This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to transverse myelitis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on transverse myelitis. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Transverse Myelitis: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Transverse Myelitis; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Transverse Myelitis; Chapter 5. Books on Transverse Myelitis; Chapter 6. Multimedia on Transverse Myelitis; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; TRANSVERSE MYELITIS GLOSSARY; INDEX. Related topics include: Transverse Myelitis.
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Editorial Reviews
From the Publisher
This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching transverse myelitis (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to transverse myelitis. It also gives you sources of information that can help you find a doctor in your local area specializing in treating transverse myelitis. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with transverse myelitis. Part II moves on to advanced research dedicated to transverse myelitis. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on transverse myelitis. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with transverse myelitis or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with transverse myelitis. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with transverse myelitis.
Excerpt. © Reprinted by permission. All rights reserved.
Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers transverse myelitis, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that transverse myelitis is often considered a synonym or a condition closely related to the following: .
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Most Helpful Customer Reviews
2 of 2 people found the following review helpful:
2.0 out of 5 stars
Not as good as I had hoped,
Amazon Verified Purchase(What's this?)
This review is from: The Official Patient's Sourcebook on Transverse Myelitis: A Revised and Updated Directory for the Internet Age (Paperback)
This "source book" does put a lot of internet information together, but it is really weak in discussing Transverse Myelitis and its associated problems.
I was hoping to obtain much more information from patients, doctors, and others, that would help me better understand and help my daughter through her upcoming trials of Transverse Myelitis. This book lacks many needed details regarding the TM disease and its associated problems, and is therefore a waste of money, unless you just don't have time to look up the same information on the internet. Its saving grace is, however, its reference material under one cover. A lesser charge for the little information is what one actually needs but does not get with this book. In my opinion, you should save the money and build your own internet reference list, for that is about all you get for the dollars paid. Dave B
2 of 2 people found the following review helpful:
2.0 out of 5 stars
Transverse Myelitis Book,
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Amazon Verified Purchase(What's this?)
This review is from: The Official Patient's Sourcebook on Transverse Myelitis: A Revised and Updated Directory for the Internet Age (Paperback)
The book is fine for what it was. I think I was expecting information about the disease that I could use to cope with it and educate my family. I didn't realize that it is just a guide to research it yourself, which I already figured out.
Bummer, but fine if you're new to the internet and need that kind of help.
0 of 1 people found the following review helpful:
5.0 out of 5 stars
Transverse Myelitis Info,
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This review is from: The Official Patient's Sourcebook on Transverse Myelitis: A Revised and Updated Directory for the Internet Age (Paperback)
This book on Transverse Myelitis is full of worthwhile information to help better understand the illness.
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