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The Lives They Left Behind: Suitcases from a State Hospital Attic [Hardcover]

Darby Penney , Peter Stastny , Lisa Rinzler , Robert Whitaker
4.0 out of 5 stars  See all reviews (72 customer reviews)


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Book Description

January 1, 2008

 

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The Lives They Left Behind is a deeply moving testament to the human side of mental illness, and of the narrow margin which so often separates the sane from the mad.  It is a remarkable portrait, too, of the life of a psychiatric asylum--the sort of community in which, for better and for worse, hundreds of thousands of people lived out their lives. Darby Penney and Peter Stastny's careful historical (almost archaeological) and biographical reconstructions give us unique insight into these lives which would otherwise be lost and, indeed, unimaginable to the rest of us.”—Oliver Sacks, M.D., Professor of Neurology and Psychiatry, Columbia University Medical Center, Columbia University Artist, and author of Musicophilia

 

“The haunting thing about the suitcase owners is that it’s so easy to identify with them.”—Newsweek

 

“In their poignant detail the items helped rescue these individuals from the dark sprawl of anonymity.”—The New York Times

 

“[The authors] spent 10 years piecing together . . . the lives these patients lived before they were nightmarishly stripped of their identities.”—Newsday

 

More than four hundred abandoned suitcases filled with patients’ belongings were found when Willard Psychiatric Center closed in 1995 after 125 years of operation. They are skillfully examined here and compared to the written record to create a moving—and devastating—group portrait of twentieth-century American psychiatric care.



Editorial Reviews

From Publishers Weekly

When New York's 120-plus-year-old mental institution Willard State Hospital was closed down in 1995, New York Museum curator Craig Williams found a forgotten attic filled with suitcases belonging to former inmates. He informed Penney, co-editor of The Snail's Pace Review and a leading advocate of patients rights, who recognized the opportunity to salvage the memory of these institutionalized lives. She invited Stastny, a psychiatrist and documentary filmmaker, to help her curate an exhibit on the find and write this book, which they dedicate to "the Willard suitcase owners, and to all others who have lived and died in mental institutions." What follows are profiles of 10 individual patients whose suitcase contents proved intriguing (there were 427 bags total), referencing their institutional record-including histories and session notes-as well as some on-the-ground research. A typical example is Ethel Smalls, who likely suffered from post-traumatic stress disorder as a result of her husband's abuse; misdiagnosed and institutionalized against her will, she lived at Willard until her death in 1973. While the individual stories are necessarily sketchy, the cumulative effect is a powerful indictment of healthcare for the mentally ill. 25 color and 63 b&w photographs.
Copyright © Reed Business Information, a division of Reed Elsevier Inc. All rights reserved.

Review

"A tour de force, a must-read for anyone concerned with social justice, human rights and historical reclamation." -- Laura Prescott, President and Founder of Sister Witness International Inc.

"Darby Penny and Peter Stastny turn remembrance into an act of alchemy." -- Kim Hopper, author of Reckoning with Homelessness

"Darby Penney and Peter Stastny have...reclaim[ed] these individuals from the nameless, faceless fate of being only 'mental patients.'" -- Judi Chamberlin, author of On Our Own

"No reader will walk away untouched by these compelling portraits...." -- Ronald Bassman, Ph.D., author of A Fight to Be: A Psychologist's Experience from Both Sides of the Locked Door.

Product Details

  • Hardcover: 256 pages
  • Publisher: Bellevue Literary Press; 1 edition (January 1, 2008)
  • Language: English
  • ISBN-10: 1934137073
  • ISBN-13: 978-1934137079
  • Product Dimensions: 6.4 x 0.8 x 9.2 inches
  • Shipping Weight: 1 pounds
  • Average Customer Review: 4.0 out of 5 stars  See all reviews (72 customer reviews)
  • Amazon Best Sellers Rank: #791,282 in Books (See Top 100 in Books)

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Customer Reviews

Most Helpful Customer Reviews
55 of 65 people found the following review helpful
3.0 out of 5 stars Interesting, but disappointing July 18, 2009
Format:Paperback
I bought this book primarily thinking that it would be an even-handed exercise in sociology and amateur archaeology. As someone who really enjoys exploring abandoned buildings and postulating on the things people "leave behind" to be forgotten and then found again, I was really excited about the idea of finding out more about the lives of actual mental patients during the period of widespread institutionalization. Overall, my reaction to this book was mixed.

