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Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness (New Edition) Paperback – November 19, 2012


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Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness (New Edition) + How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers + The Chronic Illness Workbook: Strategies and Solutions for Taking Back Your Life
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Product Details

  • Paperback: 304 pages
  • Publisher: W. W. Norton & Company; New Edition edition (November 19, 2012)
  • Language: English
  • ISBN-10: 0393320650
  • ISBN-13: 978-0393320657
  • Product Dimensions: 8.5 x 5.5 x 0.9 inches
  • Shipping Weight: 12 ounces (View shipping rates and policies)
  • Average Customer Review: 4.4 out of 5 stars  See all reviews (43 customer reviews)
  • Amazon Best Sellers Rank: #530,468 in Books (See Top 100 in Books)

Editorial Reviews

From Library Journal

Donoghue and Siegel direct their book to healthcare providers, families, and patients dealing with invisible chronic illness (ICI)--those conditions that are chronic and disabling but not readily apparent to the casual observer. In Part 1, the authors define ICI, including brief descriptions of 13 diseases that fit their criteria. They discuss in clinical, detached language the impact of ICI on the patient, family, friends, and employers. In Part 2, Donoghue and Siegel speak directly to the patient, offering coping mechanisms to enhance quality of life through positive thinking, effective communication, and pain management techniques. They also include reading lists and "Illness Associations." While useful, their book suffers from the attempt to address too broad an audience. Recommended for larger collections only.
- Janet M. Schneider, James A. Haley Veterans Hosp., Tampa, Fla.
Copyright 1992 Reed Business Information, Inc. --This text refers to an out of print or unavailable edition of this title.

Review

An invaluable source of help and comfort to those who suffer from invisible chronic illness and to their caregivers and friends. -- Katharina Dalton, M.D.

How many times have you said to yourself, 'No one can understand how I feel unless they've experienced it themselves?' Because the authors of this book each have experienced an 'Invisible Chronic Illness' or ICI, they are able to express feelings that you have more than likely experienced but have not been able to put into words. This book validates your emotions and then helps you to express them in constructive ways. -- Network

One of the most helpful books about chronic illness that I ever run across....This book is captivating, informative, and sensitive. -- Allergy Aware

This self-help book by two Ph.D. psychologists (one of whom suffers from multiple sclerosis) is not new, just new to me, and what a discovery! It is a moving explication of what it means to live with an invisible chronic illness--ICI. If you have patients, acquaintances or if you yourself suffer from an ICI you can find valuable advice and guidance in this book. -- Ostomy/Wound Management

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Customer Reviews

More than anything I've read, this book "gets it."
N. Chick
Next I am passing this book onto my husband, might buy a few copies for relatives for Christmas and sending the link to the members of my chronic pain support group.
G. Jordan
This book was great for those living with chronic illness.
Amazon Customer

