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Road Map to Holland: How I Found My Way Through My Son's First Two Years With Down Syndrome Paperback – Bargain Price, April 1, 2008
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From Publishers Weekly
Copyright © Reed Business Information, a division of Reed Elsevier Inc. All rights reserved.
Kim Edwards, author of The Memory Keepers Daughter
I have been to Holland for eighteen years now, and this book brought back so many thoughts and feelings I had saved up that I felt an immediate sisterhood with Jennifer. I watched her deal with that same fear of the unknown that singed my heart, and I wept when she reached that crucial moment when she found that same place of self-forgiveness. No matter who or where you are in relation to a child with Down syndrome, these pages will be like signposts along your road, to give hope and a new way of seeing things. Its good to be able to see the potholes coming and be ready for them, and its good to know when to pull over and take the time to enjoy the breathtaking views that only happen on this road. Thank goodness for road maps!
Martha Sears, coauthor, The Baby Book: Everything You Need to Know About Your Baby From Birth to Age Two and author, 25 Things Every New Mother Should Know
What a remarkable book! With excruciating candor and exquisite generosity, Jennifer Graf Groneberg invites us into the deepest privacy of her innermost thoughts, feelings, fears, challenges and triumphs. Nothing is left out in this amazingly intimate and profound journal. She allows us into every nook and cranny of her life and we find ourselves firmly ensconced in her heart.
Emily Perl Kingsley, national spokesperson and advocate for people with disabilities and author of "Welcome to Holland"
This is the story of Averya child with Down syndrome who transformed his mothers broken heart into one filled with cheer, awe, and pride. He offers all new and expectant parents a powerful perspective on lifes greatest lessons.
Brian Skotko, M.D., M.P.P., Childrens Hospital Boston & Boston Medical Center.
Bursting with hope, Gronebergs account of mothering Avery highlights the triumph of love over fear. Its candid, vivid prose and poignant emotion make the story is difficult to put down and impossible to forget. Herein lies truth to be pondered and savored by every mother, every woman, every human being.
Kathryn Lynard Soper, editor of Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives
More About the Author
You can reach me by email at jennifer (at) jennifergrafgroneberg (dot) com.
Top Customer Reviews
She has for generations provided this invaluable wisdom for new parents of children with Down syndrome. In "Roadmap to Holland" we meet Jennifer, a new and compassionate companion on our journey raising a child who is both very different, and yet surprisingly similar to our other children.
Jennifer and her husband Tom had the perfect life; both writers, they lived on a peninsula on a lake in Montana; they worked in their home office down the hill from their home, surrounded by peace and tranquility of nature. Their life was enlivened by the joy of a young son, Carter. Just what inspired them to test fate by conceiving again? This question kept returning to Jennifer's mind as the difficulties in her journey to Holland began to reveal themselves. Twin boys, Bennett and Avery and were born seven weeks premature with the daunting possibility of lifelong repercussions. Just when Jennifer thought the news couldn't get worse, she was informed that Avery, her little blue-eyed boy with a full head of blond hair, had Trisomy 21, an extra 21st chromosome. Jennifer's first reaction, like so many, was an urge to flee, leaving all the fears behind. She, however being the valiant woman she is, stayed the course, and, for months commuted to the hospital, pumping her milk round the clock, holding her babies by turns, caring for her older son, longing for a full night's sleep, until, finally, her little boys came home, one by one to the little house by the lake.Read more ›
I appreciated Jennifer's honesty and openness, with her fears and struggles as well as her triumphs. I loved the emphasis on what her boys had in common rather than the ways in which Avery was so different.
The only criticism is that I would have liked to know what her life was like BEFORE one of her twins was diagnosed... it was hard to relate to the "after" when I didn't know how much change it brought to her life.
There's an extensive list of books for adults, books for older and younger children (both children with DS and brothers and sisters), DVDs, websites, national organizations....it is an extremely helpful list of resources, not to mention the addition of the touching essay "Welcome to Holland" by Emily Perl Kingsley. There are also chapter notes and a glossary of commonly used terms that were largely new to me. These were very thoughtful and helpful inclusions.
"Road Map to Holland" is a really well-written book. It's hard to read sometimes, it really is. The emotions expressed are so raw and painful. But through all the pain, there is a thread of hope that begins to run through Jennifer's narrative as she and Tom struggle through Avery's diagnosis and finding help for him, working with him, loving him. Their courage is both humbling and inspiring.
I originally checked this book out of the public library because of my new godson, who was diagnosed with DS. I thought it would help me understand some fundamentals and then I'd return it, glad about the knowledge I'd gained. But now I've decided that I have to own a copy: I've found I simply can't return it. It means too much to me.
Most Recent Customer Reviews
Jennifer wrote a beautiful story that made me feel like I wasn't alone on my journey. I love giving her book to parents that have just received a diagnosis along with the book... Read morePublished 3 months ago by kyouell
I was disappointed that this book did not offer the inspiration I was looking for. My sister is expecting a baby with DS and I was hoping to order a copy for her. Read morePublished on January 19, 2012 by Mardel
I would recommend any new parent to a child with Down syndrome to read this book. Neither myself nor my husband know anyone or have had any experience with Down syndrome, so this... Read morePublished on March 13, 2009 by Casey Slaton
The days drag on in this book. I had diffculty finishing it. It is sad that she had such a terrible time of adusting to her child. Read morePublished on February 8, 2009 by Ann Frances