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I'm Still Here: A Breakthrough Approach to Understanding Someone Living with Alzheimer's
 
 
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I'm Still Here: A Breakthrough Approach to Understanding Someone Living with Alzheimer's [Bargain Price] [Hardcover]

John Zeisel (Author)
4.3 out of 5 stars  See all reviews (15 customer reviews)


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Book Description

1583333355 January 22, 2009
A glass-half-full look at Alzheimer’s that reveals how to connect with someone through the fog of the disease.

As many as five million Americans are living with Alzheimer’s. The popular perception of the disease is that people who receive an Alzheimer’s diagnosis are lost to themselves and to those who love them—and that they have no future. But as John Zeisel, an innovator in nonpharmacological approaches to treating Alzheimer’s, makes clear in this book, this view is wrong. The disease often lasts ten to fifteen years—a time span that definitely constitutes a future. In I’m Still Here, Zeisel shows that during the course of Alzheimer’s, caregivers can have a vibrant and meaningful relationship with people who have the disease.

I’m Still Here focuses on connecting with individuals with Alzheimer’s through their abilities that don’t diminish with time, such as understanding music, art, facial expressions, and touch. Zeisel demonstrates that people who have the disease are highly creative and emotionally intelligent. By harnessing these capacities, and by using other approaches to treatment—such as building memory cues into their living environment, which encourages independent movement and helps eliminate sources of frustration—it’s possible to offer them a quality life with connection to others and to the world.

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Editorial Reviews

Review

'A book that will give great hope and encouragement to anyone dealing with Alzheimer's sufferers either in a professional situation or at home' BOOKSELLER 'I'm Still Here offers a revolutionary yet pragmatic map for the compassionate care of people with cognitive impariments like Alzheimer's disease. John Zeisel's brilliant, soft-spoken, and heartwarming manifesto is a must read for anyone whose life involves helping someone with these special needs, a guide to new ways to connect to the person, not the disease' DANIEL GOLEMAN, author of EMOTIONAL INTELLIGENCE 'Just as the Alzheimer's 'perfect storm' is about to strike, wth an anticipated tripling of the number of people with the disease, comes a culture-changing book, I'M STILL HERE, with practical ways that enable families and professionals to look beyond the disease and then to find ways to emotionally connect with the person who is still there. This approach is truly and active treatment for dementia far more effective than any pill yet available' PAUL RAIA, PhD, Vice President, Patient Care and Family Support, Alzheimer's Association, Massachusetts and New Hampshire Chapter 'John Zeisel understands the importance of living environments and their influence on the Alzheimer's patient. He displays compelling sesitivity to the patient as well as caregivers, and he explores in detail creative ways to enhance the patient's quality of life. I recommend thi sbook to anyone seeking a better understanding of this disease and its compassionate treatment, as well as the nurturing properties of thoughtfully and sensitively designed architecture' ROBERT H. SCHULLER, founding pastor, Crystal Cathedral 'Dr. Zeisel has provided a fresh approach to an old disease. By focusing on the assests and capabilities of the person with Alzheimer's, rather than the deficits and losses, he offers not only hope, but a renewed sense of the possibilities for continued connection and communication throughout the course of the disease. As science battles to eradicate the disease, Dr. Zeisel combines knowledge from the neurosciences and environmental sciences to support his practical, sound, and creative advice and apporaches for caregivers' CORNELIA BECK, PhD, RN, FAAN, Louise Hearne Chair in Dementia and Long-Term Care, University of Arkansas for Medical Sciences 'John Zeisel proves a theory that many of us who love someone with Alzheimer's have suspected: that the person who is changed by the disease is still inside, waiting to be awakened and nurtured with love, with music, with paintings, and with poems, as well as one-on-one communication and physical and mental exercises. As the number of people with Alzheimer's continues to rise, this is a wonderful, much-needed book' MARY ELLEN GEIST, author of MEASURE OF THE HEART 'In this book John Zeisel illuminates the nature and needs of perons with Alzheimer's disease at all points in the course of their condition. Dr. Zeisel has developed important innovations that serve the emotional and intellectual needs of persons with Alzheimer's such as the museum tours program and other arts and design programs. The programs and related strategies for life enrichment described in this book can improve the lives of persons with Alzheimer's and those who love and care about them' BARRY REISBERG, MD, Professor of Psychiatry and Clinical Director, aging and Dementia Research Center, New York University School of Medicine 'A must read for all those who do - and all those who don't - live with the symptoms of dementia' RICHARD TAYLOR, author of Alzheimer's from the Inside Out --This text refers to the Paperback edition.

About the Author

John Zeisel is the president and cofounder of Hearthstone Alzheimer Care. He developed the Artists for Alzheimer’s™ program, which involves guided museum tours for people with the disease. He holds a Ph.D. in sociology from Columbia University, and has taught at Harvard, Yale, and McGill universities. His work has been covered in The New York Times; O, The Oprah Magazine; The Boston Globe; and on ABC, CNN, and the BBC.

