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Speaking Our Minds: Personal Reflections from Individuals with Alzheimer's Hardcover – March, 1999


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Product Details

  • Hardcover: 200 pages
  • Publisher: W.H. Freeman & Company; First Edition edition (March 1999)
  • Language: English
  • ISBN-10: 0716732246
  • ISBN-13: 978-0716732242
  • Product Dimensions: 5.8 x 0.7 x 8.5 inches
  • Shipping Weight: 10.4 ounces
  • Average Customer Review: 4.7 out of 5 stars  See all reviews (12 customer reviews)
  • Amazon Best Sellers Rank: #3,268,297 in Books (See Top 100 in Books)

Editorial Reviews

Review

"Speaking Our Minds shows us the pain, humanity and courage of individuals with Alzheimer's Disease. It is a much needed and much appreciated book." -- Peter V. Rabins, M.D., Professor of Psychiatry, The Johns Hopkins University School of Medicine

"A sensitive and compelling view of the perspectives, symptoms, issues, and personal reactions of individuals diagnosed with Alzheimer's Disease . . . This is a book to be read, reread, and passed on to others." -- The San Diego Chapter Alzheimer's Association Newsletter

"A sensitive portrayal of, and personal accounts by, people who have Alzheimer's disease." -- Family Caregiver Alliance Update

"An important book for anyone whose life has been touched by Alzheimer's." -- Feminist Bookstore News

"Finally, a book that answers those questions caregivers ask most often: 'What does my loved one know about the disease? What does he feel? What does she think?' The poignant vignettes combined with clinical explanations make this the best book on Alzheimer's disease to date." -- Anne M. Johnson, Publisher, Florida Care Giver Magazine and co-author, The Cost of Caring: Money Skills for Caregivers

"Inspiring reflections abound in the perspectives and narratives of these "patients" and the social worker/narrator. This book is for everyone living in a world with Alzheimer's Disease." -- Lisa P. Gwyther, MSW Director, Family Support Program Duke University Center for Aging

"Lisa Snyder performs an important service in this excellent introduction to the experience of persons with Alzheimer's disease. . . . Consistently thoughtful and illuminating." -- Stephen G. Post, Ph.D., author of The Moral Challenge of Alzheimer Disease and Professor of Biomedical Ethics, School of Medicine, CWRU

"Lisa Snyder skillfully weaves a tapestry of what Alzheimer's disease is really about by reporting on conversations with diagnosed people. By reading these, and Snyder's commentary, fellow travelers, caregivers and health care providers will find further insight into Alzheimer's disease." -- Michael Livni, Member of the Executive Committee of Alzheimer's Disease International

"This is the best book I've ever read on Alzheimer's disease. . . . Ms. Snyder's work teaches us a deep respect for the uniqueness of each individual with Alzheimer's disease; and that the most profound way to learn is to listen." -- Robyn Yale, LCSW, Clinical Social Worker and Consultant to theAlzheimer's Association

"[Speaking Our Minds] offers a different perspective about Alzheimer's disease. It can give social workers, physicians, and other professionals a small sense of what someone feels who suffers from this disease.... More importantly, [it] gives encouragement and permission to discuss the diagnosis, changes, and feelings with the individual who has been diagnosed with Alzheimer's disease." -- NASW California News

From the Back Cover

"Speaking Our Minds shows us the pain, humanity and courage of individuals with Alzheimer's Disease. It is a much needed and much appreciated book."
--Peter V. Rabins, M.D., Professor of Psychiatry, The Johns Hopkins University School of Medicine

"Lisa Snyder performs an important service in this excellent introduction to the experience of persons with Alzheimer's Disease . . . Consistently thoughtful and illuminating."
--Stephen G. Post, Ph.D., author of The Moral Challenge of Alzheimer Disease and Professor of Biomedical Ethics, School of Medicine, Case Western Reserve University

"Inspiring reflections abound in the perspectives and narratives of these patients and the social worker/narrator. This book is for everyone living in a world with Alzheimer's disease."
--Lisa P. Gwyther, MSW, Director, Family Support Program, Duke University Center for Aging

"Lisa Snyder skillfully weaves a tapestry of what Alzheimer's disease is really about by reporting on conversations with diagnosed people. By reading these, and Snyder's commentary, fellow travelers, caregivers, and health care providers will find further insight into Alzheimer's disease."
--Michael Livni, Executive Committee of Alzheimer's Disease International

"This resource enhances understanding of where individuals with Alzheimer's disease are going or where they have been. Whatever stages of infirmity, these individuals and their caregivers will benefit from these personal insights into a unique journey."
--Joy Glenner, President/CEO, The George G. Glenner Alzheimer's Family Centers, Inc., San Diego, California

"This is the best book I've ever read on Alzheimer's disease."
--Robyn Yale, LCSW, Clinical Social Worker and Consultant to the Alzheimer's Association, author of Developing Support Groups for Individuals with Early-Stage Alzheimer's Disease


More About the Author

Lisa Snyder is a native Californian. Since 1987, she has been a clinical social worker and Director of the Quality of Life Programs at the University of California San Diego's Shiley-Marcos Alzheimer's Disease Research Center where she is internationally recognized for her work in issues of early-stage Alzheimer's. She is editor of the international quarterly, "Perspectives - A Newsletter for Individuals with Alzheimer's or a Related Disorder" which provides a forum for people with Alzheimer's around the world to share their experiences and messages with one another. She is also author of the books "Speaking Our Minds - What it's Like to Have Alzheimer's" (revised in 2009) and "Living Your Best with Early-Stage Alzheimer's - An Essential Guide" (2010). Lisa continues to learn daily from the stories and experiences of the families she works with at the Alzheimer's Disease Research Center and consults both nationally and internationally on early-stage Alzheimer's issues. She resides in San Diego with her husband Jeff Irwin, an artist and ceramics professor who cared of his own mother with Alzheimer's. Lisa and Jeff both maintain an avid love of travel, the outdoors, and the arts.

