Informed consent is a central topic in contemporary biomedical ethics. Yet attempts to set defensible and feasible standards for consenting have led to persistent difficulties. In Rethinking Informed Consent in Bioethics Neil Manson and Onora O'Neill set debates about informed consent in medicine and research in a fresh light. They show why informed consent cannot be fully specific or fully explicit, and why more specific consent is not always ethically better. They argue that consent needs distinctive communicative transactions, by which other obligations, prohibitions, and rights can be waived or set aside in controlled and specific ways. Their book offers a coherent, wide-ranging and practical account of the role of consent in biomedicine which will be valuable to readers working in a range of areas in bioethics, medicine and law.
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"This is an ambitious and timely book, one that is up to the job of defying a tide of opinion and practice. It will not turn back that tide on its own, but it represents a compelling and very forcefully-argued move against it. It deserves above all to reach the attention of policy-makers who for too long have drifted with the tide, and who have allowed a simple idea -- that informed consent can protect patients and research subjects -- to grow unchecked, and sprawl, and collapse under its own unsustainable weight." - Metapsychology Online Reviews
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Rethinking Informed Consent in Bioethics offers a coherent, wide-ranging and practical account of the role of consent in biomedicine which will be valuable to readers working in a range of areas in bioethics, medicine and law.
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Very Good Critique,
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This review is from: Rethinking Informed Consent in Bioethics (Hardcover)
This is a very good critique of the rationale for and present practice of using informed consent in research and clinical practice. To some extent, this book is a sequel to O'Neill's prior work on bioethics. In her Autonomy and Trust in Bioethics, O'Neill presented a very effective critique of the reliance on the concept of autonomy and the nature of the concept of autonomy used in clinical and research ethics. O'Neill argued well that the reliance on the principle of autonomy was poorly formulated and contributed to erosion of trust. In the present book, O'Neill and Manson provide an effective critique of the conventional informed consent approach and present a conceptual alternative. Manson and O'Neill argue that the present informed consent doctrine exhibits a misplaced emphasis on autonomy, is practically difficult, and leads to neglect of ethically necessary aspects of communication between physicians/researchers and patients/participants. They suggest that the present model is based on a "container" approach to delivering information that has major defects. Manson and O'Neill present a model of informed consent based on a "waiver" of specific obligations and rights and an "agency" model of the consent process which tries to stress the full spectrum of requirements for effective communication. This model is extended to some related issues like data privacy and genetic issues in a rigorous way that produces recommendations at variance with present practice. Manson's and O'Neill's critique is carefully developed and convincing. The major drawback of this book is that it is theoretically strong but the authors' suggestions for concrete changes are quite modest. Regardless, the arguments developed in this book are much more rigorous and well founded than those found in the great majority of the bioethics literature.
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informational obligations, informed consent transactions, successful communicative transactions, trust intelligently, informational privacy rights, genetic exceptionalism, intelligent placing, distinctive obligations, container model, informed consent practices, container metaphors, biomedical practice, informed consent requirements, intelligent trust, genetic privacy, cognitive commitments, epistemic norms, human genetic information, epistemic responsibility, informed consent cannot, invasive action, specific consent, refusing trust, retrospective research, conduit metaphor Key Phrases - Capitalized Phrases (CAPs): (learn more)
Clark Kent, Cambridge University Press, New York, Nuremberg Code, Oxford University Press, Draft Genetic Privacy Act, Lois Lane, Onora O'Neill, Declaration of Helsinki, Draft Act, Clarendon Press, Immanuel Kant, Legal Guidance, Tony Blair, Code of Practice, Department of Health New!
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informational obligations, informed consent transactions, successful communicative transactions, trust intelligently, informational privacy rights, genetic exceptionalism, intelligent placing, distinctive obligations, container model, informed consent practices, container metaphors, biomedical practice, informed consent requirements, intelligent trust, genetic privacy, cognitive commitments, epistemic norms, human genetic information, epistemic responsibility, informed consent cannot, invasive action, specific consent, refusing trust, retrospective research, conduit metaphor Key Phrases - Capitalized Phrases (CAPs): (learn more)
Clark Kent, Cambridge University Press, New York, Nuremberg Code, Oxford University Press, Draft Genetic Privacy Act, Lois Lane, Onora O'Neill, Declaration of Helsinki, Draft Act, Clarendon Press, Immanuel Kant, Legal Guidance, Tony Blair, Code of Practice, Department of Health New!
Books on Related Topics | Concordance | Text Stats Browse Sample Pages:
Front Cover | Table of Contents | First Pages | Index | Surprise Me!
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