This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to myelodysplastic syndromes, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on myelodysplastic syndromes. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Myelodysplastic Syndromes: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Myelodysplastic Syndromes; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Myelodysplastic Syndromes; Chapter 5. Books on Myelodysplastic Syndromes; Chapter 6. Multimedia on Myelodysplastic Syndromes; Chapter 7. Physician Guidelines and Databases; Chapter 8. Dissertations on Myelodysplastic Syndromes; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; MYELODYSPLASTIC SYNDROMES GLOSSARY; INDEX. Related topics include: Chronic myelomonocytic anemia, Dysmyelopoietic syndrome, Hemopoietic dysplasia, Preleukemia, Smoldering or subacute myeloid leukemia.
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This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching myelodysplastic syndromes (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to myelodysplastic syndromes. It also gives you sources of information that can help you find a doctor in your local area specializing in treating myelodysplastic syndromes. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with myelodysplastic syndromes. Part II moves on to advanced research dedicated to myelodysplastic syndromes. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on myelodysplastic syndromes. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with myelodysplastic syndromes or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with myelodysplastic syndromes. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with myelodysplastic syndromes.
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Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers myelodysplastic syndromes, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that myelodysplastic syndromes is often considered a synonym or a condition closely related to the following: Chronic myelomonocytic anemia; Dysmyelopoietic syndrome; Hemopoietic dysplasia; Preleukemia; Smoldering or subacute myeloid leukemia.
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4.0 out of 5 stars
The Copyright date on this Book is November 2002,
By Diego Banducci (San Francisco, CA United States) - See all my reviews
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This review is from: The Official Patient's Sourcebook on Myelodysplastic Syndromes: A Revised and Updated Directory for the Internet Age (Paperback)
Medical treatment of Myelodysplplastic Syndromes is an area undergoing rapid change, so a gap of eight years is significant. Otherwise I would give this book five stars. ICON publishes similar books for virtually any disease you can think of, so a lot of the contents are boilerplate, but it's intelligent boilerplate basically dealing with research techniques and sources. The core of the book consists of a discussion of the specific disease and research sources applicable to that disease. All in all, an excellent book and certainly worth the price.
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