Product Details

  • Hardcover: 272 pages
  • Publisher: Avery (January 22, 2009)
  • ISBN-10: 1583333355
  • ASIN: B0028N72QM
  • Product Dimensions: 9 x 6.2 x 1.1 inches
  • Shipping Weight: 1 pounds
  • Average Customer Review: 4.3 out of 5 stars  See all reviews (15 customer reviews)
  • Amazon Best Sellers Rank: #713,463 in Books (See Top 100 in Books)

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Customer Reviews

15 Reviews
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Average Customer Review
4.3 out of 5 stars (15 customer reviews)
 
 
 
 
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30 of 32 people found the following review helpful:
5.0 out of 5 stars I'm Still Here, April 29, 2009
I am an RN, and have a mother with Alzheimer's. I have read at least 5 books on this subject, but when I found "I'm Still Here", I was very so surprised. This book is the best I have read so far, it is the most beautiful, compassionate and helpful book for everyone being in contact with a person suffering from Alzheimer's disease. You will be so glad you read it! I sent it to my dad who is the caregiver for my mom. He was somewhat skeptical; I had suggested other books before. But when he started reading this one, he emailed me "I wish I had had this book a year ago".... Please, give yourself the gift of this book.
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17 of 21 people found the following review helpful:
3.0 out of 5 stars This mixed Bag has Some Good Tips, November 21, 2009
This review is from: I'm Still Here: A Breakthrough Approach to Understanding Someone Living with Alzheimer's (Hardcover)
This book may be helpful and appreciated by readers who don't understand the behavioral changes that the Alzheimer's victim manifests and need to be told that there is- indeed still a person in there. I use the word "victim" even though Zeisel prefers to call them "people living with Alzheimers" because Alzheimer's disease not only predictably produces a downward spiral toward death but changes the very essence of who the victim is- including social roles and self- care abilities such as dressing or bathing and ultimately the ability to swallow food. They are indeed victims of what might be considered one of the most terrifying diseases.

Zeisel also uses another euphemism- the word "partner" instead of "caregiver"- almost as though to minimize the devastation experienced by spouses, friends and children as they lose previous social relationships (especially of spouses), take on the burden of making financial and health care decisions and endure the physical demands of dressing, toileting and feeding another person. This is not a partnership. It is the caregiver who is responsible for finding financial assistance for home care or a facility that provides adequate care and stimulation.

I'm Still Here offers some good tips on behavioral interventions and setting up the environment to promote quality of life and decrease agitation. The Arts program as described provides the much needed social and sensory stimulation many memory impaired individuals lack. But all of this stimulation can be provided with meaningful photographs, music, familiar movie clips and other personalized sensory stimulation modalities such as smelling the familiar aroma of apple pie. I do not believe that the person whose altered brain results in inaccurate visual perceptions, loss of speech and confusion in general has increased emotional connections that makes her especially good at art appreciation, although that sounds like a very inviting concept.

People with Alzheimer's disease live in the present and they respond to loving voice and touch because-well we all do, but they are especially responsive to sensory stimulation because when they can no longer have discussions or do complex tasks- they relate through their senses rather than higher cognitive processes. Occupational therapists are health care professionals (not mentioned in the book) who specialize in evaluating the patient's cognitive, sensory and motor abilities and adapting the environment and activities according to skill levels and as a result help the person achieve the best possible quality of life. Occupational therapists can help caregivers provide the type of sensory stimulation which may or may not involve the arts- to stimulate and promote social connections.

Zeisel describes his approach to Alzheimer's disease as a glass half full and relationships between people living with alzheimer's and their "partners" as filled with many gifts. If this half full glass analogy promotes family involvement and a half empty glass perspective keeps caregivers away - please do keep filling the glass. As an occupational therapist who advocated for and stimulated her mother during her eight years of institutional living, I also had many positive experiences, including a closer relationship and knowing that I helped my mother receive the best care possible. If Zeisel's book encourages other care givers to do the same- I would consider his book a gift.
Barbara Smith, M.S., OTR/L author of Still Giving Kisses: A Guide to Helping and Enjoying the Alzheimer's Victim You Love

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2 of 2 people found the following review helpful:
5.0 out of 5 stars A wonderful book about how the arts are powerful tools to reach and interact with those living with Alztheimer's, February 1, 2010
This review is from: I'm Still Here: A Breakthrough Approach to Understanding Someone Living with Alzheimer's (Hardcover)
I am an expressive arts therapist and have been working with individuals and groups with Alztheimer's for 30 years and I loved the book, I'm Still Here. Thank you Dr. Zeisel for your thoughtful research and insight into the life of those living with this challenge. I also enjoyed the Documentary, I Remember Better When I Paint. I work in some of the best assisted living and nursing homes in the Boston area and all believe that art, dance, music and drama are powerful ways to touch the hearts of these individuals. With continued research and documentation about these modalities, they will be better understood and trusted. Great job. Susan Swanson M.A.,ATR
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New York City, World War, Bowery Poetry Club, Museum of Modern Art, Humphrey Bogart, Little Star, Alzheimer's Association, Thich Nhat Hanh
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