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Talking to Myself : The Inspirational Journal of a Mad Caregiver
 
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Talking to Myself : The Inspirational Journal of a Mad Caregiver [Spiral-bound]

Bernadette McKiernan (Author)
5.0 out of 5 stars  See all reviews (2 customer reviews)


Out of Print--Limited Availability.



Book Description

October 17, 1998
In my book, the readers become eye-witnesses to our unique and very human father-daughter relationship at a very difficult time in our lives. They will take a bracing emotional roller coaster ride with us, sometimes agreeing only God could have been at the switch! Ultimately, however, the roller coaster arrives from the tunnel of dark despair to the light of pure joy in seeing my father's frequent improvements in his Alzheimer's disease. One becomes keenly aware of the challenging job I took on by struggling along with me. They will go into the frightening recesses of hospitals to see how patients like my father are treated by today's overworked and sometimes, insensitive staff, experiencing with me my more profound feelings of anger, frustration and righteous indignation. They will take a car ride with us as I attempt to take Dad out and about..."to see, taste and feel life. He has to do stuff...otherwise how can he remember things". They will delight in Dad's feelings of happiness as he enjoys children's enchanted play. With love and prayer, I go from a woe-is-me caregiver to a daughter falling in love with her father all over again. I strive to transcend the disease process itself through constant interactions by myself as well as other dedicated people (in and out of immediate family), with the help of my "Battle Plan" (included in the book), excerpts as follows:

...2)If possible produce a video of all key people. Photograph albums are, of course, a great supplement.
...4)It is vitally important to have patient still involved with friends and family and the community-at-large.
...8) Music does pierce through the 'fog' of Alzheimer's as reported in recent articles.
...19) Have patient join an appropriate Alzheimer's group for better cognitive functioning. I recommend a support group for you too!!

Doctors have said that my father's Alzheimer's was reversed by a year using these techniques.

I also reconfirm the idea that life's true meaning is centered on our relationships with one another, and in the memory of such relations, seen through the quagmire of sickness and death. I show that with the help of this caregiver's "companion and Battle Plan", this ravaging disease can be fought and won, thus allowing the patient to live with more dignity and less suffering. I show too that it IS possible to have a more eclectic and integrated approach to caregiving thus allowing the patient to live AT HOME (when at all possible), with the help of family, friends, and daycare/overnight centers; still fitting in and enjoying the bounty of this giant candy store we call LIFE.

The spotlight sometimes falls on our dark moods, and sometimes on those wonderful life-restoring, fun-filled days. More importantly, it brings into focus my father's personal feelings that so desperately had to be made clear. A quote from Dad after telling me some of his more repetitive, convoluted stories, "I want people to know who I was, that's why I tell my stories. What he's really saying was "I'm human just like you. Love me still!" It is a bid not only for appreciation of what the caregiver goes through but for what Alzheimer's patients experience told through touching poetry, prose and personal observances.

The reader will also realize what an important part music plays in the life of an Alzheimer's patient and how it's magic can reach deep into the human soul...

There are also side-splitting malapropisms from Dad himself, funny vignettes from fellow caregivers, heart-warming family pictures and "on-the-go" pictures. I also offer relevant and helpful information from "How to Manage Difficult Behaviors" to where to find the daycare and the overnight care centers, etc.

This is dedicated to the sometimes invisible members of our society and their unsung heroes who bring these patients to the Table of Life...just like everyone else, since INCLUSION is the main theme of the book.

I attempt to try to show most sides of the caregiver/patient relationship and hope that the reader may be lifted up, finding some comfort, a smile, or a cathartic release, easing frustrations during this life-altering journey!

I believe that my book has great human interest and would definitely appeal to a general audience. I was told by one reader that she was affected very viscerally by the book and that it simply blew her away.


Editorial Reviews

Review

..."It is truly a masterpiece. ... You are to be commended and praised. I hope it sells like hotcakes!! -- Jean Della Bovi, Southbury, CT

It captures you with its poignancy, thoughtfulness and underlying sadness of a life slowly dissolving; sparked with laughter and poetry. -- Marie S., Nyack, New York 1999

About the Author

Bernadette McKiernan once lived for the excitement of working for the United Nations and traveling around the world. However, the love for her only son and his need for her to be there for him clipped her flighty wings. While raising Eric, she volunteered in the local school library where she helped children with their reading, writing and book discussion skills, trying to infuse in them respect for education and the wonderful diversity of life and people. She has also had several free-lance writing positions which have helped her hone her craft.

During her caregiving days, she put her enjoyment of words and people to the true litmus test, since it was quite a monumental and sometimes daunting task before her. While caring for her father who had Alzheimer's Disease and several other debilitating medical problems, she crystalized her experiences in this inspirational journal seeking greater understanding and humane treatment of the Alzheimer's patient by families, friends and society-at-large.

Her main emphasis is on inclusion and strongly encourages family members to try and keep the patient at home in a warm and loving environment since there really is no substitute for the genuine caring and acceptance found there by all those involved in this life-altering journey. She believes in the power of "YOU" and the daily small, common sense approaches that can mean so much to this particular family member. She took her father everywhere possible, bringing him to the Table of Life which she feels belongs to all of God's people - no matter what "suit" of humanity their souls are encased in. This book is a "must read" for ALL caregivers. Her well-written and compassionate "companion book" is just the ticket for a noble and rewarding human experience.


Product Details

  • Spiral-bound: 53 pages
  • Publisher: Bernadette McKiernan (October 17, 1998)
  • ISBN-10: 0970982402
  • ISBN-13: 978-0970982407
  • Average Customer Review: 5.0 out of 5 stars  See all reviews (2 customer reviews)
  • Amazon Best Sellers Rank: #9,982,271 in Books (See Top 100 in Books)

 

Customer Reviews

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Average Customer Review
5.0 out of 5 stars (2 customer reviews)
 
 
 
 
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4 of 4 people found the following review helpful:
5.0 out of 5 stars Talking to Myself:..., March 21, 2001
By 
Howard Jacobus (Chester, NY, USA) - See all my reviews
This review is from: Talking to Myself : The Inspirational Journal of a Mad Caregiver (Spiral-bound)
This book is an outstanding book on care giving. It is a must read for all caregivers. It is a very emotional book with funny vignettes. It helps take the edge off some of the more negative feelings caregivers express. It also has a wealth of information for caregivers to get help. It shows you how you can reverse the process of Alzheimer's Disease by treating the patient with lots on tender loving care. A well-written and most enjoyable book to read.
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0 of 1 people found the following review helpful:
5.0 out of 5 stars The Caregiver (Duke Univ.)Vol. 19: No.1 Spring 2000, April 1, 2001
By A Customer
This review is from: Talking to Myself : The Inspirational Journal of a Mad Caregiver (Spiral-bound)
Bernadette Mciernan strives to transcend the disease process itself in a quest to give her father a more meaningful existence.
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