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Raising Blaze: A Mother and Son's Long, Strange Journey into Autism
 
 
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Raising Blaze: A Mother and Son's Long, Strange Journey into Autism [Paperback]

Debra Ginsberg (Author)
4.6 out of 5 stars  See all reviews (20 customer reviews)

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Book Description

August 5, 2003

When you have a child that doesn't fit in, what do you do? Debra Ginsberg knew that her son, Blaze, was unique from the moment he was born in 1987. What she didn't know was that Blaze's differences would be regarded by the outside world not as gifts, but as impediments to social and academic success. Blaze never crawled. He just got up and walked when he turned one. He called his mother 'Zsa Zsa' until he was three. By kindergarten, he loved the music of Miles Davis and Ella Fitzgerald. He fears butterflies and is fascinated by garbage trucks. With the same honesty that made Waiting a success, Raising Blaze: Bringing Up an Extraordinary Son in an Ordinary World chronicles Debra's experience in raising a child who has defied definition by the host of professionals who have sought to label his differences. Ginsberg introduces us to a remarkable child and her own unusual childhood. She writes about a family which shows us the redemptive power of faith, humour and love.


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Editorial Reviews

From Publishers Weekly

Ginsberg (author of Waiting, an insider's look at the world of restaurant service) offers an extraordinary view of rearing and educating a child with special needs. Upon entering school, Ginsberg's son, Blaze, was put in a special education class because he didn't fit in smoothly with the behavioral demands of the regular classroom teacher. Required to come up with a specific diagnosis in order to place him in special ed, the school officials chose "speech and language impaired" after Blaze's first day of kindergarten. Resistant to testing, Blaze defied simple categorization and over time collected a variety of contradictory labels, including autistic, "of above-average intelligence," "eccentric," attention deficit hyperactive and "a gifted manipulator." A single parent with a large supportive family, Ginsberg spent much time and energy working with Blaze, having him tested, reading about diagnoses and treatments and helping him through elementary school with teachers ranging from helpful to hostile. She sacrificed her nascent career in publishing to spend more time with Blaze, took a job at his school, temporarily home-schooled him and even ingested a dose of his Ritalin to see how it felt. Ginsberg skillfully describes all the frustration, anger, fear, shame, worry, love and joy she's experienced in addressing her son's unique gifts and difficulties. She also describes a public school system generally more concerned with collective standardized test scores than with recognizing and serving the various innate abilities, talents and needs of its diverse students. This is an unusual and fascinating memoir that refutes many common assumptions about single mothers, special-ed kids, "experts" of all kinds and American public schools. (Aug.
Copyright 2002 Cahners Business Information, Inc. --This text refers to an out of print or unavailable edition of this title.

From Library Journal

This is the poignant and compelling story of raising a child with an undefinable disability centering on emotional/behavioral issues. A devoted mother and ardent advocate for her son's educational rights, Ginsberg (Waiting: The True Confessions of a Waitress) lets the words pour onto the page yet manages to keep the story of her son's battles accessible and engaging. The reader can, at times, become incredibly frustrated with both the ineffective mandates of the school and Ginsberg's own stubbornness. Her unwillingness to heed the diagnosis of doctors or the suggestions of educators can appear detrimental to all parties, but the reader comes to understand that as Blaze's mother, it is her job to question authority. In the end, this mother and son's tale not only reveals the beauty and strength in struggle but also acts as a supportive text for parents and guardians of disabled children. Among the qualities we all share as humans "are our differences and thus our sameness," writes Ginsberg, and she hopes people use that tenet to establish a common ground; this book is the foundation for a new understanding. Highly recommended for all libraries.
Copyright 2002 Cahners Business Information, Inc. --This text refers to an out of print or unavailable edition of this title.

Product Details

  • Paperback: 320 pages
  • Publisher: Harper Perennial (August 5, 2003)
  • Language: English
  • ISBN-10: 0060004339
  • ISBN-13: 978-0060004330
  • Product Dimensions: 8 x 5.3 x 0.8 inches
  • Shipping Weight: 6.4 ounces (View shipping rates and policies)
  • Average Customer Review: 4.6 out of 5 stars  See all reviews (20 customer reviews)
  • Amazon Best Sellers Rank: #286,035 in Books (See Top 100 in Books)

More About the Author

A lifelong lover of books, Debra Ginsberg waited tables for over twenty years to support her other career as a writer, resulting in her first book, "Waiting: The True Confessions of a Waitress." She is also the author of the critically acclaimed memoirs, "Raising Blaze: A Mother and Son's Long, Strange Journey Into Autism" and "About My Sisters." Debra went on to write the novels, "Blind Submission," a satirical love letter to the publishing industry, and "The Grift," a New York Times Notable Book for 2008 and winner of the Southern California Independent Booksellers Award for Best Mystery. Debra's novel of psychological suspense, "The Neighbors Are Watching," will be published in November, 2010.
For more information, visit Debra at www.debraginsberg.com

 

Customer Reviews

20 Reviews
5 star:
 (13)
4 star:
 (6)
3 star:
 (1)
2 star:    (0)
1 star:    (0)
 
 
 
 
 
Average Customer Review
4.6 out of 5 stars (20 customer reviews)
 
 
 
