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Silently Seizing: Common, Unrecognized, and Frequently Missed Seizures and Their Potentially Damaging Impact on Individuals With Autism Spectrum Disorders Paperback – August 28, 2012


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Silently Seizing: Common, Unrecognized, and Frequently Missed Seizures and Their Potentially Damaging Impact on Individuals With Autism Spectrum Disorders + The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism + Ido in Autismland: Climbing Out of Autism's Silent Prison
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Product Details

  • Paperback: 148 pages
  • Publisher: AAPC Publishing (August 28, 2012)
  • Language: English
  • ISBN-10: 1937473082
  • ISBN-13: 978-1937473082
  • Product Dimensions: 8.9 x 6 x 0.4 inches
  • Shipping Weight: 9.6 ounces (View shipping rates and policies)
  • Average Customer Review: 4.9 out of 5 stars  See all reviews (21 customer reviews)
  • Amazon Best Sellers Rank: #589,900 in Books (See Top 100 in Books)

Editorial Reviews

Review

As a board-certified behavior analyst who works with children with autism as well as being a mother to a teen with autism and a recently diagnosed seizure disorder, Caren Haine's book has been my guide book both in working with my students and getting my son diagnosed. The information has enabled me to provide additional supports to my students and my son in an area in which the medical community is far behind the cutting-edge research Caren shares. The format is very accessible breaking down a complex topic into very comprehensible parts using understandable language. --Tricia Polchowski, MEd, board-certified behavior analyst

Just as we parents are getting comfortable with the diagnosis of autism comes the fear of seizures. And sometimes it arrives at a time when puberty is starting to change what little consistency and control we had over this turbulent disorder in our child. Could the behaviors that we see be attributable to seizure activity? How will we know and what can we as parents do about it? This book, Silently Seizing, answers those questions and more. This is the 'go-to' guide every parent needs to read, to be referred to again and again. The family stories that are sprinkled throughout are both heart-wrenching and encouraging to read, especially for fellow parents. I refer to this book often when speaking to groups and consulting with parents and professionals. --Sally J. Colletti, BSW

Silently Seizing introduces the complex topic of seizures and autism in a manner that parents can understand. After reading this book, parents will be able to glimpse into their child's confusing world, and have yet another tool to help the child escape from it. I find addressing EEG changes very helpful in caring for children with autism in my office, and hope this book will encourage families and doctors to begin the journey themselves. --Ali Carine, DO, FAAP, C-OMM/NMM

Just as we parents are getting comfortable with the diagnosis of autism comes the fear of seizures. And sometimes it arrives at a time when puberty is starting to change what little consistency and control we had over this turbulent disorder in our child. Could the behaviors that we see be attributable to seizure activity? How will we know and what can we as parents do about it? This book, Silently Seizing, answers those questions and more. This is the 'go-to' guide every parent needs to read, to be referred to again and again. The family stories that are sprinkled throughout are both heart-wrenching and encouraging to read, especially for fellow parents. I refer to this book often when speaking to groups and consulting with parents and professionals. --Sally J. Colletti, BSW

Silently Seizing introduces the complex topic of seizures and autism in a manner that parents can understand. After reading this book, parents will be able to glimpse into their child's confusing world, and have yet another tool to help the child escape from it. I find addressing EEG changes very helpful in caring for children with autism in my office, and hope this book will encourage families and doctors to begin the journey themselves. --Ali Carine, DO, FAAP, C-OMM/NMM

About the Author

Caren Haines is the mother of a 24-year-old son diagnosed with autism as a young child. As a registered nurse, Caren relied upon her nurse's training to assist her in deciphering the origins of many of her son's perplexing behaviors. Based on knowledge gained from years of intensive research she compiled for this book; as well as, information provided by top researchers in the field of autism, Caren is helping families become free from the debilitating symptoms of silent seizures and psychosis. She is also co-author of a children's book, Georgie, The Flying Dog, which explores the concept of unconditional love and acceptance of our differences.

