Customer Reviews

The Sjogren's Syndrome Survival Guide

5 star:		(7)
4 star:		(2)
3 star:		(1)
2 star:		(1)
1 star:		(1)

 

 

This new book offers a wealth of information on both the medical and psychological aspects of Sjogren's syndrome. It gives the reader a comprehensive, but plain spoken, perspective on living with this complex disease.

Dr. Teri Rumpf is a clinical psychologist and Kathy Hammitt is Past President of the Sjogren's Syndrome Foundation. Both authors have Sjogren's Syndrome. Because of their personal and professional qualifications they are able to describe the subjective and objective aspects of the disease.

This book is totally captivating. It reads like a novel. It is guaranteed that the reader will see themselves over and over again throughout the book. The medical section include chapters on how Sjogren's is defined and what makes the diagnosis, as well as chapters on the ways in which Sjogren's affects different parts of the body and the various treatment options available. Chapters on living with the illness include sections on the doctor/patient relationship, relationships with family and friends, and riding the emotional roller coaster with which we can all identify.

Additional chapters discuss adaptation to life with a chronic illness, healing, work, and the hope that research currently offers. There is a section on Resources that is useful to those who are newly diagnosed or to those who have had the disease for many years.

The explanation of all of the abnormal blood work that accompanies Sjogren's, in the chapter entitled "What Makes a Diagnosis," is particularly useful. It answered so many of my questions. The chapter on relationships dealing with family and friends really hit home. Every reader will be able to identify with this section.

The Sjogren's Syndrome Survival Guide offers information in a way that readers without sophisticated medical knowledge or psychological backgrounds can understand, but it does not oversimplify. This is a book that both healthcare professionals and patients will benefit from reading. The authors give a well rounded picture of living with the disease and they do not sugarcoat it. They make it clear that knowledge is power and that is important for patients to be well informed and educated.

This is a welcome addition to the small, but growing, arsenal of books on Sjogren's Syndrome.

One book, even a great one, is not likely to make Sjogren's into a household word, but this one does all it can to explain what it's like to have Sjogren's Syndrome.

The number of books avaiable on Sjogren's Syndrome are very limited, and this book is a welcome addition. I found it to be informative, easy-to-read, and honest. I liked the frankness of this book as it portrayed a realistic picture of what life is like for people who have Sjogren's. This book covers a wide range of topics and does not make light of life with Sjogren's. I could relate to much of what was written. Also, this "survival" guide does not offer easy solutions on how to "conquer" Sjogren's. It recognizes that Sjogren's cannot be conquered but, at the same time, it provides the reader with realistic and helpful suggestions on how to cope with this illness. It also recognizes both the variability of how the illness affects people, as well as the commanalities that we all may share. My thanks to Dr. Rumpf and Ms. Hammitt for taking the time to write The Sjogren's Syndrome Survival Guide.

I was recently diagnosed with Sjogrens and have now read most of the books out there. This one, while good with the emotional issues of dealing with a chronic illness, is severely lacking if you are looking for treatment options. Yes, it provides the standard treatments for dry eyes and dry mouth (as do pretty much all of the sources out there) but if you have any additional manifestations whatsoever (especially extraglandular issues) you will find no help here. Yes, it does tell you that Sjogrens can affect your lungs, for example, but it goes no further than that (no treatments to pursue, no suggestions whatsoever). There are much better books for your money (for the most comprehensive quick-read try Positive Options for Sjogrens Syndrome by Sue Dyson).

I really enjoyed this book because it deals with the emotional and psychological effects of having a chronic illness. Sometimes when patients are diagnosed with autoimmune diseases they feel very frightened and alone...this book lets people know that others can totally empathize and relate to what they are experiencing. It gives advice on what to look for in a doctor (many are ignorant of autoimmune diseases!), and how to cope with people who just don't understand the debilitating impact of Sjogren's. I recommend this book in conjunction with the New Sjogren's Syndrome Handbook, which maps out the biomedical aspects of the disease.

A lifesaver for recently diagnosed patients. The book covers so may aspects of a very complex disease. Written by People who know the disease.

This book is the perfect companion for dealing , day to day, with this perplexing disease. There are so many different symptoms, and they combine in such a varied degree that most of us feel at a loss as to what to do. This book will become your constant reference companion, giving you information and ideas that, often, not even your Dr. can supply.

If you knew nothing about Sjogren's this would be the book for you. I had read about this syndrome online so it really didn't tell me anything I didn't already know.

This book was a great source of information.It was wonderful and patient friendly.After being given a diagnosis of Sjogren's Syndrome, I really didn't know what it meant,but after reading this book it made a lot of things clearer.This is a must read for anyone with this syndrome.My money was well spent.

Purchased this book for my Mother who was diagnosed with Sgogren's Syndrome, a disease we had never heard of. It helped us understand. Easy to read and understand.

This is a good book for readers who need basic information about Sjogren's Syndrome. For those who have read the information on Internet sites such as Johns Hopkins, NIH, and Mayo Clinic, there isn't much more to add to that free medical information. This book does have useful information about dealing with the emotional consequences of Sjogrens that those sites don't offer, and it may be helpful for those who seek guidance in that area. The type face is fairly large and easy read, so great for senior readers. I thought much of the self help advice to be basic common sense and things the Dr has already suggested. There is a resource section with useful addresses, but as the book is now 5 years old, the addresses and phone numbers may need updating.