 
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9 of 9 people found the following review helpful:
5.0 out of 5 stars A Must Read for Teachers Workiing with Mainstreamed Students, March 12, 2003
I am a retired elementary school teacher. I've had many mainstreamed children in my classes. Teachers should read this book. It gives the parent's point of view, what iep meetings seem like to her and how frustrating it is for the parent to be faced with a lot of experts who think they know more about her son than she does. That said, I imagine that having Blaze in a regular classroom situation with 24 or so other students would be very hard for the teacher and her students because he might interupt the learning of the other students.Disruptive behavior always takes something away from those students who are trying to do their work. Blaze did his best in the special education class during 5th. and 6th. grades. I'm sorry he wasn't placed with another teacher who understood him. This is an honest book. I didn't always agree with Blaze's mother, but she certainly tells it as she sees it. I must add that I wondered why she provided no playmates for Blaze until he entered his horrible year in Kindergarten. If you are a teacher this is a must read book.
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19 of 23 people found the following review helpful:
3.0 out of 5 stars Good story - but little insight, June 27, 2003
By 
MooonChild (Denver, CO United States) - See all my reviews
I read this book as part of a book club.

I enjoyed this book. It was an easy, and fast read. I was very impressed by Debra Ginsberg's writing skill, especially considering this is just her second work. She is extremely talented at putting her thoughts and feelings into words.

One of the first things that occurred to me, actually toward the end of the book, was that I didn't really feel like I *knew* Blaze. I definitely felt as if I knew Debra, and in fact a good portion of her family, but she gave very little description of what day-to-day life was like with Blaze. In fact, the only descriptions of Blaze's life were his school days, and even those only came second-hand, as they were recounted to Debra through his teachers and school staff. I really longed to read more about how he interacted with his mom when they were alone, and to read about random things such as trips to the grocery store, or to the pediatrician.

Also, and this is not a criticism of the book, but I found myself wondering over and over again, if, even though Debra obviously had Blaze's best interests in mind, she and he would have been better off if she had ultimately decided to place Blaze in a "special" school early on. It seems to me that the constant struggles that both of them endured by Blaze's attempts to "fit in" and be "normal" in a regular classroom would have been detrimental to Blaze. He is obviously a very bright child, and I felt that he would have performed better in a learning environment with more individualized instruction. These thoughts made me wonder about Debra's motives - why was it so important to her that Blaze attend "regular" classes in a "regular" public school (other than the financial expense of a private school) rather than consider other options? It seemed obvious, after he was in the sixth grade, that he was not getting much out of his schooling, and the staff and other students were suffering as a result of the distraction.

You may or may not agree with the choices Debra makes in raising her disabled son, but since she's written a book about it, you should at least be able to understand WHY she has made the choices she's made. I didn't get it.

WHY was it SO important to Debra that Blaze be mainstreamed? He was clearly disruptive and distracting to other students, he was clearly not learning as much as he possibly could have in other environments ---- Debra's motives are just not explained.

I believe that all children with disabilities should have the right and the opportunity to mainstream at school, and as a result into society. But at what cost? Do non-disabled children have a right to attend classes that are not regularly (daily!) disrupted?

It's a difficult issue to decide. I just wish that Debra had explained her motives.

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16 of 20 people found the following review helpful:
4.0 out of 5 stars A book that makes you think..., August 28, 2002
By 
The author of this book truly is an amazing woman. Her son, to his teachers and non-family members, is spoiled, stubborn and behaves inappropriately. He won't stand in line with the other children unless the teacher gives him a cracker, he won't color inside the lines (practically a criminal activity according to his kindergarten teacher) and lacks motor skills that most children his age have mastered. Blaze is a child that would rather starve to death than take one bite of a sandwich because "he doesn't like sandwiches." Not that he's ever tried one - he just knows he doesn't like them. It was only after reading about how the author tried to forcefeed him a cheese sandwich, that I truly understood what she was going through with her son, whom she loves more than anyone else in the world.

Because of Ms. Ginsberg's somewhat unconventional upbringing, she was raised to mistrust and dislike doctors. If she had been brought up in a more mainstream way, she might have immediately sued the pants off the hospital and doctors for failing to give her a C-section (which might have prevented her son from being born without enough oxygen to his brain). However, her family is incredibly unique and interesting and supportive of each other. It's a shame that all families are not like that.

In her own way, Debra Ginsberg is as stubborn as Blaze. When a teacher at school tells her that Blaze responds positively to getting M&M's, she instructs the teacher to stop giving him sugar. When more than one professional suggests trying Ritalin, she reacts as if she were asked to give her son cyanide. When a 2nd grade teacher again suggests that Blaze needs to be in Special Ed because his behavior is just too inappropriate for the rest of the class, she's upset because one teacher with 25 kids in a class doesn't have time to give her son the personal attention he demands. Ms. Ginsberg does not portray herself sympathetically in the book. (At times, while reading the book, I wanted to ask her "Who is the parent here? You or your son?" For example, Blaze gives her a list of words that she can and cannot say - does she say to him - you're 9 years old - I'm the parent, you're the child and you cannot tell me what words I'm allowed to say - No - she tries not to say any of words - which include, among others, NO and VERY and NONFICTION).

What she does do is fight tooth and nail for her son and I do give her a lot of credit for that.

Does this book make you think? Yes. Does this book make you understand more fully what it's like to raise a "different" type of child? Absolutely. Is it worth reading? Without question.

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Inside This Book (learn more)
First Sentence:
Any story about a birth must have its origin in a story about conception. Read the first page
Key Phrases - Statistically Improbable Phrases (SIPs): (learn more)
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Ice Princess, Marvin Gaye, New York, South Park, Only Blaze
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