First of all, the authors of this book take a very strong anti-asylum tone. While it stands to reason that conditions in the asylums at the time were far from what would be considered acceptable today, no comparison is made nor information given as to how Willard compared to other asylums at the time. Furthermore, the authors shed very little light on the condition of psychology as it existed in the 1930s, 40s, and 50s. Other than arguing that a culture prevailed which encouraged a maintenance of the status quo in order for the hospitals to exploit the free labor of the patients, little insight is given (and even this argument is weakly made).

Another problem that I found with this book is that very little information is given on how the details of the lives of these people were acquired. While some of the information is explicitly drawn from the case files as well as interviews with workers at the asylum, the narratives are filled with holes in which the authors posit a number of intriguing, but unsupported theories. An example of this may be seen in a description of someone as being "close to her family" due to the fact that she had personal phone numbers in her possessions. Likewise, on several occasions the book posits that a patient may not have been popular or easy to get along with, due to the frequency of her changing address. While certainly one possibility, such assertions are made continuously on a whole variety of subjects with what appears to be scant grounding.

Generally, the portrayal of health care the authors seek to portray is one which is callous, cold, unsympathetic, and deliberately exploitative. Generally, the people analyzed by the authors are portrayed as being generally normal, ordinary people- who through some quirk, a high degree of emotional stress, or even sinister machinations- were involuntarily warehoused in a sort of prison which only worsened their condition. The symptoms of the patients are presented in a curious, detached sort of way, and at no time do the authors raise any questions with regards to what sorts of conditions the patients may actually have had, or that they were genuinely suffering from serious mental disorders. While some of this may certainly be true, the positions of the authors- that people were incarcerated for decades in mental hospitals simply for becoming upset in public or trying to talk with the president-- seems unlikely.

When the man in question is arrested by the Secret Service and sent to a mental hospital for trying to see the president, the authors postulate that the Ukranian man was just misunderstood and didn't realize that one does not simply walk into the White House to meet the president. The fact that he refers to himself as Jesus Christ in his interviews is not seen to be a sign of mental disorders, so much as an unusual way of expressing his personal innocence. While this is all very psycho-analytical, it does very little to explain how a handful of doctors-- faced with overcrowding and deteriorating facilities-- would have been unable to see the misunderstanding and let him go instead of keeping him locked up for 30+ years.

Furthermore, the book is compounded by a number of factual errors. For example, in describing the arrival of a Ukranian national to the hospital, the authors refer to the armies of tanks which fought in the Ukraine in 1940 after the Germans had pushed past Leningrad (for the record, the Germans did not invade until 1941 and Leningrad is in Russia, on the opposite side of the country from the Ukraine). Likewise a half-French, half-Italian woman is described as coming from countries from which there were "few immigrants to the United States."

