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Only When I Sleep: My Family's Journey Through Cancer
 
 
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Only When I Sleep: My Family's Journey Through Cancer [Paperback]

Lisa Shaw-Brawley (Author), Robert Urich (Author)
4.8 out of 5 stars  See all reviews (17 customer reviews)

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Book Description

April 1, 2000 1558747745 978-1558747746 1

In December of 1995, at the age of twenty-four, Lisa Shaw-Brawley was diagnosed with Hodgkin's disease, a form of lymphoma. Shaw-Brawley and her husband were visiting her family in California during the Christmas holidays when swollen glands sent her to see her lifelong family doctor. Only When I Sleep: My Family's Journey Through Cancer is her inspiring, first-hand account of what she learned that day and the battle she fought against cancer, based on the journal she kept from the moment she was diagnosed.

The story chronicles in detailed, compelling scenes both the emotional and physical journey of cancer, including the numerous tests and treatments Shaw-Brawley endured. Honest and forthright, the author does not disguise the bitter truth of her experience or the fear that accompanied her diagnosis. Because of this, the book will reassure newly diagnosed cancer patients that their fears-of possible infertility, hair loss and recurrence-are normal and give them guidance on facing these fears.

Only When I Sleep is also the story of Shaw-Brawley's family, and their journey through a harrowing and ultimately strengthening experience. The book is a remarkable story of family love and the commitment of marriage, which also explores the tensions and comforts of returning home as a married adult. In vivid prose, the author invites the reader into her family's home, into their hearts, and into the battle of their lives. As readers join in this journey, they will be moved, informed, reassured and assisted in their personal journey. The author's father also contributes a heart-warming journal entry of what his family endured, offering comfort and insight to every mother and father in a similar situation.

In the end, a second miracle in Shaw-Brawley's life proves to be the ultimate lesson in redemption and hope. This, coupled with her determined fight, will send a clear message of survival that will inspire and empower other cancer patients.


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About the Author

Lisa Shaw-Brawley was diagnosed with Hodgkin's disease at the age of twenty-four and learned first-hand about the ordeal of treatment and the common physical and emotional stages of recovery. Her articles related to cancer research and recovery have appeared in Houston's Sun and Observer newspapers. A journalism major at Texas A & M University, Ms. Brawley is currently on hiatus from school while staying at home to raise her son. She lives with her family in Texas.

Excerpt. © Reprinted by permission. All rights reserved.

Chapter One


Christmas Night, 1995

I should be in bed. It's after midnight, so Christmas is officially over. As much as I have come to accept living further away from my family, it always feels good to be home.

I write by the only light in the room: a glowing angel atop the Christmas tree and the colored, blinking lights draped from limb to limb. We trimmed it just two days ago. Traditionally, we would cut down our own tree Thanksgiving weekend on my Grandma and Grandpa Shaw's mountaintop property, but with my Grandpa, so many cherished traditions have died.

My dad describes this year's tree as the Charlie Brown Christmas tree. The few branches it does possess are frail and have few pine needles. It has already begun to dry out. My parents have never been very particular about the tree that we trim, because they have always said it's the people who live here who light up our home. When my brother and I used to anxiously ask how we should begin decorating each year, my mother would say, "Decorate the tree the way you've decorated our lives."

There were times in my life that my brother and I would each receive only one gift from my parents, because that was all they could afford. The gift was always something we desperately wanted, like alloy rims for my brother's slowly built BMX bike or the typewriter I begged for that weighed more than I did and was just as loud. No matter the gift, we learned early on the meaning of Christmas. Even as the years passed and my father began to earn substantially more money, we never made Christmas lists or expected Santa to bring us everything we asked for throughout the year. We loved the gifts, but I think even at that young age, we just felt lucky to have each other.

One of my best friends used to come to our house Christmas morning and show me all of her gifts, but I never got jealous. This is the same friend whose mother was on her third marriage to a man that she didn't love but who did provide the gifts that appeared under their tree each year. I knew my life was richer. She probably did, too, because she usually spent the rest of the day at our house with my family rather than her own.

Since Wesley and I moved to Texas in early 1994, we have promised to return every other year for the holidays. There's something very special about waking up in the only home I remember living in as a child and being able to have Wesley and our dog, Huck, here with me. When I was a child, we lived in the smaller house two doors down before my parents had this one built. The times I spend awake while everyone else sleeps are always spent reflecting on the years I lived here.