Customer Reviews

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Ms. Synder demonstrates both compassion and admiration toward those she writes about.
Peter C. Winkler
I recommend this book highly for spouses, caregivers, and others closely involved with people with Alzheimer's.
Laurelton
This is a wonderful book from the perspective people suffering from Alzheimer's disease.
Melora

Most Helpful Customer Reviews

19 of 19 people found the following review helpful By M KIRK-DUGGAN on July 17, 2002
Format: Paperback
Being recently dianosed with CRS, see my review of Shenk's "The Forgetting," I want to know from others who have been there, what is ahead of me. I am a member of two ALZ support groups, one mixed, and one for ALZers by themselves. Recently at a social party where I was experiencing data overload, I confided to a woman of my own age, that I was diagnosed with ALZ. She immediately said she was also, and we immediately began comparing symptoms, just as other ALZers do when their caregivers are not around!
This book fullfills my needs for the stories from those who are there. No story fits me exactly, yet parts of each show me that I am not unique, that I need not fit the popular mold, e.g. "Iris," of where and who I am. Just as the 42 stories at the rear of "Alcoholics Anonymous" give understanding and light to those afflicted with another incurable pathology, so do these bring hope and understanding to me: "I Am Not Alone!"
There is an abundance of tomes dealing with the diagnosis and care of ALZers. Those few books which let one ALZ speak to another ALZ are far between. ["Living in the Labyrinth" by McGowan is another in this small select company.]
If you, a friend, or a relative has ever been given a tentative or conclusive diagnosis of ALZ, run, don't walk, to get a copy of "Speaking Our Minds" to them. If like me, their reading capabilities have substantially deteriiorated, please, please read it to them!
"Reverse Mike"
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10 of 10 people found the following review helpful By dkuhn@rush.edu on April 14, 1999
Format: Hardcover
Lisa Snyder has done a magificent job of putting a human face on this terrible disease affecting nearly 5 million Americans and 18 million worldwide. The seven narratives recounted in this book are filled with information and insights that any newcomer to the disease will appreciate. Mixing verbatim remarks of men and women with the disease along with the author's solid commentary is a refreshing approach to understanding the disease. These stories are illuminating,sad,inspirational, and informative. Not everyone with the disease can be as eloquent as the people quoted in this book but their perspectives can shed light on the experiences of others with the disease. My only criticism is that I wanted to read more personal stories than the seven presented in this beautifully written book. As a social worker and an education director at an Alzheimer's center, I look forward to recommending this book to families and professionals alike. We need more stories like these to be told from the viewpoint of those with the disease. The author has made a major contribution to the growing literature on the early stages of Alzheimer's disease.
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10 of 10 people found the following review helpful By Kathy Laurenhue on January 8, 2000
Format: Hardcover
As a trainer and consultant in the field of Alzheimer's disease, I constantly suggest that conference organizers enlist a panel of people with dementia to tell their stories directly to the audience. I also suggest that caregivers regularly ask people with dementia how they feel about events and situations -- What causes distress and what brings comfort? Now there is Lisa Snyder's book which does just that. Here are the real stories of seven individuals -- each experiencing dementia, but each a unique individual. Lisa is compassionate and understanding in helping them to tell their stories, but she celebrates their humanity; she does not pity them. Her interspersed comments are helpful and revealing, adding to our under-standing of the disease. When I cannot bring a person with Alzheimer's disease to my class, I bring this book and quote from these delightful, very human life stories. This book is definitely on my "must have" list.
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12 of 13 people found the following review helpful By Peter C. Winkler on May 29, 2000
Format: Paperback Verified Purchase
This book is suitable for anyone involved in the struggle with AD as well as the general public. I am the husband and caretaker of a wife who was diagnosed five years ago at the age of 53. I am also a social worker, and as I read this book I felt proud that a fellow social worker had written it. This book is full of up to date information concerning AD and it also provides an insightful look at seven individuals who are coping with AD. Lisa Synder has actually worked with people with AD for over a decade and she combines thoughts of persons suffering from AD with her own observations. In most of the vignettes, she writes about an initial interview and then she returns several years later to continue the dialogue and to bring us up to date in the situation. Ms. Synder demonstrates both compassion and admiration toward those she writes about. In the course of this book she dispells many of the misconceptions held by the public concerning AD. I don't think that anyone who reads this book will be disappointed.
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9 of 10 people found the following review helpful By A Customer on April 23, 1999
Format: Hardcover
Afraid and adrift at the possibility of a loved one being diagnosed with Alzheimer's Disease, I raced to the library for more information. I ordered and skimmed every book on the subject, ranging from the medical perspective and clinical analysis, to the caregiver's perspective of increasing dilemmas to cope with. Nothing sustained or illuminated me.
Fortunately, a well-read bookstore owner referred me to "Speaking Our Minds: Personal Reflections from Individuals with Alzheimer's". At last. The missing perspective of people themselves. So what happens? How do they feel? How do they cope? HOW CAN I HELP?
For those who love deeply, this is a book to help guide the way to a new depth of understanding, personhood, relationship, and loss of fear, in relation to anyone with illness.
This is a transcendant book. Nothing is given. Everyone is unique. There are medical realities we know at this time, and there are new realities emerging at this time. But, if we know nothing when confronted with illness, then we know all, because kindness can begin, and kindness can end.
I would recommend this book as required reading in every high school, college, and graduate school on the subject of the nature of illness and relationship, but firstly to you, and to me, who travel the road of the affirmation of the human spirit.
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