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A Pained Life: A Chronic Pain Journey Paperback – September 12, 2003


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Product Details

  • Paperback: 318 pages
  • Publisher: Xlibris (September 12, 2003)
  • Language: English
  • ISBN-10: 1413406092
  • ISBN-13: 978-1413406092
  • Product Dimensions: 8.5 x 5.5 x 0.8 inches
  • Shipping Weight: 15.2 ounces (View shipping rates and policies)
  • Average Customer Review: 4.3 out of 5 stars  See all reviews (10 customer reviews)
  • Amazon Best Sellers Rank: #1,375,602 in Books (See Top 100 in Books)

Editorial Reviews

About the Author

Carol Jay Levy has been, at various times in her life, a hospital volunteer, emergency room ward clerk, a physician's assistant student, a volunteer ambulance attendant and, for over 2 decades, a chronic pain patient.

More About the Author

Carol Jay Levy went to Temple University and received her BA in psychology. Her true love and secret desire was to be a singer/actress. After doing low level chorus and character roles in local Pa. professional theater she moved to NYC to pursue her goal. Six months later her life's direction changed completely when trigeminal neuralgia, a severe, debilitating, and in her case disabling, pain disorder entered her life.

Customer Reviews

4.3 out of 5 stars
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See all 10 customer reviews
This was a book based on medical info.
stefanie
This is the true story of the author's struggle to overcome the debilitating pain of trigeminal neuralgia.
cjl
When they say it is all in your head, the reply would be ...of course it is!
D

Most Helpful Customer Reviews

30 of 32 people found the following review helpful By stefanie on January 2, 2007
Format: Paperback Verified Purchase
Amazing. I was 29, 3 years ago, when I developed TN. I had a few of the same procedures and doctors as Carol. I also had an MVD, which basically ruined me for a long time.

Anyways, it was nice to hear someone else's tale about the horror of TN. I thought I had a hard case, but Carol is a true inspiration to me. She really went thru a lot and, it turns out, is a wonderful writer!

This was a book based on medical info. But it wasn't boring at all. It was a real page turner. I couldn't put it down and had to finish it in a few days. I plan on loaning it out to others who are dealing with the "fun" of TN issues. Thanks for a fabulous book!
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16 of 16 people found the following review helpful By Y. Hughes on October 11, 2008
Format: Paperback Verified Purchase
This book helped me in a sense that I could assure me, "I am not alone."
This book does not offer you the solution/cure to TN.
However, it gave me the warnings for the future medical/legal decisions.
As a TN patient, although the type of TN that I suffer and the type of the TN that the author suffers are different, I have gone through the very similar experiences with dental/medical/legal professionals.
So it was very difficult and relieving for me to know that I was not alone.
This book is good for "Reality Check."
This book gave me a courage to live despite of everything, since now I know that there exists a person who has guts to keep living.
I thank the author.
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33 of 39 people found the following review helpful By cjl on March 8, 2005
Format: Paperback
This is the true story of the author's struggle to overcome the debilitating pain of trigeminal neuralgia. Trigeminal Neuralgia (TN) is widely accepted as the most painful comdition known to medicine. It is a disorder of the fifth cranial (trigeminal) nerve, occurring in only 155 people per million, which causes intense intervals of electric shock-like pain in the areas of the face where the nerve branches. Carol Jay Levy begins her story as a young woman about to pursue a career on the stage in NYC. Suddenly, her hopes are dashed, as this disorder invades her existence. Diagnosis is elusive (she is "too young" for TN) and doctors repeatedly try to pigeon-hole her as mentally ill, due to a history of depression. Finally, the diagnosis is made, but treatment is ineffective, and she considers suicide, as some 80% of people with TN are thought to do.

"A Pained Life is ... is so real, so honestly told, so suspenseful, that it is hard to put down. Carol Jay Levy's courage and perseverance can help light the way for others who endure pain and a medical maze, with little hope and less help. Medical professionals might also gain insight from this personal story of someone at the other end of the stethoscope."

Reviewed by Kathy Lyons 3/28/04 for the American Chronic Pain Association.
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7 of 7 people found the following review helpful By D on August 4, 2010
Format: Paperback Verified Purchase
One of the biggest things that strikes me time and again is the disbelief by Friends, family and others, that Pain is real... How Many scars do they need to see? When they say it is all in your head, the reply would be ...of course it is! Where do you think all of the nerve signals go!!!! If we break our leg and our head does not work, we feel no pain! Sad to say that those who can't believe a human could endure such pain, would probably not even believe Carols story... But I am here to tell you TN is real and it is a real killer. So I ask those who see this ...read the book and know that if those who suffer from TN could get rid of it, they would at all costs!

Thanks for sharing your story Carol
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8 of 10 people found the following review helpful By booklass VINE VOICE on September 21, 2011
Format: Paperback Verified Purchase
Frankly, I think this book should be read by every doctor, regardless of his or her specialty. A Pained Life is a tense and often sad journey into the world of trigeminal neuralgia and the constant raw pain it produces. Additionally, it is a book that chronicles the medical and societal abuses that are common for patients who live with complicated, chronic conditions. That the author, Levy, was made vulnerable by pain, and that several of her physicians took advantage of this for their own agenda was criminal. Levy's story also contained many instances when people who should have cared about her, took advantage of her or emotionally abused her. Her story is very compelling. All in all the content of this book is definitely worth reading. My reason for giving it only three stars is that it could use a good editor to fix areas of repetitiveness and disjointedness. At times, as Levy jumped back and forth between past and current events, I found it difficult to understand what she was referring to and how it pertained. Additionally, I was frustrated with Levy's expectations that her father would ever change or could be expected to behave in a responsible manner. After a while, her interactions with him made me almost as angry with her as they did him. However, given what Levy was put through and the amount of pain she was dealing with (I know how it can bring one to their knees), I came away from the last page impressed at her brave battle.
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