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276 of 276 people found the following review helpful
Format: Mass Market Paperback
Anyone caring for someone with Alzheimer's Disease, other diseases of dementia, or severe memory loss disorders, know just how difficult and consuming it is to care for someone you love. Whether you're a family member, caring for a loved one, or any of a number of healthcare providers, "The 36-Hour Day" is an absolute must-read for all. Put simply, it is a true necessity for anyone involved in the care giving process of dementia-type disorders.

My 73 year old Father was diagnosed, about 8 years ago, with a "memory problem", by his family practitioner in New York. It was far more than simple memory loss, not unusual for someone his age, and the past 4 years of my life have been dedicated to his total care. As much as I love my Father, the demands of caring for someone with Alzheimer's Disease has literally taken over my entire life and in every imaginable way. It is exhausting, depressing, frustrating, demanding and progressively gets worse. And, yes, there have been many special moments that I will treasure forever. I saw a side of my Dad, at times, that was much more loving and compassionate than I ever knew him to be. We played music, talked about old times, watched old movies and tried to harness ourselves into anything and everything that would build his confidence.

The bottom line, however, is that Alzheimer's is a disease that affects the entire family unit. And it's not uncommon for a caregiver to place his/her needs on the back burner, often to a point where they neglect themselves so badly that they become too ill to provide care for their loved on. Families have been torn apart, marriages have ended and friendships neglected that they dissolved. I've also seen people come together in ways that were miraculous. It is so necessary to take care of the caregivers, to offer them respite and to educate family members so they will have the tools to make it through the toughest of times. And, finally, one book does it all.

I believe that reading "The 36-Hour Day" is the first step in understanding Alzheimer's Disease, along with other dementia-type illnesses, and one of the most important and necessary steps a caregiver can take to prepare themselves for the very long road ahead. My friends who are reading this review, this is a very long journey that will require so much of your time, energy, compassion, passion and love. The best advice I can give you is to provide a pathway that will allow you to better understand what lies before you. There is no need to go this road alone. Support is necessary and so is reading literature and books that help you in order that you may help someone else. "The 36-Hour Day" is outstanding and comprehensive in every respect. If I were a wealthy person, I'd supply a copy to anyone who needed one.

Even though I am with him 24 hours a day, 7 days a week, and provide all of his care, just this morning he asked me who I was. I reassured him, as I always do, and told him that I was his child, that my name is Peter and that he need not ever worry or get frustrated over trying to remember me or anyone else. Although it kills me inside, to hear this day after day and to see him continually get worse, my job is to remain strong and not take anything personal. None of this is his fault and nowhere, other than in this book, will you ever find the sort of comprehensive guide to caring for someone like my Dad. These memory disorders are far more devastating than the public and the healthcare world can comprehend.

Alzheimer's Disease is not merely forgetting where the car keys were placed or forgetting the name of a neighbor that you might see twice a year. Alzheimer's dementia is about losing everything it is that ever made you who you are. It is about having your rights to drive, and other similar freedoms, taken away. It is about losing your total privacy and needing the assistance of a caregiver to help with cooking or paying bills. Safety becomes the main concern of those who love and care for someone with dementia. It is more than just forgetting ingredients to recipes or the names of famous baseball players. Eventually, it will become more difficult and painful for the caregivers than the suffering patient. And my deep concern is for the caregivers who are still living and have a good life ahead. If our loved ones could speak, they would thank us for everything we have done and ask that we move forward with our lives.

I hope this has helped, even just a little bit. Bless all of you for taking the time to read this. You have my contact information below and feel free to contact me if you would like to discuss this book or even if you just need someone to chat with. The book will teach you the importance of reaching out to others. My hand is waiting to grasp onto yours.