Customer Reviews

4.9 out of 5 stars
5 star
86%
4 star
14%
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See all 21 customer reviews
This book is a must read for every parent with a child on the spectrum, whether they have detectable seizures or not.
inasy
Life changing as control of seizures is a major indicator of long-term prognosis and the ability to achieve optimal outcomes!
Jaclyn
I tend to go a little crazy when first faced with a situation like this... feel like nothing is ever going to get better.
schleppenheimer

Most Helpful Customer Reviews

8 of 8 people found the following review helpful By Ciré on February 19, 2013
Format: Kindle Edition Verified Purchase
I have gone misdiagnosed for years! I went to see a neurologist and I'm on the right medication for my 'Silent Seizures'. Feel so much better and I'm much more productive. My only problem with this book is that the stories become more and more dramatic so quickly. More space should have been allotted for the more subtle cases because this book can scare those who have these seizures unnecessarily and relatives who read the book hoping for a clearer understanding can begin to think the worst is coming. Four stars for the help, but for those who have these seizures calm down and let the medical community be your guide. The younger neurologists understand these seizures and their are many new medications available. Go for it. Get the help you need and deserve!
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7 of 7 people found the following review helpful By Judy Endow on February 19, 2013
Format: Paperback
As an autism consultant to school districts and organizations on behalf of those with autism this book has been an eye-openner to me! This well researched and written text with the added documentation by Nancy Minshew, a leading researcher in the autism field, is very much appreciated. Regardless of how many FBAs we do in our schools and clinics, if silent seizures are at the root of the behavior, the behavior won't be significantly impacted until the seizures are addressed through the proper medication.

Thanks to Caren Haines for weaving together autism, neurology, psychiatry and research in an academic, yet practical manner to create this book - important for those in the field of autism and written in a way that anyone interested can easily understand!

Book Chapters:
1. Josh's Story
2. What Autism Is...and Is Not
3. Common Genetic Disorders Found In Both Autism and Epilepsy
4. What Are Brain Seizures?
5. Recognizing Silent - or Partial - Seizures
6. Diagnosing and Treating Seizures and Co-Occuring Conditions
7. Neurofeedback and Other Promising Treatments
8. Family Stories
9. A Psychiatrist's View
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5 of 5 people found the following review helpful By adele on November 11, 2012
Format: Paperback
This is an obviously well researched book coupled with personal experience. The input by Nancy Minshew, MD has been invaluable to the accuracy of the information.

Silent Seizures are not only silent in the respect that they are difficult to detect, diagnose and recognise but `silent' also in the respect that so few people are aware of this possible aspect of autism.

Not every autistic child will have silent seizures but there are many that probably do and don't even know that this is the cause of some of their behaviours.

I found this book extremely interesting and enlightening and am investigating further to see if this could be a possible explanation for some of my own son's unpredictable violent outbursts.

The information is presented clearly and methodically and although it is a complicated subject it is explained in a manner that is very easy to understand, I commend Caren for doing an excellent job of making this book easy to understand and apply.

The personal touches and inclusion of her own son's experiences along with other family stories helps to make this informative book not to become a dry instructional manual but a true pleasure to read.

Disclaimer: I received a free copy of this book in exchange for an honest review.
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4 of 4 people found the following review helpful By Joanna Keating-Velasco on November 30, 2012
Format: Paperback
When I saw the title of this book, Silently Seizing, by Caren Haines releasing, I thought I must get a copy of this book. As an intructional aide who has worked with students ranging from age 3 through 22 with severe challenges, I am extremely interested in this mysterious challenge of the silent seizures. Until I started this job 13 years ago, I was unaware of any seizures other than the typical seizures associated with people with epilepsy. This book includes those seizures in order to differentiate them from the less noticable and less diagnosed "silent" seizures.

From beginning to end, I was memsmorized by the amazing data, description and personal accounts shared to help the reader better understand these hard-to-discern seizures that can lead to major physical and behavioral challenges that are often attributed to other causes. This misdiagnosis can be a major disservice to the individual experiencing these seizures and, in turn, contribute to major challenges for those family members and classmates impacted by these individual's behaviors.

I found it amazing how much the medical community relies solely on the EEG to determine if an individual experiences any seizures when, in fact, many seizures are not typically seen on the EEG while testing.
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4 of 4 people found the following review helpful By Philip A. Moore on April 28, 2013
Format: Kindle Edition Verified Purchase
as some who has been diagnosed as asperger I found this book to be very enlightening and explained thing that I did not know were
related to being aspergers thing like the day I got box in my vision . the eye doctor did not know what it was it turned out to be seizure related I would not have known that with out reading this book.
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Silently Seizing: Common, Unrecognized, and Frequently Missed Seizures and Their Potentially Damaging Impact on Individuals With Autism Spectrum Disorders
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