Patient to Patient : Managing Interstitial Cystitis & Overlapping Conditions [Paperback]

Gaye Grissom Sandler (Author), Andrew B. Sandler (Author)

Book Description

ISBN-10: 0970559003 | ISBN-13: 978-0970559005 | Publication Date: February 1, 2001 | Edition: 1st

Interstitial Cystitis (IC) is a chronic, painful inflammatory disease that affects the bladder wall. An estimated 750,000 Americans have this disease. The multidisciplinary focus of Patient to Patient: Managing Interstitial Cystitis & Overlapping Conditions makes this book particularly helpful and unique. It is our goal to fulfill the needs of the many IC patients who suffer with more than one disease or condition. In order to accommodate these individual needs, our comprehensive book covers a broad spectrum of accompanying conditions, such as fibromyalgia and chemical sensitivity, as well as diet, exercise, massage, and traditional medical interventions.

Patient to Patient is a compilation of our personal experiences (from both a patient and spouse perspective), extensive up-to-date medical research, and shared stories from IC patients across the country.

Editorial Reviews

Review

"...not only educates patients and families but presents information in a hopeful and encouraging way. Bravo!" -- Jill Osborne, The Interstitial Cystitis Network

About the Author

Gaye Sandler is an author and IC patient & support group leader who has been involved in IC work for years. In 1990, she published "Stretch Into a Better Shape." In 1993, she produced a stretching and exercise video for IC patients. She is a specialist in Aston-Patterning movement and muscle re-education. While living in the Boston area, she facilitated an IC exercise support group for three years at the Newton Wellesley Hospital. Gaye has been involved in both traditional and alternative clinics and rehabilitation facilities since 1978. She published Stretch Into a Better Shape, and in conjunction with the ICA produced a stretching and exercise video in 1993 for IC patients.

Andrew Sandler has over ten years of clinical and health care management experience. He is currently the Administrator of Maison Hospitaliere, a nursing home located in New Orleans. Andrew holds a Ph.D. in Special Education, a M.A. of Health Adminstration, and a M.A. of Clinical Psychology. As well as contributing to this book, Andrew presented a Spouse and Family Workshop at the Interstitial Association 7th National Meeting in 1973.

Product Details

• Paperback: 231 pages
• Publisher: Bon Ange LLC; 1st edition (February 1, 2001)
• Language: English
• ISBN-10: 0970559003
• ISBN-13: 978-0970559005
• Product Dimensions: 8.2 x 5.4 x 0.7 inches
• Shipping Weight: 12 ounces
• Average Customer Review: 4.6 out of 5 stars  See all reviews (8 customer reviews)
• Amazon Best Sellers Rank: #941,311 in Books (See Top 100 in Books)

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Customer Reviews

Most Helpful Customer Reviews

17 of 17 people found the following review helpful:

4.0 out of 5 stars Very helpful resource, however...., June 21, 2002

By A Customer

This review is from: Patient to Patient : Managing Interstitial Cystitis & Overlapping Conditions (Paperback)

I cannot improve on Jill Osbourne's review, and would say ditto or "Amen" to it. I have read the book, and return to it as a resource... and have referred it to others. I wish it had ended on its last sentence, a blessing, in chapter nine, namely:" I hope to send you off on your own successful marathon of living more happily, despite the presence of this chronic disease." However, chapter 10 finishes the book. It's titled: Collecting and sharing individual stories.It has vignettes of 6 persons with IC. Assuming readers of this specialized book are mostly those struggling with the physical and emotional pain of IC,I can't imagine why one would add a chapter which, if the reader weren't frightened and depressed already, would guarantee such a response. It's a stretch to find anything hopeful or helpful in the stories chosen, unless persons who continue to suffer what they're suffering are a model of human survival no matter what. As the 2nd to last sentence in chapter 9 is:"The support of other people cheering you on is essential." it is hard to understand ending up with chapter 10 which is in effect a Greek chorus, saying if you think it's bad now, it can and might become much worse. My suggestion is, definitely buy, keep and learn from the book.But whether you skip chapter 10 or not, consider reading two other books as follow up. Holistic nurse Amrit Willis's book titled: "Solving the Interstitial Cystitis Puzzle, My story of Discovery and Recovery" provides a hopeful approach to gaining control of the symptoms of this chronic disease that has worked for her, and many others for whom she has provided generous guidance.Additionally "Kitchen Table Wisdom" subtitled Stories That Heal by Rachel Remen, M.D.is extremely insightful for helping us respond to a chronic disease. Both books facilitate a sense of hope,meaning, and self empowerment.

19 of 21 people found the following review helpful:

5.0 out of 5 stars A Self - Help Encyclopedia for IC patients!, May 25, 2001

By 

Jill O. (Wine Country of California, USA) - See all my reviews

This review is from: Patient to Patient : Managing Interstitial Cystitis & Overlapping Conditions (Paperback)

At a time when IC information is now readily available in the marketplace, it is always a pleasure to highlight books that go above and beyond the call of duty in providing help and new resources to patients and families in need. Gaye & Andrew Sandler's "Patient to Patient: Managing IC and Related Conditions" is a new and exciting resource for couples & families living with IC. We were excited to see topics which hadn't been discussed so thoroughly or innovatively before.

The self help chapter offered the most useful discussions we've ever read on managing urgency & frequency. The pain management strategies were exceptional. Their discussion of sex, menopause & pregnancy is outstanding. This book will light the way for patients entering perimenopause. The hormone replacement discussion is the best I've ever seen in relation to IC. The chapter on pregnancy will become a bible for patients contemplating motherhood. From medication to physiology, prenatal vitamins to breastfeeding, this chapter is a much needed addition to the IC community. Bravo!

From the husbands perspective, the chapter on Living with IC - A Spouse's Perspective confronts issues that so many couples and families grapple with daily. From adjusting expectations to understanding how IC will change family dynamics on a day to day basis, this chapter will be read aloud, in bedrooms and kitchens, in many IC homes.

"Patient to Patient: Managing Interstitial Cystitis & Related Conditions." is the result of years of wisdom and work by this remarkable husband and wife team. We give it our highest rating. Five stars! It is far above the other self help books out there today! - Jill Osborne, MA

4 of 4 people found the following review helpful:

5.0 out of 5 stars Covers A Lot of Material, April 6, 2006

By 

Dawn R. Mahowald "Dawn" (Boulder, CO) - See all my reviews

This review is from: Patient to Patient : Managing Interstitial Cystitis & Overlapping Conditions (Paperback)

This review was written by Dawn R. Mahowald.

This book really covers a lot of useful material for someone with IC. Medical issues, diet suggestions, and information for spouses and family are all covered. I particularly liked the chapter on environmental and chemical sensitivities. There are many of us with IC who can and have made great strides in improving our condition by making a few well chosen changes to our environment. This and many other helpful ideas in this book also lead into one of the authors' main themes - taking charge of this disorder and regaining our confidence in ourselves.

Also close to my heart, as a yoga teacher for people with IC, was "Chapter 3 - Reclaiming Comfort in Your Body" and the illustration on the preceding page, "Pain Pattern of IC". Gaye and Andrew's approach of gentle, supported stretches and a "...conservative approach to exercise..." is a very helpful philosophy for anyone with IC or who is in the middle of a flare-up. It also points out that we don't necessarily have to suffer with secondary sources of pain if we pay attention to some of the little details of our body.