Most Helpful Customer Reviews

91 of 91 people found the following review helpful By "dannonb" on April 23, 2002
Format: Paperback
Unlike a lot of books with this theme, this one seems to do a good job of ferreting out the different ways that people deal with chronic illness. It is appropriate for most people with chronic illness, although it does focus on "invisible chronic illness". I was impressed that there were few places that made me want to roll my eyes and toss the book across the room. Usually books like this are filled with cheesy advice, such as "take time out for yourself" and "a good bubble bath can do wonders for your psyche". This one is written on a more intelligent level and talks about the real issues and challenges that face people with chronic illness and their caregivers.
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59 of 59 people found the following review helpful By A Customer on November 5, 1998
Format: Paperback
Excellent Guide to Emotional Health & Wellness I loved this book! Written by two psychologists who suffer from chronic illness, it offers hope and ways to cope. People with Crohn's, colitis, lupus, fibromyalgia, chronic fatigue, IBS, etc. will like this book because it's about invisible chronic illnesses in which the symptoms are not always externally apparent (like when your friend says, "You look just fine" but you're not). This can lead to lack of compassion, understanding, and strains relationships with family, friends, and coworkers. I especially like how the book helps focus awareness on illness and gives you ways to exercise greater control over it and over life in general. An extremely practical book, with techniques you will use in everyday life.
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94 of 99 people found the following review helpful By G. Jordan on August 23, 2000
Format: Paperback Verified Purchase
Hello, I have been diagnosed with several "invisible" chronic illnesses, meaning the symptoms are subjective for the most part and hard for others to "see" my pain and illness, therefore it is hard to get the support I need.
This book totally understands my experience, it validates every thing that has happened since I was diagnosed, and it helps me get the support I need. It is also excellent to give to others who you want to understand what you're going through. After reading this book, it will be impossible for anyone to ever say again "but you LOOK good".
I had an appt. with a doctor the other day and he saw the book in my hand and asked to look at it. He asked my opinion on it and said he had heard it was a great book. So I of course gushed on and on about it, how the authors truly understand the effects if ICI on our self-esteem, self-concept, the guilt and shame, the frustrations, the lack of support and the suspicion we are often confronted with because our symptoms are not visible (we don't have a wheel chair or a cane, or an easily recognizable condition). So he's going to buy it so he can understand what his patients are going through and be more helpful to them!
Next I am passing this book onto my husband, might buy a few copies for relatives for Christmas and sending the link to the members of my chronic pain support group. Pass the word, this is the book that will finally change how the world responds to us.
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31 of 32 people found the following review helpful By Amazon Customer on August 14, 2012
Format: Kindle Edition Verified Purchase
First off, this book helped me deal with some of the emotions I've been experiencing after being diagnosed. It's especially good at talking about self-doubt. When I feel well, it's easy to forget how sick I was before and I start doubting that I could ever have been that ill... and I start feeling guilty about how little I did during a flare up. It isn't productive, and this book helps put that in perspective.

On the other hand, as a non Christian, I found the book grating at parts. It clearly is written for Christans, and the occasional interjections about god and scripture really grated on my nerves. If I had known the book would be like this, I would not have bought it. Nothing in the book's summary indicates this, and I believe it should. That being said, the book does not center around Christianity, there are just some parts of the book that only make sense if you assume their audience is Christian. I found that assumption a bit jarring, as will many non Christian readers.
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29 of 30 people found the following review helpful By Nanci on December 31, 1999
Format: Paperback
I found this book extremely helpful, not only as a sufferer of CFS and fibromyalgia, but as a nurse caring for many patients with many chronic illnesses. Too often, I have heard doctors tell patients it was all in their head, or just go home and learn to live with it. Too often, I have felt I was just being lazy or crazy (the Z words) because standing in line and getting up in the morning required concentrated effort and will. All medical and health personnel should be required to read this book. It is written in easy, understandable language and so is appropriate for family of ICI patients and helpful for those suffering from chronic illness as well. Hopefully, some day research will give us clues as to why so many of these "syndromes" seem to be increasing in frequency. If you suffer from any chronic illness I salute you for your courage and strength.This book is for you.
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25 of 26 people found the following review helpful By drdebs on July 10, 2000
Format: Paperback
I was reminded how wonderful this book was when I picked up a copy for a friend who has just been diagnosed with an invisible chronic illness. One day, you go to the doctor and your whole life changes--forever. That's what it's like to be diagnosed with an ICI (MS, Lupus, thyroid conditions, Lyme Disease, etc.), and it can be an awfully difficult experience. The authors of this book have tried to put together some coping skills and have identified common responses to having one of these conditions, based on their own medical situation (both have ICI conditions) and their professional expertise as psychologists.
The real purpose of this book is to help people whose conditions are "invisible," and therefore ignored or underplayed in their daily lives and relationships. I would imagine that anyone who has an ICI has experienced at least once the "You're sick? You look all pink and healthy!" comment from a well-meaning friend. Actually, it's your medication, your lupus rash, or a chronic fever that gives you that oh-so-rosy glow. If this has ever happened to you or to a loved one, you will get a lot out of reading this book and realizing that you're not alone and that there are ways of coping with your condition.
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