I just finished watching a television interview with Naomi Judd. She was talking about remaining in remission from hepatitis C, attributing it to her spirituality, taking care of herself physically and having a positive attitude. I honestly don't know how she does it. To have something so wrong with you it could take your life—I can't imagine. I've always heard the saying about God not giving people more than they can handle, but I don't believe that always holds true. I have suffered little in my life, which makes me more vulnerable to life's unpredictable possibilities. Only in the face of genuine tragedy do most people learn of the human spirit's promise. I don't think I could be so strong. As much as I enjoy spending time alone while everyone else sleeps, I am mainly still awake because I can't stop itching. I thought for sure it was the laundry detergent or the water at home, but after washing my clothes and showering at Wesley's mom's house last week, I don't know what it could be.

I guess I will go to bed. I think I will go see Dr. McCabe tomorrow since I am here. Early tonight, I discovered that my glands are still swollen from a few weeks ago, and I just noticed another gland swollen between my collarbone and my neck. The lump is small, smaller than a golf ball, but it wasn't there earlier today. He'll be able to give me some antibiotics to lessen the swelling.

I woke Wesley up to feel the lump and asked him if I should go to the doctor. He said I should if it'll make me feel better. I'll try getting in to see Dr. McCabe tomorrow, while Wesley and my dad are golfing. It's better than waiting until we go back to Texas. I feel more comfortable with my doctor. After all, he did deliver me twenty-four years ago.



Chapter Two


December 26, the next day . . .

8:52 p.m.—As I lie here in bed, I keep asking myself if any of this is real. How stupid and naive I was to think Dr. McCabe would give me antibiotics and send me home.

I sat in Dr. McCabe's office and waited over an hour to see him. I didn't mind. I expected to wait. I hadn't been to see him since he diagnosed me with gallstones two years ago. Wesley and I had only been married for twelve days when I had my gallbladder removed. It wasn't exactly our idea of a honeymoon, but I felt much better after the surgery. That is one of the reasons I didn't mind waiting for my doctor. Every time I have gone to see him, he knows what is wrong with me, and then he fixes it. I've heard other people complain about their family doctor not treating them properly for what ails them, but I have never experienced that with him.

The wait was boring, so I sat and "people watched." Most of the patients were at least sixty years old and sat in their chairs reading magazines, trying not to fall asleep. It's been years since Dr. McCabe stopped delivering babies. My brother, Vance, was one of the first babies he delivered. My mom had a different doctor at the beginning of her pregnancy, but that doctor died when she was seven months pregnant with my brother. Dr. McCabe has been our family doctor ever since. Some of my relatives go to him as well. My Grandma Shaw used to, until she got tired of waiting. She wrote him a nasty letter about how inconsiderate it was of him to make his patients sometimes wait in the lobby for several hours. She not-so-politely informed him that she'd be taking her business elsewhere. Until my grandpa's death, he continued seeing Dr. McCabe, despite my grandma's feelings. My grandpa made the right choice. When my grandpa was bed-ridden in the last days of his life, Dr. McCabe called our family at my grandparents' home to see how he was doing. He wanted to make sure my grandpa's pain was being well-managed. Beyond the familiarity I had always known with Dr. McCabe, I knew then that a doctor who made house calls was worth waiting for.

I sat in the office and wondered what each person was there for. A woman walked into the lobby and rushed outside crying. A man followed her, and the two of them sat in their car smoking a cigarette. I hoped they weren't told one of them had lung cancer. You never know; after all, my grandpa never smoked a day in his life and he died of lung cancer. He was a diesel mechanic most of his life and was also exposed to asbestos, but if you asked him, my grandpa would have told you he would not have changed how he earned his living. He provided for his family.

My appointment was for 11:00 a.m., but I didn't have my vitals checked until after noon. I overheard the gentleman who ran outside talking to a nurse. He was being admitted to the hospital for a minor injury. He'd fallen down in a drunken stupor. I felt sorry for his wife.

That was what had the doctor running behind, admitting two patients to the hospital. I still didn't mind waiting. I was lucky to have gotten in so quickly. When I woke up this morning, Wesley had already told my dad about the lump. My dad misunderstood him, thinking the lump was in my breast. Poor guy. I bet that scared him until Wesley clarified that the lump was in my neck and was probably just swollen glands. The next thing I knew, my dad was telling me he got me an appointment with Dr. McCabe.

I was glad to find out I had lost a few pounds. Lately, with very little effort, I have managed to shed some of the weight I have been trying to lose for months.

I finally managed to see Dr. McCabe around 1:00 p.m. He walked in and started with his usual small talk, asking how my family was doing. I reciprocated. Then, he asked what brought me in to see him.

"I've had swollen glands for a few weeks, and last night I noticed another gland has swelled. It's between my neck and my collar bone," I explained.

He stood in front of me and started feeling the glands in my neck. He saw the lump and felt his way to it.

While he stood before me, I studied the lines that had accumulated on his face and the hair that had changed from black to gray in my lifetime. He was still handsome, still ran four days a week, and still tirelessly contested the statistic claiming that many doctors die of a heart attack from stress before they are old enough to retire. It looked like he was still winning.

