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Rex: A Mother, Her Autistic Child, and the Music that Transformed Their Lives Hardcover – October 28, 2008
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Top Customer Reviews
Overall, this was an excellent book about a very true story, and I would highly recommend it.
As an older mother, Cathleen had an adorable baby boy, Rex, who was born with a cyst in his brain. Then, when Rex was six months old, his parents learned he was blind. After another surgery, at the age of 1 year, to put a tube into the brain cyst, Rex became quite different and Cathleen learned he was autistic (until the surgery, he had seemed to be a normal blind child--right after the surgery, he became autistic. Did the surgery cause the autism, or was it a coincidence? That seemed to never be addressed). Then when Rex was two, his Dad left the family, so Cathleen became a single mom with lots of problems to cope with. HOWEVER, I consider that Rex was pretty lucky, as his mother was able to take full time care of him. She noticed that music calmed him, and then later found out that he could just hear a piece of music, and play it on a small piano. The became his way of communicating with people and learning things at school. In the meantime, Cathleen learned that God is always there but doesn't always answer the way we want him to--she changed her outlook on religion completely.
This was, to me, a fastinating book partly because I have always been interested in genius savants. It seems amazing what they can do--way beyond the normal. This account of Rex goes from just before he was born to when he was about the age of 12. If possible, I would like to know how much he develops past this age and what his life is like as a young adult.
I found this book very interesting. I connected with this book more than the typical my-child-has-a-disability memoir that I've read. As a Speech-Language Pathologist who works in schools, I could identify with the author's struggles of getting Rex help within the school "system". She struggled to get him the appropriate help that he needed throughout elementary school, and honestly, is probably still struggling with that today. But, she didn't give up on the school. She didn't pull him out to home school him or put him in a special school and while I'm sure she may have wanted to scream or even give up, she doesn't seem to have done either of those things. It's refreshing to hear about a parent of a child with a disability who truly is their child's advocate. So many parents simply send their children off to school assuming that the school can fix their child, it's their job.
I also found Rex to be truly fascinating. I loved hearing his story of how he came out of his shell with his piano. But, even more interesting to me was his first words and how his communication came about. I loved hearing about his interactions with peers, adults, and with Derek Paravicini when they met. When I got to that part at the end of the story I watched the 5 part series on youtube and it helped to bring the whole book together.
Cathleen Lewis did a great job telling her story of her life with Rex thus far. She didn't come off as someone who wants pity or anything like that. I thought it was well written and put together.Read more ›
Most Recent Customer Reviews
I enjoyed reading this book. Rex and his mother had many difficult challenges but overcame them one at a time. It is a book well worth reading.
I highly recommend it to all.
Outstanding story about a mother's love for her son. She dedicates her life to helping him overcome his disabilities and become a success. Read morePublished 14 months ago by Mary S
This book touched the very core of my soul and I would recommend it to anyone who is passionate iPublished 15 months ago by Tenssie Ramsay
When I read a book and don't have to skip pages you know it's a good one. I was so grateful to be able to read such a deep feeling book. Read morePublished on February 13, 2013 by Virginia R. McCollum
The author does a great job expressing her hardships as she tries to deal with all of her son's difficulties. Read morePublished on February 5, 2013 by JWonson
A very inspirational story about a mother and her son and how they both overcame his disabilities as well as the stigma of those disabilities. Definitely worth reading. Read morePublished on January 24, 2013 by S. Quest
I was so thankful for the opportunity to read this book! It's the story of God's miraculous work in the lives of two incredible people: a multiply-disabled, musical savant and his... Read morePublished on June 20, 2012 by Janet Reeves
A MUST READ! I read this book in 2 days, and would recommend to everyone. Heartwarming story of the love between a mother and her child, a child and his mother, and the fantastic... Read morePublished on April 2, 2012 by JJ