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Montana wife and mother Groneberg traces in her tenderly moving account the life-changing realization after the premature birth of her twin boys that one of them, Avery, has Down syndrome. Utterly unprepared for the emergency C-section of the seven-week-early preemies, Groneberg and her writer husband, Tom, the parents of a four-year-old, are devastated by the news about Avery, and they must gradually alter their easygoing future plans about raising their kids. They reject the notion of adoption, suggested by a well-intentioned nurse at the hospital where the babies are ensconced in the neonatal intensive-care unit, and embark on an exhaustively trying, ultimately enlightening journey to care for the needy babies, especially Avery, and educate themselves about his condition. Rising from the shame of feeling that their family is broken, and letting slide hurtful comments by a grocery-store clerk or neighbor, Groneberg devoured books and information from the Internet, and began to foster their son's development by seeking out physical therapists and specialists. Small gains in Avery's motor skills were causes for celebration, and the beginning of speech the greatest gift the parents could ask for. Groneberg affectingly delineates these gradual, hard-won stages during Avery's first year toward love and acceptance. (Apr.)
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Jennifer Graf Groneberg's exceptional memoir Road Map to Holland: How I Found My Way Through My Son's First Two Year's with Down Syndrome provides practical insight and emotional support to parents of children with special needs. Graf Groneberg is also the editor of My Heart's First Steps: Writings That Celebrate the Gifts of Parenthood and is a contributor to anthologies such as The Maternal is Political, Car Seat on a Camel, Gifts: Mothers Reflect on How Children with Down Syndrome Have Enriched Their Lives, Woven on the Wind and Crazy Woman Creek. Her essays have appeared in Baby Talk, Child, Parents, Parenting, Mothering and Midwifery Today. She lives and writes at the foot of the Crazy Mountains in central Montana with her husband, author Tom Groneberg, and their three sons.
A friend loaned me a copy of your book. She thought I would enjoy it since you mentioned me in the chapter on Targeted Nutritional Intervention. Read morePublished 21 days ago by D.L.Lawrence
Road map to Holland Helped us all with the new birth.
My daughter found this to be the most helpful in explaining the feelings she was having,
when she didn't understand... Read more
personal account of accepting diagnosis of down's syndrome and then embracing and advocating the child and his/her needsPublished 11 months ago by Antoinette Sri
I have found this book difficult to get into because it is hard to follow the author's train of thought.Published 16 months ago by Natlynn Patton
This book is must read if your child or baby has Down syndrome. You may not agree with everything the author feels or goes through but will see lot of truth on how others deal... Read morePublished 20 months ago by Judy
Excited to read this book. My Minister spoke about it one Sunday at Church. She helps us to look at life differently.Published on July 26, 2013 by Marla Mcclary
I found this book an excellent resource re: Down syndrome. Like Jennifer, we had a son born with Down syndrome unexpectedly. Read morePublished on July 22, 2013 by M. Parker