"That's a lymph node. It shouldn't be swollen at any time for any reason," he said as he backed away. He pulled his swiveling stool over to me and sat down. With his hands folded tightly around his kneecap, he bent his left knee and leaned back. "Have you been having any night sweats or losing unexplained weight lately?"

"No, what are night sweats?" I asked, still unconcerned.

"You'd know if you were having them. So you haven't lost any weight lately?" he asked again.

"Not unexplained. Why? What would cause my lymph node to swell?" I knew I had lost some weight but my appetite had decreased lately; I assumed it was just because of my hectic schedule. Surely this weight loss had nothing to do with the lump. I didn't want to tell him about it. I was starting to get frightened.

"Well, it could be a few things, but it may be Hodgkin's disease."

"What's Hodgkin's disease?" I asked. I'd heard about a hockey player who'd had it. But then I thought it might be some type of blood disease.

"It's a disease that's very easily treated if found early, especially if it's above t...


Product Details

  • Paperback: 200 pages
  • Publisher: HCI; 1 edition (April 1, 2000)
  • Language: English
  • ISBN-10: 1558747745
  • ISBN-13: 978-1558747746
  • Product Dimensions: 8.5 x 5.5 x 0.6 inches
  • Shipping Weight: 12.6 ounces (View shipping rates and policies)
  • Average Customer Review: 4.8 out of 5 stars  See all reviews (17 customer reviews)
  • Amazon Best Sellers Rank: #2,279,475 in Books (See Top 100 in Books)

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Customer Reviews

17 Reviews
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Average Customer Review
4.8 out of 5 stars (17 customer reviews)
 
 
 
 
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Most Helpful Customer Reviews

5 of 5 people found the following review helpful:
5.0 out of 5 stars Lisa Shaw-Brawley is honest and direct., May 16, 2000
By 
Sade T. (Los Angeles, California) - See all my reviews
This review is from: Only When I Sleep: My Family's Journey Through Cancer (Paperback)
One word...amazing!

I have not had cancer myself, however I have many friends and family members who have both won their battle with cancer and some that have lost. I thought I understood what they were going through, not until I read Lisa Shaw-Brawley's book did I realize just how little I knew about their struggles.

I found this book educational and surprisingly, though I never thought I would describe a book on cancer as such, but also a love story.

For such a young woman, being diagnosed with Hodgkin's, Lisa at only 24 is a very centered and determined young woman. In the very early stages of her treatment she made choices about her journey through cancer that meant the difference between living and dying. With determination to fight her way back to a body free of cancer, along the way Lisa helped those around her deal with all of their confusion and fear of a disease that came into their lives with a thunder and changed them forever.

Have faith in God, trust in your doctors, love and support from family and friend and a will to survive, is what Lisa said got her through to where she is today. I cried for her and rejoiced for her and along the way was lost in this book that I could not put down. I have a greater understanding and admiration for what my friends and family members went through because of "Only When I Sleep".

Thank you Lisa for writing this book.

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2 of 2 people found the following review helpful:
5.0 out of 5 stars Love conquers all., June 3, 2000
By 
Jaime Wells (Merced, California) - See all my reviews
This review is from: Only When I Sleep: My Family's Journey Through Cancer (Paperback)
This book is an enlightening experience into a world that I knew virtually nothing about. I have never had to deal with Cancer in a personal way, but I feel better equipped to do so if needed. This book will be an inspiration to those who have had to deal with this in their lives or who are going through it now. But for those of us who never have, it can help us to be more compassionate to those that need us to be. This is not merely a story of survival, but even more so, a story of love. No matter what we or a loved one may go through, we need our family. Lisa was able to go through everything she did with the love and support of her family. Love really does conquer all.
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2 of 2 people found the following review helpful:
5.0 out of 5 stars Courage and love, June 2, 2000
By A Customer
This review is from: Only When I Sleep: My Family's Journey Through Cancer (Paperback)
This is a wonderfully uplifting book on surviving a difficult battle with cancer, but it is even more the story of a family's love and support for each other through that difficult battle. Through this young woman's faith in God's healing power, and the love of her parents and husband she confronted this terrible illness with determination to live and the courage to undergo the treatment necessary to live. It is obvious, too, that her family also had to have a lot of courage and faith in this battle. Where many husbands might have become faint-hearted in this, Lisa's husband stayed at her side and had tremendous conviction that she would recover. He is to be praised for his steadfastness! With her recovery complete, what a blessing Lisa, her parents, and her husband were given with the birth of a son. This is most definitely one of the most uplifting and inspirational books I have had the pleasure of reading in a long while. I highly recommend it!
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