Overall, this book is an interesting look at the lives of people held in almost permanent sequestering inside a mental hospital. However, given the ideological bent of the writers, one cannot help but feeling as though the tragic lives of these people are being filled in or "colored" in order to make a case for the elimination of in-patient mental health care.
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211 of 267 people found the following review helpful
1.0 out of 5 stars One of the Worst Books I've Ever Read February 22, 2008
Format:Hardcover|Amazon Verified Purchase
I was excited about this book when I heard about it and looked forward to it eagerly. The idea behind it was absolutely brilliant. How wonderful would it be to have access to the possessions, writings, and records of the disenfranchised people who were committed to psychiatric facilities back in the "dark ages of psychiatry"? The writers made a claim that they researched intensively when writing this book; however, I was able to locate 15 errors in the first 50 pages without even looking twice. What happened to the "10 years of research"? The further I read, the more unsettled I became. The entire book was an exercise in blaming the mental health field for everything that ever happened to anyone with psychiatric issues, and, although the field frequently needs slapping, it needs an "eyes open" slapping instead of the blindfolded and repeated slam-crash-bang of a pinata stick.
The bottom line is this. Tell me the truth. Tell me upfront that you think that institutions stunk and that people were treated cruelly and that everyone was sick and blighted who was ever associated with the running of them. But don't take the lives of people who had pretty wretched lives to begin with and then use them to underscore your personal belief that psychiatry and institutions are bad and evil. That is bathos and victimization at its finest. No one who was "exhibited" in this book gave their permission for their lives and for the minutiae that made up their existence to be examined and cross-examined and interpreted so broadly. That is taking advantage of people with psychiatric issues and using them for your own purposes. That is what I object to. It's making a profit off of other people's misery and to that I object and will always object. That is intellectual dishonesty and making a buck off someone who was helpless by using them to make your point, whether or not they would have agreed with you. And in my egg-headed highfalutin' world that is a bad thing.
The absolute worst thing about this book was that the authors didn't allow these people to have their psychiatric issues. They tried to reframe all their subjects' interactions so that every bizarre thing they did, said, or thought was reframed as "normal" and any interpretation of their thought processes as being "different" was seen as the inherent evilness of the doctors and "the system". This makes me worry about the intent of the authors. Is mental illness or psychiatric illness or whatever you want to call it such a bad and shameful thing that we can't call it by its name or look at it in the daylight? Are we so ashamed of it that we have to make it into something that it isn't? If we do so, then we deny the humanity and struggle that is part and parcel of it just to soothe our own personal fears. Where is the bravery and the dignity in that, pretending something doesn't exist just because we ourselves are frightened by it? I personally like a lot of people who have psychiatric issues but I don't need to pretend that everything they do is normal to like them. Too bad the authors don't have the same viewpoint. This could have been a classic work with the all the rich sources of information they had access to. Instead it's a cheap dime store crime novel without any of the subtleties of the genre.
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17 of 19 people found the following review helpful
3.0 out of 5 stars Could Have Been So Much More... August 1, 2008
Format:Hardcover|Amazon Verified Purchase
I was gravely disappointed by this book. What could have been a unique, enlightening, and fascinating piece of work was simplified beyond belief, full of opinions instead of research, and really did far less justice to the individuals profiled than the author appeared to believe.

And...ok, this is an extreme pet peeve of mine...the editing was terrible. What it is lately about editing that has become so difficult? And we're not even talking about true editing, just simply making certain there are no typos and that form and grammar are correct. This was so poorly done it was painful to read.

I had looked forward to this book for some time, so I was very disappointed when I got through the first ten or so pages and realized it really wasn't for the thoughtful reader who wants solid research behind a story. No, it was a quick read for a non-critical thinker that likes to be hand-fed polemics.

Sorry.
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Most Recent Customer Reviews
5.0 out of 5 stars Great book!
Excellent read, it is unbelievable how badly those people were treated. The authors did a lot of work to piece together their lives.
Published 15 days ago by James H.
5.0 out of 5 stars Great read!!
Very interesting and lots of good information!! I would recommend this book
to anyone who is interested in this topic.
Published 20 days ago by kerrie squires
4.0 out of 5 stars A bleak, yet interesting look and the lives of those doomed to long...
As someone who's has brief experiences in "the system," I am very interested in how it has affected others who were less fortunate. Read more
Published 25 days ago by KMac
5.0 out of 5 stars I love it
Facinating yet sad stories. I couldnt put it down till I had finished it. I highly recomend it to all.
Published 1 month ago by Kelly Allen
5.0 out of 5 stars very interesting
These stories are unimaginable, yet they are true. I read this book in two days, I couldn't put it down.
Published 1 month ago by Adrian Alessandrini
5.0 out of 5 stars Great
I think this was wonderfully written and put together. I am glad that I read it! I hope that this book sheds enough light to get a little improvement in the mental health system so... Read more
Published 2 months ago by tavishwatts
5.0 out of 5 stars Great read!
This book was very moving and poignant, it detailed the lives of people who got caught up in a system that never let them go. Read more
Published 2 months ago by jan
5.0 out of 5 stars lest we never forget or we are prone to relive the past
Such an insight into the lives and antiquated thought processes of the past! I purchased the book for my mother, but ended up reading it before I gave it to her!
Published 3 months ago by Lady Mimi
5.0 out of 5 stars Amazing!
This book is outstanding! The history is amazing! It really took me back to the lives of those people and their courage! I most definetly recommend this book!
Published 3 months ago by Cathy Fagner
5.0 out of 5 stars Fascinating & painful view of the stigma of mental illness
Fascinating view on how "insane" were seen not long ago --As MSN psych nurse and educator, it's painful to see lack of progress. Read more
Published 5 months ago by Anne L. Brown
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