Customer Reviews

Positive Options for Antiphospholipid Syndrome (APS): Self-Help and Treatment

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When I was diagnosed with antiphospholipid antibodies earlier this year, I was unable to find much more information on the syndrome than a page or two on an outdated website, or the same blahbittyblah medical terminology. When I tripped over this book, I ordered it, figuring it would be little more than a glorified pamphlet.

I was pleasantly surprised! While it is by no means a textbook on APA and the ramifications of living with the syndrome, it had more information on the condition than I have found ANYWHERE, including what I learned from my doctors. I initially turned straight to the recurrent miscarriages section of the book (the book is divided into chapters on the different manifestations of APA: migraines, heart conditions, recurrent miscarriages, strokes, etc.) as that is how APA affects me, but I later found the other chapters to be just as informative, even though I hadn't thought they applied to my situation.

All in all, I was very pleased with this book. It exceeded my expectations!

Two years ago, after two clots while only 32-33 years old, I was diagnosed with APS. I've really searched and struggled to find information on this topic, even reading and re-reading through medical journals my doctor gave me when she couldn't find patient information to answer my questions. There exists no adequate information on this topic online. This book's content is limited but clear and concise and far exceeded my expectations. The case studies are extremely helpful. One story even clarified some critical misinformation I've carried that could have led me to my third clot! I found some parts opened my eyes (and were emotionally painful) but most were hopeful and optimistic. Most importantly, it did for me what I think the writer intended... it revived my motivation to be my own advocate, to not surrender responsibility for my medical condition to anyone (including doctors) and never stop educating myself. The only improvement to content that I could suggest is the addition of practical suggestions on prevention of symptoms and dealing with it.

I have done a lot of online research regarding APS. While most sites have nice information, it is usually only a page or two, highlighting bits and pieces. This book really pulls it all together, clearly linking symptoms to help define the "big picture" - both historical and forward looking. It is also in an easy to read format that covers a good amount of information without being overwhelming. Nice credibility with the Foreword by Dr. Hughes and Dr. Roubey. This is a must have for APS patients and family!

This book is easy reading and informative. Although I have done my own research on APS, it is nice to have a small book with some basic information. The personal stories are helpful. I wish there was a more detailed book out there that went into more detail about autoimmune disorders. Overall, I would recommend it.

Great book and very helpful.I've always tried to be positive in the diagnosis I received less than 1 year ago.APS is not a fun disease,but can be managed with the right attitude and helpful doctors.A+ and hats off for this book.

Fairly Good Read. Highly recommend this book. Has many supported facts and documentation.

I bought this book in 2008 when my father was diagnosed. Even though there is information on the Internet it was so nice to have the information in one easy to read location. I was so impressed with the book that I bought a copy for my parents and siblings. We have several family members that have this syndrome but didn't know what was wrong, I just gave my copy to a professor in a nursing program because my dad is in the hospital and we are still having a difficult time finding doctors that know of the syndrome. I am ordering more copies so that I can give them to others to help spread the word.

This book should be a starting point in the search for answers when diagnosed with APS. I have been diagnosed over 7 years by now, and have found precious little information out there. This book is listed on the APS online support group website. This book is mostly testimonial but I found it is also informative, setting a good foundation for future doctor's office visits, since most doctors don't know much more than we do at this point. Keep in mind that while doctors will be interested in your comparisons to the testimonials in this book, what they will take more seriously is medical journals and articles written by experienced doctors in the field who can confirm what you probably already know.

Very little is known about the disease ANTIPHOSPHOLIPID ANTIBODY SYNDROME. This book ,I found on AMAZON was amazing. It answered all of my questions. Thank You AMAZON

Great book for newly diagnosed patients. Personal stories & easy to read. Was recommended to us as a must have for the APS patient. I agree!