synonym or a condition closely related to the following: alveolocapillary block; cryptogenic fibrosing alveolitis; diffuse fibrosing alveolitis; fibrosing alveolitis; Hamman-Rich syndrome; idiopathic diffuse interstitial pulmonary fibrosis.