My Sincere Warmth and Regards

Peter V. Cannice
of Scottsdale, Arizona
Email: Horsepete@aol.com
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43 of 44 people found the following review helpful
on June 12, 2003
Format: Mass Market Paperback
A truly remarkable book. It is well written, and very easy to read and follow, providing a background in this disease and what can/will happen to those afflicted. Providing extremely helpful insights and strategies for those of us who are caregivers, spouses, sons, daughters, and other family and friends. Personally, this book helped me to understand what was happening to my mother, helped me to be more understanding and less frustrated and annoyed with her. This book provides a great deal of insight and allows the reader to get a "feel" for the current situation and possible future situations. I have recommended this book to my personal physician to pass along to her other patients who may be in the same position as I am.
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41 of 42 people found the following review helpful
on October 4, 1999
Format: Mass Market Paperback
My Mom has alzeheimers, I didn't think anyone was going through what I was until I read this book, It made me feel like I wasnt alone in this... Alzeheimers is a horrible disease, taking care of someone who has it rips your heart out... This book will help you deal with the everday's of taking care of someone... I recommend it to anyone who is going through this...
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26 of 28 people found the following review helpful
Format: Mass Market PaperbackVerified Purchase
this book was published about 5 years ago. at that time, it was up to date. while much of the neuroimagining and neuroscience has changed during that time, frankly, little has changed in how we protect, communicate with, comfort, love our loved ones or how we take care of ourselves. this book is longer than most. i like that. it gives background information, discusses alternatives with pros and cons, whereas some of the shorter alzheimer books are written more like a physician's pocket resource guide. this is an excellent book. it is one that i have recommended and loaned out to patients' families dozens of times. i always hear the same thing - the book is an invaluable resource. my hope is that nancy mace updates it again soon! this book is well worth the price, new, and perhaps more (did i really say that?)
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19 of 20 people found the following review helpful
on December 15, 1999
Format: Mass Market Paperback
Well written and informative book. Very practical for concerned family members. I use this book as the gold standard of information for the familiy members of clients I am working with.
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13 of 13 people found the following review helpful
on July 20, 2002
Format: Mass Market Paperback
One of the most heart-wrenching experiences that adult children have to face is the knowledge that mom or dad is mentally whithering away bit by bit right in front of their eyes. When this happens, these children often do not know where to turn for help or guidance. In THE THIRTY-SIX HOUR DAY by Mace and Rabins, what can be done and what must be done is clearly outlined. It is tragic that the majority of readers of this book are the ones who now find themselves in that unhappy circumstance. Mace and Rabins explain exactly what typically happens to senior parents whose mental and physical faculties erode with the passing of time. The most common culprits are Alzheimer's and Parkinson's diseases. Mace and Rabins explain the nature of these and other similar crippling diseases. When senior parents are affected, not only their lives are turned upside-down. All too frequently, the lives of their children are affected too, sometimes ruinously. A secondary tragedy is that this time of decline need not be as ruinous as first perceived. Mace and Rabins set up a step-by-step plan to insure that this pain of decline is minimized and attempts to maintain basic human dignity for those affected are maximized. The authors suggest that the children of those affected reach out to available community services to include health care workers, insurance aids, nursing homes, and public and private resources. They emphasize that the families of those who are undergoing mental decline need not necessarily face financial and emotional collapse. There are definitely many courses of action that nearly every family can take, even those families of modest financial resources. Last week, I helped to put my father who suffers from Alzheimer's and Parkinson's diseases into a quality nursing home in Fort Lauderdale. Thanks to this wonderful book, what could have been a major tragedy for my family became instead another obstacle that was successfully surmounted and one more confused old man regained a semblance of the dignity that he felt sure was long gone.
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14 of 14 people found the following review helpful
Format: Mass Market Paperback
The 36-Hour Day touches on topics that will become the stuff your life is made of if you are a caregiver. The book discusses the stages of the disease, behavioral issues and prescriptive advise for caregivers. It is essential reading for those who care for someone with Alzheimer's disease.
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47 of 57 people found the following review helpful
on January 12, 2001
Format: Mass Market Paperback
This review is not about the quatity of the book. So far I find it to be full of excellent advise and information.
THIS IS AN OLD EDITION! I was shocked to discover a third edition in a book store last night. The latest edition contains updated information about current treatments, the latest financial information and nursing home legislation.
So buy the book but get the third edition. It is paperback and has different cover.
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14 of 15 people found the following review helpful
on June 7, 2007
Format: Mass Market Paperback
I am sorry if you need this book because your loved one has Alzheimer's Disease or a related dementia but this book will be a valuable resource from the early stages through end of life care. I was given a copy at an Alzheimer's Association meeting and read it cover to cover and was so glad I did. Best of luck to you and know you are not alone.
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20 of 23 people found the following review helpful
on April 1, 2005
Format: Mass Market Paperback
I have recommended this book many times to people who have the heart-breaking task of caring for a family member with Alzheimer Disease or some other form of dementia. This book is the most practical and compassionate guide yet, and is now updated with some recent research (though new research is appearing almost every 6 months!) The most important gift of this book will be an understanding of the most frustrating and exhausting aspects of such caregiving, and the very useful solutions she offers that actually are effective.

Since my medical specialty is to try to prevent dementia, and other age related diseases, I hope my patients arrive in my office long before they have this debilitating disease.

After you get this book, and have learned to care for your aging elder with less stress and burnout for yourself, consider what you can do to prevent this from happening to you!

Dr. Tedde Rinker, Anti-Aging Medical Specialist, Redwood City, CA [...]
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