Top positive review
55 people found this helpful
This is essential, for patients and supporters!
on July 4, 2003
Fibromyalgia The First Year: An Essential Guide for the Newly Diagnosed, by Claudia Craig Marek. This book is one of the most valuable tools a newly diagnosed fibromyalgia patient can own. The author is a care provider who works with a respected doctor specializing in fibromyalgia. She has fibromyalgia, and has raised two fibromyalgic sons. She has spent a great deal time listening to and observing patients, and doing her best to answer all who come to her with questions. Including me. Much of that knowledge she has gathered is within this book.
The book is separated into handy segments. You can learn what you need to know immediately and then build on it. There are explanations on common tests for co-existing conditions that may be adding to your problem. Some of these conditions that may profoundly impact your quality of life. Their descriptions are included,. and advice on how to ease their impact. There are sections on medical insurance, diet, vacations, raising children with fibromyalgia (and what to look for), support groups, work-related problems, and one of the best letters explaining fibromyalgia to others. The description of cognitive deficits (fibrofog), so difficult for us to describe to others, is clear and hits the mark. Here is someone who understands.
One of the biggest problems patients with fibromyalgia face is that it is poorly understood by others. The patient often has to spend valuable energy and time educating supporters and even care providers. This book provides ways to smooth the education process. She also explains many symptoms by giving examples, and they are ones that will resonate with fibromyalgia patients. This book is not just for the newly diagnosed. I believe that all patients with fibromyalgia, and their supporters would benefit greatly by reading this book.