This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to polycystic kidney disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on polycystic kidney disease. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Polycystic Kidney Disease: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Polycystic Kidney Disease; Chapter 4. Patents on Polycystic Kidney Disease; Chapter 5. Books on Polycystic Kidney Disease; Chapter 6. Multimedia on Polycystic Kidney Disease; Chapter 7. Periodicals and News on Polycystic Kidney Disease; Chapter 8. Physician Guidelines and Databases; Chapter 9. Dissertations on Polycystic Kidney Disease; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; Appendix F. Anemia in Kidney Disease; ONLINE GLOSSARIES; POLYCYSTIC KIDNEY DISEASE GLOSSARY; INDEX. Related topics include: Autosomal dominant polycystic kidney disease, Autosomal dominant polycystic kidney disease (ADPKD), Cystic Disease of the Renal Medulla, Cysts - kidneys, Cysts of the Renal Medulla, Congenital, Familial juvenile nephrophthisis, Kidney - polycystic, Polycystic Kidney Disease.
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This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching polycystic kidney disease (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to polycystic kidney disease. It also gives you sources of information that can help you find a doctor in your local area specializing in treating polycystic kidney disease. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with polycystic kidney disease. Part II moves on to advanced research dedicated to polycystic kidney disease. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on polycystic kidney disease. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with polycystic kidney disease or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with polycystic kidney disease. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with polycystic kidney disease.
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Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers polycystic kidney disease, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that polycystic kidney disease is often considered a synonym or a condition closely related to the following: Autosomal dominant polycystic kidney disease; Autosomal dominant polycystic kidney disease (ADPKD); Cystic Disease of the Renal Medulla; Cysts - kidneys; Cysts of the Renal Medulla, Congenital; Familial juvenile nephrophthisis.
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4 of 4 people found the following review helpful:
5.0 out of 5 stars
A must have resource,
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This review is from: The Official Patient's Sourcebook on Polycystic Kidney Disease (Paperback)
... if you or someone you know has issues with Polycystic Kidneys! The information is well indexed and will save you a lot of time in locating what the latest and greates theories, innovation, etc... are out there regarding this condition. And believe me, it is much more prevalent than folks realize. A lot of previously diagnosed deaths from strokes turn out to have PKD as a precursor/underlying cause!
This book is not a "cure" or "how to" book. It is a compilation of just about every source imaginable regarding the subject. The format also lends to a logical method of further research. If you have a need to learn more about this condition and want to get deep into it, this is definitely the book for you. I highly recommend!! All the best, Jay
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